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kimis

Pituitary Adenoma

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I have my surgical consultation on April 3rd, so hoping we will know after that when we can expect the surgery to happen if the neurosurgeon says he feels confident in being able to remove the tumor. If he can't remove it, or can't get all of it, the next step would be radiation. *crosses fingers that won't be the case*


Diagnosed Celiac 04.2012
Gluten-Free 04.2012

 

Diagnosed Pituitary Prolactinoma 12.2012

Low Cortisol/Possible Addison's Disease 02.2013

 

Maybe one day I will feel "normal" again. <3

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Fingers crossed too that you won't have to have radiation.  Radiation is one of my fears as well.  The only good thing I can say about that is that the effects of radiation do go away after time.  :mellow:

 

You're on an emotional rollercoaster ride with the hormonal state that you're body is in and the anticipatory/anxiety feelings that all this is bringing on.  Throwing hair straighteners is totally acceptable and understandable.  When we're in the clutches of the hormones and we don't feel any control over our emotional selves life just feels rotten.  One of the things that I do to kind of help maintain a steady, calm presence is to remind myself that the crazy, tearfilled emotions that I'm feeling are 'not me' - just my body  wildly fluctuating.  It helped to be able to stand back and just observe instead of getting caught up and lost in it.  It's called 'mindfullness training' in Western medical circles and is derived from Buddhist meditation practices.  They also use it to help people with pain and depression so it could also be useful for the migraines until you get your prescription filled.  Just google it if you want to know more.

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Hmm, interesting, I'll take a look at it.

 

Good news: My thyroid levels came back normal, so no Hypothyroidism for me :)

 

Bad news: This migraine I had for 3 days finally made me break down and go to the hospital last night.


Diagnosed Celiac 04.2012
Gluten-Free 04.2012

 

Diagnosed Pituitary Prolactinoma 12.2012

Low Cortisol/Possible Addison's Disease 02.2013

 

Maybe one day I will feel "normal" again. <3

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Hmm, interesting, I'll take a look at it. Good news: My thyroid levels came back normal, so no Hypothyroidism for me :) Bad news: This migraine I had for 3 days finally made me break down and go to the hospital last night.

Did it help? I feel so bad for you. I wish I lived closer so I could drive you or walk your dog or do your laundry or make you chicken soup.


 

 

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Did it help? I feel so bad for you. I wish I lived closer so I could drive you or walk your dog or do your laundry or make you chicken soup.

 

Yeah, they gave me some percocet along with a cocktail of toradol, compazine and benadryl. Got the pain down to about a 4 or so, and then they gave me a script for Floricet until I can get in with my primary care doc. My jaw has been hurting like hell so I haven't been able to eat much as of the last 5 days. All symptoms point to TMJ and I'm REALLY hoping that is NOT the case. 

 

Aww, you're so very sweet. Thankfully, my mom and step-dad have been great with taking care of me through all of this. 


Diagnosed Celiac 04.2012
Gluten-Free 04.2012

 

Diagnosed Pituitary Prolactinoma 12.2012

Low Cortisol/Possible Addison's Disease 02.2013

 

Maybe one day I will feel "normal" again. <3

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Pain under control now, kristenleoh?  Life is always a lot more tolerable when you don't have a jack hammer in your head. 

 

Fantastic you don't have hypothryroidism.  Cross that one off your list!  :)

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Pain under control now, kristenleoh?  Life is always a lot more tolerable when you don't have a jack hammer in your head. 

 

Fantastic you don't have hypothryroidism.  Cross that one off your list!  :)

 

Yeah, I'm just back to my normal daily pain off and on instead of constant. Close to constant, but not totally, lol. And yeah, it's nice to know there is SOMETHING normal about me, haha. :P


Diagnosed Celiac 04.2012
Gluten-Free 04.2012

 

Diagnosed Pituitary Prolactinoma 12.2012

Low Cortisol/Possible Addison's Disease 02.2013

 

Maybe one day I will feel "normal" again. <3

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So! Just got home from my surgery consult and they are getting me in on Tuesday for the surgery! Holy crap!! Freaking out!!


Diagnosed Celiac 04.2012
Gluten-Free 04.2012

 

Diagnosed Pituitary Prolactinoma 12.2012

Low Cortisol/Possible Addison's Disease 02.2013

 

Maybe one day I will feel "normal" again. <3

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Going through my nose, through my sinus.


Diagnosed Celiac 04.2012
Gluten-Free 04.2012

 

Diagnosed Pituitary Prolactinoma 12.2012

Low Cortisol/Possible Addison's Disease 02.2013

 

Maybe one day I will feel "normal" again. <3

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Praying for your surgeon's hands to bring healing -- and had to post so you could see I finally took a photo of my blue toes!

 

PS...Shelby is sporting a pink ribbon in honor of Kristen along with the green striped (my favorite color) -- but the pink got cropped in the profile pic thingy


-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)

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Praying for your surgeon's hands to bring healing -- and had to post so you could see I finally took a photo of my blue toes!

 

PS...Shelby is sporting a pink ribbon in honor of Kristen along with the green striped (my favorite color) -- but the pink got cropped in the profile pic thingy

 

Aww!! Super cute! I still have my toes blue and will be doing my nails blue on Sunday as well, for extra healing :)


Diagnosed Celiac 04.2012
Gluten-Free 04.2012

 

Diagnosed Pituitary Prolactinoma 12.2012

Low Cortisol/Possible Addison's Disease 02.2013

 

Maybe one day I will feel "normal" again. <3

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Good Luck Kristen!!!

 

Fresh blue fingers and toes here -- plus a cobalt blue sparkly ribbon on both my kitty and dog :)


-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)

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Good Luck Kristen!!!

 

Fresh blue fingers and toes here -- plus a cobalt blue sparkly ribbon on both my kitty and dog :)

 

Aw! Thanks! Check in is at 11:30am tomorrow. Getting ready to say "eff you tumor! you're getting your butt yanked out!!" :P


Diagnosed Celiac 04.2012
Gluten-Free 04.2012

 

Diagnosed Pituitary Prolactinoma 12.2012

Low Cortisol/Possible Addison's Disease 02.2013

 

Maybe one day I will feel "normal" again. <3

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So, I'm back home from the hospital. The surgeon was able to get all of the tumor, despite my unusual amount of blood which made it harder to see. He was able to preserve about 80% of my gland and my prolactin went from a level of 60 (three times the normal) and down to 2! I look pretty beat up right now. Bruises under my eyes and the surgeon got a few chunks of my nose off (which I'm REALLY pissed about and hoping it heals back okay). I'm still heavily medicated as I am having a hard time with the post surgical pain and nausea. Nose keeps bleeding like CRAZY when I bend forward slightly and insanely congested with icky blood clots, but I'm hanging in there. Thank you ALL for all the well wishes and being there for me. It has meant more than you will ever know to me :) 

 

<3


Diagnosed Celiac 04.2012
Gluten-Free 04.2012

 

Diagnosed Pituitary Prolactinoma 12.2012

Low Cortisol/Possible Addison's Disease 02.2013

 

Maybe one day I will feel "normal" again. <3

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Ok...sucky for now, but so thankful to hear your blob is gone! And the numbers are great, right?

Rest up - the racoon look will fade - thanks for the update :)


-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)

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That's fantastic that he was able to preserve 80% of the pituitary.  Seriously, you must be ecstatic about that.  

 

Glad you came out of this relatively okay.  The black eyes will fade and the nose will grow back (somehow that sounds like Pinochio) and you'll move onwards to a more fulfilling life sans the pain and wacked out hormonal stuff.

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Well, looks like I am already having my first complication with the surgery. Was diagnosed with Diabetes Insipidus, so I have to start a new hormone treatment ASAP and keep a VERY close eye on my sodium/electrolyte levels. Awesome.


Diagnosed Celiac 04.2012
Gluten-Free 04.2012

 

Diagnosed Pituitary Prolactinoma 12.2012

Low Cortisol/Possible Addison's Disease 02.2013

 

Maybe one day I will feel "normal" again. <3

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Sorry Girlie--

 

Is this from surgery or your body adjusting to your pituitary getting back to functioning without "Blob"?

 

Hang in there -- you had major - um -- MAJOR surgery on Tuesday -- it will take some time to heal -- rest up!


-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)

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Sorry Girlie--

 

Is this from surgery or your body adjusting to your pituitary getting back to functioning without "Blob"?

 

Hang in there -- you had major - um -- MAJOR surgery on Tuesday -- it will take some time to heal -- rest up!

 

 

It's a complication from the surgery. No idea if it will be temp or perm yet. Starting new meds for it today and having to get my labs done tomorrow, Gotta keep a major close eye on my levels so I don't go into seizures and what not.


Diagnosed Celiac 04.2012
Gluten-Free 04.2012

 

Diagnosed Pituitary Prolactinoma 12.2012

Low Cortisol/Possible Addison's Disease 02.2013

 

Maybe one day I will feel "normal" again. <3

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ya...that convulsing crap is no fun -- careful, easy going....are you still a raccoon today?


-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)

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ya...that convulsing crap is no fun -- careful, easy going....are you still a raccoon today?

 

Not nearly as bad as the other day, thankfully. I just started to meds for the diabetes and I'm responding really well to it thankfully. :)


Diagnosed Celiac 04.2012
Gluten-Free 04.2012

 

Diagnosed Pituitary Prolactinoma 12.2012

Low Cortisol/Possible Addison's Disease 02.2013

 

Maybe one day I will feel "normal" again. <3

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