Intolerent To Gluten

[rvp]

I was told the other day (when I was with a medical person and we were discussing Celiac and DH)

an individual can be gluten intolerant to gluten and not have celiac or DH. Any thoughts on this?

[MaryJones2]

It is quite possible. Many members on this board do not have celiac yet react much the same way that our celiac members do. There is a lot that isn't known about gluten intolerance. Personally, I know more gluten intolerant people than diagnosed celiacs.

[sbj]

I was told the other day (when I was with a medical person and we were discussing Celiac and DH) an individual can be gluten intolerant to gluten and not have celiac or DH. Any thoughts on this?

I agree with the medical person! There are many medical professionals and celiac 'experts' who feel that there are three separate conditions: celiac disease, gluten intolerance, and wheat allergy. Both celiac disease and wheat allergy can be diagnosed but there is no universally accepted way to diagnose gluten intolerance. The impact on the body for each of the three conditions is different. (In a similar fashion there are those who are lactose intolerant and those who have an allergy to milk.) You might find more information by doing a Google search for celiac disease versus gluten intolerance. There are a lot of opinions on the subject!

[purple]

For my kids, ages 20/17, they are not Celiac but not tested either. One gets bloated on occasion whether she eats wheat or not. She had really bad pms last year, has occasional allergies- seasonal, pets, dust.

The other ones head itches on occasion and sometimes gets C but she is vegan too, strange. She has keratosis polaris. Neither one have D or tummy pain, maybe a tummy ache a couple of times a year. Going gluten-free has made a difference. Both are 5'3" and one is overweight, neither have ever been skinny. Celiac does not run in our family on either side. Both have always been healthy.

The doc examined the oldest and said no gluten, went gluten-free, took vit B/magnesium and her pms became normal.

So...what are they?

Need to be gluten-free. I treat them as if they are gluten intolerant that way they will take it all more seriously.

We may learn more in the future, its only been about a year.

I read gluten intolerant's symptoms can be just like celiacs.

[rvp]

I agree with the medical person! There are many medical professionals and celiac 'experts' who feel that there are three separate conditions: celiac disease, gluten intolerance, and wheat allergy. Both celiac disease and wheat allergy can be diagnosed but there is no universally accepted way to diagnose gluten intolerance. The impact on the body for each of the three conditions is different. (In a similar fashion there are those who are lactose intolerant and those who have an allergy to milk.) You might find more information by doing a Google search for celiac disease versus gluten intolerance. There are a lot of opinions on the subject!

Thank you- with this info I feel a bit more "normal" with my situation. I believe Dr.'s do not give this whole area(glute intolerance-celiac-DH). They feel it isn't as important as so many other ailments, possibly because they really don't know the answer as to treating it. But I think if they had to suffer with these ailments, they sure would change their minds. Again thank you!

[rvp]

For my kids, ages 20/17, they are not Celiac but not tested either. One gets bloated on occasion whether she eats wheat or not. She had really bad pms last year, has occasional allergies- seasonal, pets, dust.

The other ones head itches on occasion and sometimes gets C but she is vegan too, strange. She has keratosis polaris. Neither one have D or tummy pain, maybe a tummy ache a couple of times a year. Going gluten-free has made a difference. Both are 5'3" and one is overweight, neither have ever been skinny. Celiac does not run in our family on either side. Both have always been healthy.

The doc examined the oldest and said no gluten, went gluten-free, took vit B/magnesium and her pms became normal.

So...what are they?

Need to be gluten-free. I treat them as if they are gluten intolerant that way they will take it all more seriously.

We may learn more in the future, its only been about a year.

I read gluten intolerant's symptoms can be just like celiacs.

Thank you for your response. I too have definite reactions to gluten, yet when they did the biopsy and said I did'nt have DH-explain then every time I have gluten on my system I break out with the rash. I agree they have not done enough reseach on this subject. I suppose our only option is to stay gluten free and make our lives more bearable.

[caek-is-a-lie]

Yup. I agree.

Tests are fallible and if the diet works, do it!

[purple]

Thank you for your response. I too have definite reactions to gluten, yet when they did the biopsy and said I did'nt have DH-explain then every time I have gluten on my system I break out with the rash. I agree they have not done enough reseach on this subject. I suppose our only option is to stay gluten free and make our lives more bearable.

I believe that if gluten is still consumed, you will only get worse, so gluten-free is the answer. One dd had a gluten burrito and had tummy pain last week. Since then she had a burrito again and nothing. Could be something else is bothering her or maybe she had more gluten in her at the time. IDK

[sugarsue]

This is my 7 yr old daughter exactly. She tests negative to Celiac in her blood test so we did not do a biopsy. Her Dermatologist said her skin issues were not DH (although again she had no biopsy). But, everything clears up when she does not eat gluten and she feels sooooo much better. Can you imagine a 7 yr old voluntarily giving up gluten? Even she can tell it's the answer for her!

Glad you are feeling good about your decision to go gluten-free!

[purple]

This is my 7 yr old daughter exactly. She tests negative to Celiac in her blood test so we did not do a biopsy. Her Dermatologist said her skin issues were not DH (although again she had no biopsy). But, everything clears up when she does not eat gluten and she feels sooooo much better. Can you imagine a 7 yr old voluntarily giving up gluten? Even she can tell it's the answer for her!

Glad you are feeling good about your decision to go gluten-free!

I am so thankful my kids didn't have to be gluten-free during the school years, just 1 dd did but as a senior only. We also live in such a small town that we don't have any fast food except what our Chevron offers, so that has been a plus this past year.

What a hard time for you and others, I feel for all you parents and your kids! My other dd had to go gluten-free during the second semester of her first year of college, that was hard enough!!

[krystal]

My understanding is this: (coming from a functional medicine physician that is ALSO a medical doctor)

Gluten Sensitivity: gluten makes you sick but you don't produce the IgA antibodies to it. Instead, I think it's IgE or IgG (please don't quote me on this, I get them confused)

Gluten Intolerance: You produce the IgA antibodies, and this is the reaction that flattens the villi, etc. However, some have not sustained enough damage to pass the "gold standard" test of the medical establishment. If you continue to eat gluten and have Gluten Intolerance, you will absolutely at some point pass the test. Celiac Disease IS Intolerance, but not all with Intolerance will "pass" the medical test. They aren't two different things, it's just that the tests aren't good enough to recognize all intolerance and the doctors won't classify you as such.

Gluten Allergy (Wheat Allergy): Life threatening, can have anaphylaxis as a result. You produce histamines when ingesting or contacting wheat. (Not IgA or IgG or IgE)

[happygirl]

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