Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Ridiculous Weight Gain!

Wolicki

By Wolicki
in Related Issues & Disorders

Recommended Posts

Wolicki Enthusiast
Wolicki
Posted

Hi all. I am wondering if any of you experienced huge weight gains after gluten-free? I was terribly malnourished at dx, so I knew I would gain a lot of weight, but this is ridiculous! I eat aobut 1600 calories per day: no grains (except for rice cakes), starches, legumes and very little dairy. Mostly lean protein, veg and 1 - 2 servings of fruit. I do daily weight training< and 30 minutes of cardio almost every day. I started Levoxyl a month ago because mt TSH was 5.05. I know the dose is too low at 75 mcg, but I dont think that fully explains how I've almost doubled mt weight in 4 months. :(:(:(:o

Anyone know when gains from malnutrtion stop? Thanks so much.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cheddalyn Newbie
cheddalyn
Posted
Hi all. I am wondering if any of you experienced huge weight gains after gluten-free? I was terribly malnourished at dx, so I knew I would gain a lot of weight, but this is ridiculous! I eat aobut 1600 calories per day: no grains (except for rice cakes), starches, legumes and very little dairy. Mostly lean protein, veg and 1 - 2 servings of fruit. I do daily weight training< and 30 minutes of cardio almost every day. I started Levoxyl a month ago because mt TSH was 5.05. I know the dose is too low at 75 mcg, but I dont think that fully explains how I've almost doubled mt weight in 4 months. :(:(:(:o

Anyone know when gains from malnutrtion stop? Thanks so much.

I did gain weight initially after going gluten-free, about 8lbs., but adding strength training an cardio and eating "clean", I have lost weight. Perhaps its your thyroid messing you up.

Roda Rising Star
Roda
Posted
Hi all. I am wondering if any of you experienced huge weight gains after gluten-free? I was terribly malnourished at dx, so I knew I would gain a lot of weight, but this is ridiculous! I eat aobut 1600 calories per day: no grains (except for rice cakes), starches, legumes and very little dairy. Mostly lean protein, veg and 1 - 2 servings of fruit. I do daily weight training< and 30 minutes of cardio almost every day. I started Levoxyl a month ago because mt TSH was 5.05. I know the dose is too low at 75 mcg, but I dont think that fully explains how I've almost doubled mt weight in 4 months. :(:(:(:o

Anyone know when gains from malnutrtion stop? Thanks so much.

If it is your thyroid what thyroid tests did you have done? You should have a TSH, T3, T4, Free T3/T4 (these are more reliable), and thyroid antibody tests. I started feeling the best when my current endocrinologist started supplementing me with cytomel (T3) in addition to my levothyroxine (T4). Any time my meds need adjusted she keeps me on the same dosage of T3 and adjusts the T4. It has worked for me so far. There could be other reasons for the weight gain so I would discuss it with the doctor.

Wolicki Enthusiast
Wolicki
Posted
  • Author

I had by free T3 and T4 and TSH checked. T3 and 4 were in the normal ranges, but I think one of them was low normal. The antibodies were all in the normal range. My endo is horrible. He grudgingly wrote a scrip for Levoxyl 75 mcg, which according to the package insert is an adequate for someone who weighs 75 pounds :angry: He insited there was nothing wrong, even tho my TSH was 5.05. I think he got pissy with me when he originally wrote for Synthroid, and I told him it could not be guranteed gluten-free. Then he said if I stopped eating so much I would stop gaining weight :angry::angry::angry: This was after I told him about my calorie intake (which I track religiously and never exceed 1700 ) and exercise habits.

I need to find a new doctor but I really would rather have someone poke me in the eyes with sharp sticks then to see another doctor who blows me off :(

Roda Rising Star
Roda
Posted
I had by free T3 and T4 and TSH checked. T3 and 4 were in the normal ranges, but I think one of them was low normal. The antibodies were all in the normal range. My endo is horrible. He grudgingly wrote a scrip for Levoxyl 75 mcg, which according to the package insert is an adequate for someone who weighs 75 pounds :angry: He insited there was nothing wrong, even tho my TSH was 5.05. I think he got pissy with me when he originally wrote for Synthroid, and I told him it could not be guranteed gluten-free. Then he said if I stopped eating so much I would stop gaining weight :angry::angry::angry: This was after I told him about my calorie intake (which I track religiously and never exceed 1700 ) and exercise habits.

I need to find a new doctor but I really would rather have someone poke me in the eyes with sharp sticks then to see another doctor who blows me off :(

Please don't take this as gospel, but I do belive that the free T3 and T4 should be in the upper third of the range also TSH upper normal range should be around 3. A good endocrinologist should know that there is a tighter range of "normal" on the TSH. My free T3/T4 stay at the upper end of normal if not slightly above. My endocrinologist is great. My after my first appt. with her a couple of years ago she treated me by symptoms. TSH was only slightly elevated (going by new range), any other dr. would have called it normal, and my T3/T4 were low normal. The cytomel made a big difference with my symptoms, but I was undiagnosed celiac at the time also so I kept having fatigue etc which lead to getting tested for celiac eventually. Based on your labs I do believe you to be hypothyroid. Have you had your labs retested since you started the levoxyl? You should be rechecked in about 6 weeks. Since your body has to convert the T4 to the active T3 it usually takes appx 4-6 weeks to see a response in the TSH.

haleym Contributor
haleym
Posted

Yes... 11lbs in 2 months. I think it was partially because before I learned to bake I was eating a lot of pre-made gluten free foods, like bread and stuff, until I started eating more naturally gluten free (like rice, potatoes, etc). But if your body has not been able to get nutrients... whoa watch out! Now that you are healing your gut, you can now take in all those nutrients. A lot of my weight gain has been muscle- but also Ive got a little more padding as well. Chances are that it is a healthy weight gain though- you work out and eat right, so its all good.

But yes, get the thyroid thing further taken care of, because that can mess up metabolism and stuff.

WW340 Rookie
WW340
Posted

I have definitely gained weight since going gluten free. Moreso the past few months, but I am just now feeling really good and my doctor says it will level off and I may even lose a little once my body has healed.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Wolicki Enthusiast
Wolicki
Posted
  • Author

I am switching doctors because my Endo is a jerk. He wants me to come back in December, but hasn't ordered any more labs, because he doesn't believe my thyroid is an issue. 3 different doctors have said I AM hypo, but want the Endo to treat it, and he thinks I am full of beans. Doctors....grrrrr

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to glucel's topic in Super Sensitive People
      17

      iron digestibility

      @glucel, There's a strong correlation between thiamine deficiency, hypoxia, and insomnia. Thiamine is needed to help red blood cells carry oxygen. In thiamine deficiency, hypoxia (lack of oxygen in tissues) occurs, and this can result in insomnia. Hypoxia causes systemic inflammation, increases inflammatory markers, and is associated with cardiovascular...
    2. Aretaeus Cappadocia
      - Aretaeus Cappadocia commented on Scott Adams's article in Latest Research
      3

      New Research Reveals How Antibody Genes May Shape the Immune Response in Celiac Disease

      Thanks. Not a big thing, particularly because most likely it is "true" but not yet demonstrated.
    3. glucel
      - glucel replied to glucel's topic in Super Sensitive People
      17

      iron digestibility

      Thanks to everybody for your help. I reread the dr's notes from the biopsy procedure and it seems I had worse than atrofied villi. It was termed flattened mucosa. So while iron ferratin levels are normal my bet is, as kitty alluded to, iron not getting into cells. I have dr appointment next mo but don't hold out a lot of hope, There is strong correlation...
    4. Scott Adams
      - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New Research Reveals How Antibody Genes May Shape the Immune Response in Celiac Disease

      Thanks for the thoughtful comment. You are right that the study’s main conclusion was cautious: the researchers found that inherited antibody-gene variants significantly shape the naïve B-cell receptor repertoire, including usage of some gene segments involved in celiac-related antibody responses, but they did not find strong evidence that polymorphisms in...
    5. knitty kitty
      - knitty kitty replied to Bogger's topic in Related Issues & Disorders
      6

      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

      I have osteoporosis and have crushed three vertebrae. I supplement with Lysine, Tryptophan, threonine, calcium, Boron, Vitamins D, A, and K, and the B vitamins (folate, B12, and Thiamine B1 especially for bone health). I tried Fosomax, but it tore up my insides. I prefer the supplements. I feel better and my bones feel stronger. References...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,003
    • Most Online (within 30 mins)
      10,442
    michelinagiggles
    Newest Member
    michelinagiggles
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      iron digestibility

      By knitty kitty · Posted

      @glucel,  There's a strong correlation between thiamine deficiency, hypoxia, and insomnia.  Thiamine is needed to help red blood cells carry oxygen.  In thiamine deficiency, hypoxia (lack of oxygen in tissues) occurs, and this can result in insomnia. Hypoxia causes systemic inflammation, increases inflammatory markers, and is associated with cardiovascular events.  Curiously, thiamine deficiency is correlated with excessive daytime sleepiness and oversleeping.   I found a combination of Tryptophan, Pyridoxine B 6, magnesium, and L-theanine works very well for inducing sleep.  Sometimes, I add Passion Flower Extract and/or Sweet Melissa.  There's no side effects the next morning with Passion Flower, it just induces sleepiness.  Sweet Melissa is groovy, and has anti-inflammatory effects on the digestive system.   I prefer to take 250 mg Benfotiamine and 100 mg Thiamine TTFD in the mornings and another dose of Benfotiamine at lunch.  I try not to take any thiamine after four p.m. because it keeps my brain so energized and wanting to think... Oh, I do take a combination of another form of thiamine (sulbutiamine), Pyridoxine and Cobalamine for a pain reliever sometimes, but I can sleep after taking that.  But thiamine does help regulate circadian rhythm.   Make sure you're getting Omega Three fats! They'll help you satisfy that late night carb craving with fewer carbs.  Flaxseed oil, olive oil, sunflower seed oil.  Nuts and nut butters, like walnuts and cashews, are good, too, if you can tolerate them.    Try taking the 100mg thiamine HCl before your aerobics and see if there's a difference.  Sweet dreams! References: Network Pharmacology Analysis of the Potential Pharmacological Mechanism of a Sleep Cocktail. ......(Skip to Section Four) https://pmc.ncbi.nlm.nih.gov/articles/PMC11201840/ Effects of Melissa officinalis Phytosome on Sleep Quality: Results of a Prospective, Double-Blind, Placebo-Controlled, and Cross-Over Study https://pubmed.ncbi.nlm.nih.gov/39683592/
    • glucel
      iron digestibility

      By glucel · Posted

      Thanks to everybody for your help. I reread the dr's notes from the biopsy procedure and it seems I had worse than atrofied villi. It was termed flattened mucosa. So while iron ferratin levels are normal my bet is, as kitty alluded to, iron not getting into cells. I have dr appointment next mo but don't hold out a lot of hope, There is strong correlation of low red blood cells and insomnia so at least I finally solved that one after few yrs of being mislead. I intend to take stop taking 100 mg b1 at noon time and start 150 mg benfotiamin. I may or may not add the the 100 mg b1evening meal. BTW, last night had 1/3 lb beef. potato then 2 bowls cereal and an apple later in the eve. I generally do my areobics before supper so maybe that contributes to the hunger.  
    • knitty kitty
      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

      By knitty kitty · Posted

      I have osteoporosis and have crushed three vertebrae.  I supplement with Lysine, Tryptophan, threonine, calcium, Boron, Vitamins D, A, and K, and the B vitamins (folate, B12, and Thiamine B1 especially for bone health).   I tried Fosomax, but it tore up my insides.  I prefer the supplements.  I feel better and my bones feel stronger.   References: A composite protein enriched with threonine, lysine, and tryptophan improves osteoporosis by modulating the composition and metabolism of the gut microbiota https://pubmed.ncbi.nlm.nih.gov/41915427/
    • knitty kitty
      Coeliac And Cardio Vascular Disease

      By knitty kitty · Posted

      @Aileen Cregan, I was put on high blood pressure medication, too. But I was able to correct my high blood pressure by supplementing with Thiamine Vitamin B 1.  I am no longer on high blood pressure medication.  I feel much better without the medication. I continue to supplement Thiamine in the form Benfotiamine.   The particular high blood pressure medication I took was Norvasc (amlodipine), which causes thiamine deficiency by blocking thiamine transporters so that thiamine cannot enter cells.  Benfotiamine can get into cells by merging with the cell membrane, thus bypassing nonfunctional thiamine transporters.   Indapamide also blocks thiamine transporters! The use of this type of medications that block thiamine precipitated Wernickes Encephalopathy.  My doctors did not recognize the connection to Thiamine deficiency.  I nearly died.   Talk to your doctor and dietician about supplementing with Benfotiamine, a fat soluble form of thiamine that bypasses thiamine transporters.  Ask for an Erythrocyte Transketolace Activity Assay to check your thiamine levels asap.  Routine blood tests for thiamine are not an accurate measure of  thiamine in the body.   Absorption of essential vitamins like Thiamine is altered in Celiac Disease due to damaged villi, inflammation and dysbiosis.  The Gluten Free diet can be lacking in vitamins and minerals.  Discuss supplementing with all the eight B vitamins,  the four fat soluble vitamins and necessary minerals. Please keep us posted on your progress! References: Drug-nutrient interactions: discovering prescription drug inhibitors of the thiamine transporter ThTR-2 (SLC19A3) https://pubmed.ncbi.nlm.nih.gov/31764942/ The Pivotal Role of Thiamine Supplementation in Counteracting Cardiometabolic Dysfunctions Associated with Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC11988323/
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      Hi, @Sue7171, I thought you might be interested in this article about Lyme disease and the discussion after the article.   I found this article enlightening.  The finding that not only can alpha gal be problematic, but advantageous infection with Staph aureus can be problematic.   The Acari Hypothesis, VII: accounting for the comorbidity of allergy with other contemporary medical conditions, especially metabolic syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC11983536/  
×
×
  • Create New...