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kimis

By kimis
in Related Issues & Disorders

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kimis Collaborator
kimis
Posted

In november I was dx with Hashimoto's and started 50mcg levothyroxine. After three days on the med I felt bad....constipation, edema, and what felt like a heavy heartbeat. I stopped and all went back to normal. I tried again 2 months ago, 25mcg unithroid, and it happend again. I took another break, and Monday I started with half a 25mcg pill...and I am starting to experience the same effects. I have no idea what could be happening. It's not anxiety and I doubt it has anything to do with my menstral cycle. The only explaination I can think of is some underlying condition that is triggered when I take thyroid hormones. But would 3 days on hormones make that much of a difference?

Please tell me what you think....even if you think I am being rediculous. I would really appreciate any oppinions, ideas, or experiences.

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mindwiped Rookie
mindwiped
Posted

Yes, it can be the thyroid meds, and yes, just 3 doses can be enough for you to know there's a problem. I know the name brand Synthroid is gluten-free, I don't know about the others, that may need to be checked, also, there are different formulations for thyroid meds, synthetic vs natural, T3 only, T4 only, and T3/T4 combo pills, plus I think there are liquid and pill formulas, so you may need to go back to your Dr. and tell them what's happening and find out why you're having trouble. Constipation, or slow bowels may be due to gluten or not having enough of the thyroid med, since that will slow down your digestion. Also, the binding agent in the pill may just be one that slows your bowels, gluten or not. The edema and the heavy heartbeat, I don't honestly know, call your doctor.

GFtraingirl Newbie
GFtraingirl
Posted
In november I was dx with Hashimoto's and started 50mcg levothyroxine. After three days on the med I felt bad....constipation, edema, and what felt like a heavy heartbeat. I stopped and all went back to normal. I tried again 2 months ago, 25mcg unithroid, and it happend again. I took another break, and Monday I started with half a 25mcg pill...and I am starting to experience the same effects. I have no idea what could be happening. It's not anxiety and I doubt it has anything to do with my menstral cycle. The only explaination I can think of is some underlying condition that is triggered when I take thyroid hormones. But would 3 days on hormones make that much of a difference?

Please tell me what you think....even if you think I am being rediculous. I would really appreciate any oppinions, ideas, or experiences.

I agree with "mindwiped" - call your doctor again, or find another doctor who might try some other thyroid med's. There are so many different ones; and the binding agents and/or fillers in some of them could bother you, even if it is gluten free. My old thyroid med's (T3/T4 compounded) had to be lactose free. I would get sick within 2 or 3 days on a thyroid medicine with lactose filler; really sick, so bad that I had to go home from work. Not a lot of fun - I learned the hard way that finding a thyroid medication that agreed with my digestive system, was a huge challenge.

Ask around, do research on the Internet, and, if needed, get another doctor.

And, you are NOT being ridiculous... Keep asking questions, keep searching for answers and don't give up until you feel better.

  • 2 weeks later...
mindwiped Rookie
mindwiped
Posted

Just checking in on you, have you heard anything or figured anything out yet? Hoping for the best!

kimis Collaborator
kimis
Posted
  • Author
Just checking in on you, have you heard anything or figured anything out yet? Hoping for the best!

wow....that is really nice of you . I think my body just needed time to ajust to something new. I am still on half a pill every other day, but the swelling has gone away. Next week I will bump myself up and hopefully I will start feeling like my old self again. Thanks.....

wowzer Community Regular
wowzer
Posted

Just for your information the name brand synthroid can no longer be guaranteed that they are gluten free according to glutenfreedrugs.com

I started taking the generic form which is gluten free.

kimis Collaborator
kimis
Posted
  • Author
Just for your information the name brand synthroid can no longer be guaranteed that they are gluten free according to glutenfreedrugs.com

I started taking the generic form which is gluten free.

okay thanks.....does that include Unithroid or is it limited to Synthriod? I guess that means you are taking Levothyroxine.

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Mtndog Collaborator
Mtndog
Posted
wow....that is really nice of you . I think my body just needed time to ajust to something new. I am still on half a pill every other day, but the swelling has gone away. Next week I will bump myself up and hopefully I will start feeling like my old self again. Thanks.....

Oh- I'm glad you are feeling better!

I take Armour which is gluten-free. I tried Thyrolar and it didn't work very well.

loraleena Contributor
loraleena
Posted
In november I was dx with Hashimoto's and started 50mcg levothyroxine. After three days on the med I felt bad....constipation, edema, and what felt like a heavy heartbeat. I stopped and all went back to normal. I tried again 2 months ago, 25mcg unithroid, and it happend again. I took another break, and Monday I started with half a 25mcg pill...and I am starting to experience the same effects. I have no idea what could be happening. It's not anxiety and I doubt it has anything to do with my menstral cycle. The only explaination I can think of is some underlying condition that is triggered when I take thyroid hormones. But would 3 days on hormones make that much of a difference?

Please tell me what you think....even if you think I am being rediculous. I would really appreciate any oppinions, ideas, or experiences.

I think this is similiar to Synthroid which does not work for many people Talk to your doc about Armour thyroid or Cytomel.

mindwiped Rookie
mindwiped
Posted
okay thanks.....does that include Unithroid or is it limited to Synthriod? I guess that means you are taking Levothyroxine.

I take the Levothyroxine, but DH is the household celiac, so I'm not as careful about checking my meds. If you get ahold of your pharmacist, either they can call the manufacturer, or get you the info to do so and check. Levothyroxine, is generic Synthroid, so if the manufacturer is making it 'off label' than you might have an issue, so I would call and find out. I'm glad to hear you're doing better!

Jenny (AZ via TX) Enthusiast
Jenny (AZ via TX)
Posted

I take Armour, but when I first started, I felt horrible on it. Was also taking a compounded T3. I had accelerated heart rate and anxiety. I had to reduce my dose by at least half. Some of us have to start on really low doses and increase slowly. I hope you are feeling better.

mindwiped Rookie
mindwiped
Posted

Reading all this has made me feel so lucky. I got started on the name brand Synthroid, 25 mcg, and felt so well on it the doc upped me to 50, and ran the blood work to check my levels. By then the free samples ran out, and my insurance requires generics whenever possible, so I switched to the Levothyroxine, and never noticed a difference, which is not the normal from what I've read. I'm on the 75's now, and at least the thyroid part of my life feels so much better! I think with any medication, there are those who response wonderfully, and those that have more trouble. Take care, and I hope you get it all figured out for yourself!

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