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I Have Been Eating Gluten For Over A Month

kimis

By kimis
in Coping with Celiac Disease

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kimis Collaborator
kimis
Posted

My aunt made me gluten free muffins and cookies....isn't she sweet! I have been eating them every day since just before Thanksgiving. To make a long story short....the food was not gluten free....more like gluten packed!!!!!

The strange part about this whole thing is....over the past 3 weeks I have been feeling great! A few months after I started the gluten free diet I started having so many problems, and they just got worse as time when on. Then all the sudden I feel awsome again! What the hell dose this mean?

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*lee-lee* Enthusiast
*lee-lee*
Posted

did you get a confirmed diagnosis of celiac from your doctor? if you truly have celiac, you're still harming yourself by ingesting gluten, regardless of how you feel.

kimis Collaborator
kimis
Posted
  • Author

Yes, my Dr. has confirmed my Celiac and I have been on the diet 10 months. I know all the bad stuff gluten can do, and I will continue to be gluten free. I'm not asking if anyone thinks it's okay to eat gluten if you have Celiac Disease. I'm saying for the past 9 months I have felt horrible, and after eating gluten every day for weeks I am Feeling great again. My question is...why do I feel wonderful off the diet and horrible on it?

zero Newbie
zero
Posted

I will wildly speculate that your gluten free diet is missing or is deficient in nutrients that is in your gluten filled diet. In my case, I was not getting enough fiber once I eliminated all those whole grain items in my diet. I've also heard something about being addicted to gluten but don't know too much about that.

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      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
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      Celiac flare years after diagnosis

      By trents · Posted

      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
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