Recently Diagnosed Where Do I Start

[teresasupermom]

I just received the call today from the pediatrician that my daughter tested positive for celiac disease. I have two children already with type 1 diabetes so I always worried about them getting celiac, but it hadn't occurred to me that my other kids were at higher risk for it. My daughter is six and is taking it well, but I am trying to figure out where to start. I have a referral to a GI specialist, but her pediatrician wanted me to start her on gluten free right away. She's been having chronic stomach pain for months now and diarrhea off and on as well as she just stopped growing. She hasn't moved up a size in clothes in a year and she dropped 10% on the growth chart.

I am mostly frustrated with trying to sort out food labels for this. Since she goes to a small Catholic school I am going to have to send packed lunches I think quite a bit and I don't know what to send her. All the stuff I usually send for quick and easy lunches is sandwiches and stuff. That and nonperishable snacks are throwing me off. She's kind of a picky eater so that's not helping anything.

Is there any searchable database for telling whether a food has gluten in it or not. I am used to reading labels, but with labels having so many ingredients I feel like I could sit at the grocery store all day reading all the ingredients trying to make sure I'm not missing anything. I'd like to get myself a cheat sheet together. I am finding she is doing better with the stuff that is naturally gluten free verses trying to substitute wheat products with other non gluten products. Can anyone point in the direction of a searchable database or does anyone have a list?

Things like Rice Krispy Treats prepackaged? Are those okay? Potato chips? How do you know which ones are okay? French fries (from the grocery store) are those okay? I am just so lost and honestly really frustrated. I'm feeling like I have the worst genetics ever to have 2 kids with type 1 diabetes and 1 with celiac. Oh, also I know that type 1 diabetes has a high percentage of people with celiac, but I'm wondering if celiac has a high cross over of people getting type 1 diabetes as well. Sorry I'm getting ahead of myself. And finally would you get your other children tested for celiac? My 2 with type 1 get tested for celiac annually, but haven't had my other kids checked for celiac. Anyone that takes the time to answer any of these questions I will greatly appreciate it

[Wenmin]

This is the list I used when first diagnosed. It was dated but was a great help for a newly "diagnosed" celiac.

A list of mainstream products that can be found at almost any grocery store...this is the website: (just copy and paste in address box)

homepage.mac.com/sholland/celiac/GFfoodlist.pdf

some of my favorites include the following:

Rice Chex cereal, Corn chex cereal, and cinnamon rice chex, chocolate rice chex

Quaker Instant and Quick Grits (add a slice of velveeta cheese for cheese grits)

Ortega Yellow corn taco shells

Van's Waffles

Carnation hot chocolate mixes

Sunny Delight

Envirokidz Amazon Frosted Flakes and Cereal Bars

Golden Flake Snack Foods: all potato chips, corn chips, tortilla chips, cheese puffs, cheese curls

Amy's Kitchen Organic Salsa

Midel Chocolate chip cookies

Glutino Cheese Crackers

Eagle Brand condensed milk

Cool Whip

Breakstones cottage cheese

Yoplait Yogurt - All except crunchies ( like granola, graham crackers, etc)

Jello Brand Jello snacks

Hunt's Snack Pack Pudding - all except crunchies

Soy Dream (Ice Cream)

Ben & Jerry's (All flavors not listing gluten ingredients)

All canned or frozen fruit not containing gluten ingredients (Delmonte)

All canned or frozen vegetables not containing gluten ingredients (Delmonte)

Oscar Mayer All Beef Hot dogs

Bryan All Beef Smoked Sausage

Sara Lee Cooked Ham

Kinnikinnick Bread (frozen food section)

Mustard, Mayonaise, Ketchup not containing gluten ingredients

Reese's Peanut Butter

Aunt Jemima Syrup

Contadina Pizza Squeeze

Hormel Pepperoni

Bush's Baked Beans

Ore Ida Hash Browns and French Fries

Go check this site out it is very helpful!

This is another list I have. Sorry, but I don't even know the source that it came from.

Gluten-Free Candy

** It is always a good idea to check labels before giving anything to your child

After-Eight Dinner Mints

Allan Candy Canes

Almond Bark Candy (light and dark chocolate)

Almond Clusters Candy Bars

Astro Pops

Balance Bars (supplement bars)

Beechnut Gum; cinnamon 5-stick, peppermint, spearmint

Big League Chew Gum; original, grape, strawberry

Breath Saver Mints: sugar free: iced mint, mint cinnamon, peppermint, spearmint, vanilla mint, wintergreen

Bubble Yum Gum

Cadbury Candy Bars:

Fundraising Bar,Bunnies, Caramilk, Caramilk Roll, Crunchie, Dairy Milk, Easter Cream Eggs, Easter Parade, Fruit &

Nut, Golden Caramel, Hazelnut, Mini Eggs, Roast Almond, Rum & Butter

Cambridge Candies:

Charleston Chews, Junior Mints, Pom-Poms, Sugar Babies, Sugar Daddy & Sugar Daddy Nuggets

Care Free Gum: sugarless only: bubble gum, cinnamon, peppermint, spearmint

Cella`s Chocolate Covered cherries, milk and dark chocolate

Certs Mints

Charm`s Hard Candies:

Blow Pops, Blow Pop Bytes, Charms Squares, Extreme Encounter Pops, Flat Pops, Sour Balls, Zip a Dee Doo Da

Pops

Clorets Gum

Clorets Mints

Crows Licorice Flavored Gumdrops (made by Tootsie)

Dentyne Gum

Dum Dums

Eatmore:

Glosette Peanuts

Glosette Raisins

Hershey Favorites (w/Chocolate Covered Almonds)

Oh Henry

Reeses Miniatures Peanut Butter Cups

Farley Candies:

Fruit Flavored jells & juju & bears, Giant Jellies, Gummy Bears, Jelly Bird Eggs, Jelly Rings, JuJu Coins, Jumbo Jelly

Beans, Orange & Lemon Slices, Speckled Bird Eggs, Tiny Jelly Eggs

Freedent Gum (peppermint, winter fresh, spearmint)

Fruit Stripe Gum: Bubble Gum Only

Heide: all products made gluten-free in gluten-free plant

Hershey:

Almond Bar, Almond Joy, Almonds & Toffee, Almondillos, Cherry Blossom, Dark Chocolate w/Almonds (in the small

bite-size pieces) 800-468-1714

Giant Kiss, Glossette Almonds, Glossette Peanuts, Glossette Raisins, Golden Almond, Hershey-ets, Kisses (&

w/Almonds), Jenny Lind, Lowney Caravan, Lowney Golden Caramel, Lowney Maraschino Cherries, Lowney Nut Milk,

Lowney Rosettes, Milk Chocolate (& w/Almonds), Mounds Oh Henry Bar, Oh Henry Peanut Butter

Ovation Sticks: Coffee, Irish Cream, Mint & Orange

Petit Oh Henry

Pot of Gold:

Almond Joy, Assorted Mints, Caramello, Cherries, Chocolate Covered Almonds, Classic Caramels (plain & chocolate

filled), Excellence, 5th Avenue, Hugs, Kisses, Milk Chocolate, Milk Chocolate w/Almonds, Mounds, Mr. GoodBar,

Signature Pieces, Solitaires, Special Dark, Skor Toffee, Symphony, Symphony w/Almonds, Toff Chips, Tastations

(EXCEPT Butterscotch)

Hershey Seasonal:

Advent Calendar, Caramel Egg, Caramel Eggies, Cream Eggs, Dinosaur Coin Bank, Easter Craft Eggies, Easter

Eggs, Elf House, Kisses, Kisses Cane, Oh Henry, Pastel Kisses, Pot of Gold Truffle, Reese`s Candy Cane, Reese`s

Pastel Minis Hershey Seasonal continued:

Reese`s Minis, Reese`s Pastel Minis Reese`s Minis, Reese`s Peanut Butter Eggs, Reese`s Peanut Butter Trees

Reese`s Pieces, Solid Milk Chocolate Eggs

Jelly Belly Jelly Beans (all) HOWEVER not made on dedicated equipment

Jolly Ranchers

Junior Mints

Just Born Jelly Beans: (Assorted Fruits, Berry, Spice & Licorice) 800-445-5787

Life Savers With Hole:

Five Flavor, Island Fruits, Sour & Sweet, Variety 5-pack, Wild Fruits

Life Savers:

Butter Rum, Five Flavor, Island Fruits, Mixed Berry, Sour & Sweet, Sunshine Fruits, Tangy Fruit Variety Bag, Wacky

Frootz, Wild Fruits

M&M`s; all EXCEPT Crispy

Mars Bars

Mike & Ike Candies, all

Milky Way-Dark, Lite & Easter Eggs only (regular Milky Way not okay)

Mr. Goodbar

Necco Brand Candies:

Canada Mints (all flavors), Candy Button Strips, Chocolate Wafers, Conversation Hearts, Mary Jane Taffy, Salt Water

Taffy, Tart Wafers Wafers

Nestle:

Baby Ruth, Bit-O-Honey, Butterfinger & Butterfinger BB`s, Chunky Bar, Goobers, Milk Chocolate (all items), Milk

Chocolate w/Butterfinger (nesteggs/jingles), Magic Milk Chocolate, Oh Henry!, Pearson Nips, Raisinets, Sno Caps,

Spree, Sweetarts, Treasures (**EXCEPT Crunch), Turtles, PayDay

Pearson Candies:

Butter Rum Nips, Caramel Nips, Chocolate Parfait Nips, Chocolate Mint Nips, Coffee Nips, Peanut Butter Parfait Nips

Peeps Jelly Beans: (Marshmallow & Fruit Flavored Jelly Beans

Planters Original Peanut Bar

Reese`s Peanut Butter Cups

Rolo Caramels in Milk Chocolate

Saf-T-Pops

Skittles

Smarties

Snickers & Snickers Munch & Ice Cream Bar

Spangler Candy Company:

Astro Pops, Candy Canes (all varieties), Dum Dums, Marshmallow Peanuts, Oversized Pops, Save-A-Sucker, Save

An Egg, Suck An Egg, Starbursts, Starburst Jelly Beans, Starburst Hard Candies, Strand Stick Free Gum: sugarless

peppermint & sugarless spearmint, Sunkist Fruit Rolls, 3 Musketeers Candy Bar

Tootsie Products:

Tootsie Flavor Roll Twisties, Frooties, Piquitos, Tootsie Pops, Chili-letas Pops, Dots, Crows, Tropical Dots, Caramel

Apple Pops, Mutant Fruitant Pops, Child`s Play Assortment

Trident gum (all)

Wrigleys Gum:

Big Red, Cinnamon, Classic Bubble Gum, Doublemint, Juicy Fruit, Original Bubble Gum, Spearmint Peppermint,

Spearmint Winterfresh, Winterfresh

York Peppermint Patties

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Snack Ideas for your Child

If your child has Celiac Disease, he/she cannot have any wheat, rye, barley (malt) or oats, as well as any of their

by-products. Your child should not lick stamps, envelopes or stickers. If he/she plays with Play-Doh, he/she must

wash his/her hands (fingernails) very well. Also, watch for contamination issues, i.e. handling of food.

Fresh fruits & vegetables

Del Monte & Dole fruit cups

Mott`s applesauce - regular & cinnamon

Sun Maid raisins

Nabisco, Betty Crocker, Grist Mill and Sunkist brand fruit snacks and fruit rolls

Del Monte, Hunts, Swiss Miss & Jello-O brand jello cups (gelatin)

Del Monte, Hunts, Swiss Miss, Jello-O brand and Handi-Snacks pudding cups

Yogurt - Dannon, Kemps, Land O`Lakes & Yoplait (all flavors are safe except those with things such as granola,

cookie topping, etc.)

Quaker Brand Rice Cakes - lightly salted rice cakes, caramel apple corn cakes, apple cinnamon cakes and butter

popped corn cakes

Orville Redenbacher Rice Cakes - caramel, butter, apple cinnamon and honey nut (regular and mini-size)

Barrel O`Fun corn pops

Cheetos brand cheese flavored snacks (all varieties)

Ruffles & Lays brand potato chips (original flavor)

Tostitos brand 100% white corn chips - bite size, crispy rounds and restaurant style

Some Popsicles

Mr. Freeze, Fla-Vor-Ice and Kool-Aid brand freezer bars

Snickers ice cream bars (regular and snack size)

Kemps & Land O`Lakes vanilla, strawberry and chocolate ice cream

Dairy Queen chocolate and vanilla soft serve, Sunkist bars and Mr. Misty`s

Malt-O-Meal Corn Burst, Fruity Dino-Bites and Cocoa Dino-Bites cereals

Post Fruity & Cocoa Pebbles

Jiff & Skippy peanut butter (regular and chunky)

Smuckers jellies & jams

Gedney pickles

Heinz ketchup

Jett Puffed Marshmallows (all varieties)

Kraft Cool Whip (all varieties)

Wish Bone Ranch salad dressing

Western Dressing

Hellman`s mayonnaise (all varieties)

Miracle Whip (regular only)

Reese`s Pieces

Reese`s Peanut Butter Cups (regular and bite size)

Butterfingers and Butterfingers BB`s

Raisinettes & Goobers

M&M`s (plain, peanut, almond and peanut butter are safe. Crispy are NOT safe!)

Hershey`s plain and almond candy bars

Jolly Rancher hard candies and suckers

Spree, Skittles, Starburst, Snickers and 3 Muskateers

Dum Dum suckers

Tootsie Rolls (all flavors) and Tootsie Roll suckers

Hershey Kisses & Hugs (with or without almonds are safe)

Gummi Savers

Hillshire Farm Deli Select cold cuts (all flavors except roast beef)

Oscar Mayer Beef bologna, chicken and pork bologna, baked/cooked ham cold cuts, beef franks

Land O`Lakes and Crystal Farms chunk and shredded cheese (string, cheddar, colby, mozzarella) Kraft Singles

(regular)

Velveeta Cheese regular loaf

[teresasupermom]

Wenmin, that was incredibly helpful! Thank you so much for your reply.

[Rissmeek]

I bought the clan Thomas for my computer and for my smart phone. The computer version let me look up not only brands, types, but all ingredients which let me rule out what I already had and become familiar with good things and bad things. Now I have a set list of brands for the things I buy all the time.

[Wolicki]

HI and welcome to the forum. My son and I are Celiac. He was 9 at diagnosis. Here are some tips:

Since she has stomach issues, she needs time to heal. It's best not to introduce gluten free replacement foods for a few months, and she will probably heal faster off dairy.

Dairy replacements: coconut milk, almond milk. Add some chocolate syrup to it to help her get accustomed to the taste.

Stick with whole fresh foods as much as possible. Fruits, veg, protein.

Have her pack the Halloween candy list in her backpack, or keep in her desk, so when everyone gets candy treats, she knows which ones are safe. My Joey was dxed right before Halloween and the list saved him!

For lunch, get a good lunchbox, with reusable ice packs and a thermos. These are my son's favorites:

apples, bananas, celery with peanut butter, baby carrots, rice cakes with peanut butter, applesauce, kiwi, yogurt, corn tortillas with lunch meat rolled up, soup, glutino crackers, tortilla chips, Lays Staxx, homemade granola bars, gluten-free muffins, PB&J on Udi's bread, fruit roll ups,raisins.

He never complains about his lunch,and he is fairly picky. Be sure to tell her not to play with play dough, and wash, wash, wash her hands!

You'll be just fine

Janie

[mommida]

The pre-packeaged rice krispy treats are not gluten free.

Please use the gluten free lists as a guideline. Go for these items and always READ THE LABEL. Products change the formulations with out warning. Holidays are challenges. Special holiday shaped candy that is normally gluten free can have gluten added for special molds or to retain the shape of the product.

Clean the kitchen! You must control the cross contamination of the food. You may have to get rid of a cast iron skillet or other cooking utensils. Jars of peanut butter, jam, buter, and other spreadable gluten free foods are most likely cross contaminated from spreading on bread and dipping back for more.

There is the "gob drop" method of dipping a spoon into the stuff and shaking the gob of whatever onto the food surface. If you aren't used to spreading with a spoon this can be enough of a change to break the knife dipping/spread habit.

But, you will be safer keeping gluten free items just for the gluten free. (If you are going to have a split household.)