Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

My Sister Just Diagnosed Celiac


AMQmom

Recommended Posts

AMQmom Explorer

Hi! I am a meddling little sister. I have been raising two celiac children and am adjusted to the gluten-free lifestyle. My sister is nearing 50 years old and just got diagnosed. We live accross the country from each other and she is overwhelmed. I can tell that she is not up to par and not handling information at top speed, not to mention shocked. I wish I was there for her. Anyone here live in the Glendale, CA, area and experienced celiacs? I plan to email her tips for the day while her fog clears in order not to overwhelm her. She has the Gluten-Free for Dummies Book but has not looked at it yet. I guess I just wish that I could be there and was wondering if anyone else knows of support in her area. If someone is loca, could we chat a little and then if they are willing, could I give their info to my sister and her family? Thanks in advance!!!! Oh - and she is not up to visiting the forum at this time......


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nasalady Contributor
Hi! I am a meddling little sister. I have been raising two celiac children and am adjusted to the gluten-free lifestyle. My sister is nearing 50 years old and just got diagnosed. We live accross the country from each other and she is overwhelmed. I can tell that she is not up to par and not handling information at top speed, not to mention shocked. I wish I was there for her. Anyone here live in the Glendale, CA, area and experienced celiacs? I plan to email her tips for the day while her fog clears in order not to overwhelm her. She has the Gluten-Free for Dummies Book but has not looked at it yet. I guess I just wish that I could be there and was wondering if anyone else knows of support in her area. If someone is loca, could we chat a little and then if they are willing, could I give their info to my sister and her family? Thanks in advance!!!! Oh - and she is not up to visiting the forum at this time......

Hi,

I work in Pasadena and live in Glendora. I don't know of any local support groups (although there probably are some out there) but she should know that Whole Foods Market has an entire gluten free section with all sorts of foods plus gluten free breads and bagels, etc in their bakery. Trader Joe's also sells gluten free items such as cereals and pastas. It's not that difficult to be gluten free in Southern CA.

Please feel free to send me a PM and we can discuss things.

Take care,

JoAnn

uclangel422 Apprentice

I live on the border of Burbank and Glendale. Some tips that I know of are, shop at Whole Foods and Trader Joe's. The Whole Foods in Pasadena on Arroyo has a huge gluten free section with pretty much every kind of food imaginable.

Also, as far as restaurants go, most places are very nice and accomodating to my requests, although i would stay away from the Outback in Burbank. I am always glutened there, no matter what i say or eat there.

Please feel free to contact me for any information that might be helpful.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Russ H replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      5

      Celiac flare years after diagnosis

    2. - Aretaeus Cappadocia replied to Jmartes71's topic in Dermatitis Herpetiformis
      2

      Skin issues

    3. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      5

      Celiac flare years after diagnosis

    4. - trents replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      5

      Celiac flare years after diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,048
    • Most Online (within 30 mins)
      10,442

    nvdw
    Newest Member
    nvdw
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Russ H
      HI Nancy, In your first post, you said that you were diagnosed by biopsy and blood test - this is what I was referring to: the blood test is for antibodies that are made during active disease. After a period on a strictly gluten-free diet, the antibodies return to low level. It is a good way of checking for accidental exposure if symptoms persist. If you are reacting to foods that don't contain gluten, you may be reacting to something else. Alternatively, a condition called SIBO is common in people with coeliac disease, where there is an overgrowth of bacteria in the small intestine. This can be tested for with a simple breath test. The main treatment is with a course of antibiotic. Small Intestinal Bacterial Overgrowth (SIBO)
    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
×
×
  • Create New...