Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Dh On My Tongue?

LadyAshleyR

By LadyAshleyR
in Dermatitis Herpetiformis

Recommended Posts

LadyAshleyR Newbie
LadyAshleyR
Posted

So I got glutened today.

I had a bag of frozen vegetables in my freezer, and not thinking about it at all, cooked and ate an entire bowl.

Not too long afterward, I felt the bloating hit me, and got a blister on the underside of my tongue!

While I was in the bathroom being sick, I realized I've had the blister on my tongue more than once, and probably in reaction to eating those vegetables and not realizing they had wheat in them.

Is this considered DH?

Anyone else get tongue blisters when glutened?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


declan Newbie
declan
Posted

Yes, one of the worse memories of my childhood was having blisters on my tongue and inside my lower lip. A child cannot explain what it is like to teachers who said that it was eating too many sweets and just a "softy." My parents tried to help, but they were not given any diagnosis so there was little they could do.

declan

Chuck8268 Rookie
Chuck8268
Posted
So I got glutened today.

I had a bag of frozen vegetables in my freezer, and not thinking about it at all, cooked and ate an entire bowl.

Not too long afterward, I felt the bloating hit me, and got a blister on the underside of my tongue!

While I was in the bathroom being sick, I realized I've had the blister on my tongue more than once, and probably in reaction to eating those vegetables and not realizing they had wheat in them.

Is this considered DH?

Anyone else get tongue blisters when glutened?

Yes that is a symptom

LadyAshleyR Newbie
LadyAshleyR
Posted
  • Author

Oh joy.

Hopefully since I quit gluten my symptoms won't progress.

I didn't have bad reactions until shortly after I had my daughter.

Then I started having horrible IBS reactions, and blisters on my fingers, toes, tongue, and scalp, whereas before, i just had a few every once in a while on my fingers, and a few here and there on my face and scalp.

ksymonds84 Enthusiast
ksymonds84
Posted
Oh joy.

Hopefully since I quit gluten my symptoms won't progress.

I didn't have bad reactions until shortly after I had my daughter.

Then I started having horrible IBS reactions, and blisters on my fingers, toes, tongue, and scalp, whereas before, i just had a few every once in a while on my fingers, and a few here and there on my face and scalp.

I just recently discovered that you can get them on the tongue. I've been plagued with geographic tongue since my teen years and my docs have always been clueless why mine hurt and itch (I guess they are only supposed to look like continents on your tongue). I've heard others say that they hurt but now since they came from my recent gluten challenge it does make me wonder....

BooParks Newbie
BooParks
Posted

Biopsy confirmed with DH May of 2000 and yes had many blisters in my mouth along with ulcers on my tongue.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,036
    • Most Online (within 30 mins)
      10,442
    NCGS Celia
    Newest Member
    NCGS Celia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • trents
      Worsening vision 🕵🏽‍♀️

      By trents · Posted

      Vitamin A is important for vision health. But be careful in supplementing it as it can lead to toxicity. Research it and consult with your medical professional. I do not have a definite answer to your original question but I was pursuing the possible cause of nutritional deficiency. But your visual deterioration could be unrelated to your celiac disease so don't rule that out.
    • Name
      Worsening vision 🕵🏽‍♀️

      By Name · Posted

      Currently 19. Doctors think I was 1 year old when celiac started, but I wasn't diagnosed until 18, because they didn't do lab work on minors. I've been on a strict gluten-free diet for 14 months now. For example only certified gluten-free nuts and I've researched best brands a lot. I take B vitamins, vitamin D, vitamin C, Curcumin with black pepper, black sesame and green tea extract, magnesium, iron, and a little selenium and zinc, beef liver capsules. I recently had my vitamin and mineral levels retested and D is the only one I don't have enough of now. I had my eyes tested at 17 and they were good back then.
    • Scott Adams
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By Scott Adams · Posted

      Not everyone with dermatitis herpetiformis needs to avoid iodine. DH is caused by gluten exposure, but iodine can worsen or trigger flares in a subset of people, especially when the rash is active or not yet controlled by a strict gluten-free diet. Some people react to iodized salt, seaweed, shellfish, or iodine supplements, while others tolerate normal dietary iodine without problems. In most cases, iodine restriction is individualized and often temporary, not a lifelong rule for everyone.
    • trents
      Worsening vision 🕵🏽‍♀️

      By trents · Posted

      Questions: How old are you now? How long ago were you diagnosed as having celiac disease? Do you practice a strict gluten-free diet? Are you taking vitamin and mineral supplements to offset the nutrient malabsorption issues typical of celiac disease and if so, can you elaborate on what you are taking?
    • Name
      Worsening vision 🕵🏽‍♀️

      By Name · Posted

      My vision was good as a teen and now has gotten worse in the last year. Could that be caused by my celiac disease?🤓😎🥸👓🕶️
×
×
  • Create New...