Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Do Your Parents Think You Are Crazy?


Lexi

Recommended Posts

Lexi Enthusiast

Wow - I am so frustrated! My parents just spent the weekend with my family because I was very sick, and they were trying to help out with my kids. Oh, what a big help that was! My Parents kept letting me know that they basically think I am crazy because I insist on using my own set of pans and utensils. Then my Mom will always try to cook something for me that I can't have, and I have to keep explaining EVERYTHING! They are supportive of me with Celiac Disease in itself, but they just can't seem to get all the crazy things that go along with it. I also have Candida, and they think I need to go to more Doctors to get second opinions because they have never heard of such a crazy thing. I wish there was some kind of class that family members could attend to understand the life of a Celiac. The hardest part is that I end up having a miserable time when they come to visit now. Anyone else go through this???


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



oceangirl Collaborator

Yup!

My older parents can't grasp the extenuating circumstances, either. Frustrating- I don't even try anymore.

It's hard to imagine walking in someone else's moccasins, I guess...

lisa

pennypicker Newbie

Absolutely.

I saw my parents for the first time post-Dx right around Christmas. They didn't intend to be rude, but because of a total lack of understanding, it appeared that way. They were most confused about cc and poorly labeled products. Educating some people, especially people I've known for a long time, is very difficult for me to do. I think it's because I used to be able to eat anything I wanted with them, and now I can't and it doesn't make sense to them. Counter intuitively, people I've met post-Dx seem to be more accepting, because this is the only way they've ever seen me.

NorthernElf Enthusiast

Yeah, I guess my folks go both ways too - supportive and then...not so much.

A couple of visits ago (they live 6 hours away) my mom bough gluten-free pasta and chips and such for me, which I thought was nice. At Christmas she had a lasagna made for us to eat when we arrived - NOT gluten-free. Very frustrating since we got there at 7 and I was hungry...but I do travel with my own food. Our last meal while I was there was store bought chicken wings (not gluten-free) and frozen fries. I sat there with my salad and toasted gluten-free bread. My mom actually said I was making her feel guilty. Oh, I so bit my tongue (wanted to say that she should !!). The sad part - I think the comment was actually more about me eating a healthy meal versus a fatty one, nothing to do with gluten. <_<

I'm spending a week with my inlaws in March - I'm bringing a lot of my own food and there is a Whole Foods near them so I will be shopping there ! My MIL is actually better with the diet than my mother.

I just think that they have fed me gluten all my life and don't get that I can't have it now - I don't live near them. My folks are also always on diets (weight loss) & I think they don't get a NECESASSARY diet at all.

FWIW, my DH was upset at my folks and their lack of support - he would never say anything directly to them (neither did I). I figure they'll get it eventually because I always eat gluten-free. DH certainly gets it - he knows what I'm like when I'm sick !!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia posted a topic in Gluten-Free Recipes & Cooking Tips
      0

      Pineapple Chicken (boneless) Breast with Salsa and Coconut Rice

    2. - suek54 replied to BelleDeJour's topic in Dermatitis Herpetiformis
      20

      Dermatitis Herpetiformis - follow up dermatology appointment coming up

    3. - BelleDeJour replied to BelleDeJour's topic in Dermatitis Herpetiformis
      20

      Dermatitis Herpetiformis - follow up dermatology appointment coming up

    4. - knitty kitty replied to BelleDeJour's topic in Dermatitis Herpetiformis
      20

      Dermatitis Herpetiformis - follow up dermatology appointment coming up

    5. - suek54 replied to BelleDeJour's topic in Dermatitis Herpetiformis
      20

      Dermatitis Herpetiformis - follow up dermatology appointment coming up

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,122
    • Most Online (within 30 mins)
      10,442

    atink78
    Newest Member
    atink78
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Here is a recipe I highly recommend. Wonderful flavors and very satisfying. As written, chicken fits in a 12 inch sauté pan. I've tried doubling this recipe - I had to cook chicken in two batches, setting one batch on a plate while finishing second batch. Once preliminary cooking was finished, the same 12" pan was able to fit combined batches for rest of recipe. Kind of a hassle, but I had a large package of chicken and I was happy with extra leftovers.  I tend to use red onion in preference to shallot as I prefer the stronger flavor.   Pineapple Chicken Breast with Salsa and Coconut Rice Ingredients 1 1/2 pounds boneless skinless chicken breasts, cut into bite size pieces (I use kitchen shears) 1/3 cup low-sodium gluten-free soy sauce (or coconut aminos) 1/3 cup pineapple juice 2 tablespoons brown sugar 2 tablespoons gluten-free ketchup (plain ketchup tends to be safe but read the label) 1 shallot, chopped (or red onion) 4 cloves garlic, chopped 1 tablespoon grated ginger 1 pinch red pepper flakes (more if you like) 2 tablespoons sesame oil, or extra virgin olive oil 1/4 cup chopped cilantro Pineapple Salsa 2 cups canned pineapple chunks (or fresh pineapple; crushed pineapple works, but is less preferred) 1/2 small shallot, finely chopped (or red onion) 1 jalapeño, seeded (if desired) and chopped (depending on your tastes, this could be doubled) juice of 1 lime 2 tablespoons fresh thyme leaves (dried are ok) 1 avocado, diced Instructions     • In glass jar, whisk together soy sauce, pineapple juice, brown sugar, ketchup, shallots, garlic, ginger, and chili flakes.     • Pour 1/3 of sauce over chicken and let sit 15 minutes or up to overnight in fridge.     • Meanwhile, make the salsa: combine all ingredients in bowl.     • Heat oil in large skillet over medium-high heat. Add chicken, cook 5 minutes until cooked through on both sides. Reduce heat to medium and pour in remaining soy sauce mix.     • Cook until sauce glazes chicken and begins to caramelize, about 5 minutes. Remove from heat and stir in cilantro.     • Serve chicken over rice and spoon salsa over chicken. Sprinkle on diced avocado and squeeze of lime. Coconut Rice:     • Combine 1 (14 ounce) can coconut milk and 1/2 cup water in a medium pot. Bring to low boil.     • Add 1 cup basmati rice and pinch of salt. Stir to combine, cover, then turn heat down to lowest setting possible.     • Allow rice to cook 10 minutes on low, then turn heat off completely and let rice sit, covered for another 15-20 minutes (don’t take any peeks inside!).     • Remove lid and fluff rice with a fork. Instant pot alt. for Coconut Rice: 2 cups white rice, pinch of salt, one 14 oz can coconut milk and one can water, mix, then cook 3 min with slow release. Fluff with fork and serve. This recipe has some minor modifications from the original at www.halfbakedharvest.com/pineapple-chicken/
    • suek54
      KnittyKitty, quite agree, more tests should be standard, mandatory even,  but they simply are not in the UK.  Younger people seem to be tested more older people. Limited funds perhaps, its not right and would be vehemently denied by the-powers-that-be, but there you are. More and more I've found that as I get older I need to do more of the detective work myself. Thankfully, I  am able to do that but feel very sorry for those who can't.  Anyway, I have already gained so many helpful suggestions on this forum and its just so nice to know that I'm not the only one with this wretched condition.  We live to fight another day🤗 Sue  
    • BelleDeJour
      Oh wow, I also have vitiligo on my hands and just in the last few days (when I have been brave enough to actually look at my skin now it's a bit better) on my feet a bit. A derm years ago noticed it and said 'stress', I thought probably topical steroid use but what you have written, fits. 
    • knitty kitty
      @suek54, Testing for nutritional deficiencies is considered part of proper follow up care for those with Celiac Disease and Dermatitis Herpetiformis.  The malabsorption of nutrients is common in both.  The problem is doctors don't know much about nutrition. Doctors aren't required to take many hours of instruction in nutrition.  They are taught outdated information which doesn't apply to clinical practice.  They attend medical schools funded by pharmaceutical companies and taught to prescribe drugs to treat symptoms, not discover the source of the illness.  There are many diseases that would benefit from proper nutrition.  Arthritis, MS, vitiligo, infertility,  and Diabetes are just a few. Do be sure to visit Dr. Lonsdale and Dr. Marrs' site where I learned so much about thiamine... https://hormonesmatter.com/genetic-thiamine-deficiency-ravaged-my-family/ https://hormonesmatter.com/familial-beriberi-discovering-lifelong-genetic-thiamine-deficiency/ https://hormonesmatter.com/thiamine-deficiency-causes-problems/
    • suek54
      Hi KnittyKitty, Like Belle I have read all your info with great interest and made notes to do a bit of research. It really is a minefield isn't it? Im already on that autoimmune bandwagon you mention - vitiligo, premature ovarian failure (at 39), hypothyroidism, Addison's and now dermatitis herpetiformis. I'm stopping there,  any more would just be greedy don't you think!😂 One of my two brothers had rheumatoid arthritis, his daughter has MS, my other brother had pernicious anaemia, all autoimmune. The force seems to be strong in our family. Interestingly,  my grandmother had frequent bouts of sickness and diarrhoea all her life, poor love. No-one ever got to the bottom of it. I wonder if she too had coeliacs? dermatitis herpetiformis is horrid but the dapsone 100mg has now cleared my skin. Im still getting some itching and prickling, but nothing to see. Im hoping that will stop in time. My bloods are holding well, no side effects that I'm aware of.  You seem to have access to a lot more tests in the USA than we do here in UK. Our NHS is brilliant but only with private health insurance could we get all the tests you mention. Hey ho, perhaps I'll win the lottery then I shall have the whole raft of tests.  Thank you so much for all the info.  Sue      
×
×
  • Create New...