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Dealing With Rude Family Members


ReneeBTX

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minniejack Contributor

I just saw my old post and comments. It's kind of funny in the past two weeks--this is August now--six months after my sister telling my DD that she didn't have problems--my dear sister has called me 2x. the first to tell me about the gluten free bisquick at Kroger and that they had King Arthur gluten free flour, too. And 2 days ago, to tell me that Sam's club has this gluten free chip called Rissotto that was good.

What's gotten into her? :P


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ravenwoodglass Mentor

I just saw my old post and comments. It's kind of funny in the past two weeks--this is August now--six months after my sister telling my DD that she didn't have problems--my dear sister has called me 2x. the first to tell me about the gluten free bisquick at Kroger and that they had King Arthur gluten free flour, too. And 2 days ago, to tell me that Sam's club has this gluten free chip called Rissotto that was good.

What's gotten into her? :P

Maybe some learning and compassion? Whatever it was it was good. Glad she is coming around. :)

  • 1 month later...
glutenfreemamax2 Enthusiast

I just wanted to chime in here. I've just been diagnosed, and I'm going to have the lab work done in 10 minutes. Testing my 3 year old also due to symptoms.

I went to my inlaws last weekend. They told me it was all in my head. The told me that I "Over medicate" my son. He has asthma, and reflux. I had given him a breathing treatment sice he was up ALL night, and his belly hurts (as he tells me every day) But they think that he's doing it for attention. When my kids say they are full, they still make them clean their plates.

Ok, getting to P.O. ed about it. I totally understand!

eKatherine Apprentice

But they think that he's doing it for attention.

There is a significant part of the population that thinks that celiac/gluten intolerance do not exist, and we're only doing it to make us feel "special". Therefore they feel morally obligated to trick us into eating stuff we falsely (so they think) claim we cannot, to prove we are wrong.

This is why I don't feel safe eating in restaurants. Any one worker in even the most enlightened restaurant could still sabotage you. Asking questions in a place where the management feels this way could make the experience much worse.

Even my sister the anesthesiologist thinks it's all in my head.

Emilushka Contributor

Even my sister the anesthesiologist thinks it's all in my head.

No disrespect meant to your sister, but the Celiac research and medical knowledge is new stuff. I'd bet money she has no idea what she's talking about when it comes to GI stuff and any recent developments, so in terms of Celiac Disease knowledge, she's no better than a dude walking down the street. Docs don't keep up with areas of medicine that aren't their specialty and it's hard to get farther from anesthesiology than poop and guts.

glutenfreemamax2 Enthusiast

My husband even thinks that my 3 year old's never sleeping is "habbit". He insists on sleeping in my bed. He plays with my hair ALL night. Yes it gets old. But when I lay with him at night, no matter what bed he is in(he can start in his bed, but he never lasts) he always tells me his belly hurts. He points to his belly and his throat. Once or twice, ok. EVERY SINGE NIGHT....there is something going on. I don't think it's for attention. My motherly instinct tells me that there is something else going on. That's why we had the blood work done this morning for him AND me. I have been gluten free for 1 week, and I can't tell you how much better I feel. My husband sees a difference in me. We agreed that if the baby's (yes, he's 3, but he's my baby), the WHOLE house is going gluten free, not just me. My 5 year old, who shows NO symptoms, said this morning at the lab "Mommy! I ate your gluten free cereal this morning. It was soo yummy! Can I eat gluten free too?" It was so cute. I wish my inlaws could have heard that.

My MIL has chrons. She said she has functioned with a hemoglobin under 7. She said that the symptoms are all in your head, and you can make yourself sick or not. I disagree. Yes, it could be in my head. The first week i thought that. I glutened myself, and was sick for days. I am a firm believer that its not in my head!

I took cows milk otu of my 3 year old's diet, and he seems to be getting better with this never ending cold. Ihave not needed the nebulizer.

Ok, sorry to be long winded. I am finally talking to people who understand, and it feels GREAT!

  • 1 month later...
RESO Apprentice

My cousin just glutened me 3 days ago to prove that my doctor was wrong. I don't know how I'll trust her again- never, ever with food- but even generally. My lower half is broken out in dh now and I wish I could "share" it with her!

The rest of my family and in-laws have been very good about it, though.

Go over to her place, lie on her couch, and tell her you're going to roll around on it in your undies so she'll get your rash, then do it(of course we all know it isn't contagious, but she probably doesn't lol)


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  • 1 month later...
Brookesmom Newbie

If your relatives admit that you have celiac. They have to consider that they may also have it. If you're wrong then they are safe and can keep eating junk.

yes, yes, yes! They feel threatened. Their problem, not yours... :)

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    • trents
      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
    • Mynx
      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
    • trents
      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those two sentences seem to contradict one another.
    • Mynx
      It isn't a conjecture. I have gotten glitened from having some distilled white vinegar as a test. When I talked to some of my scientists friends, they confirmed that for a mall percentage of people, distilled white vinegar is a problem. The cross contamination isn't from wheat glue in a cask. While yhe gluten protein is too large to pass through the distillation process, after the distillation process, the vinegar is still cross contaminated. Please don't dismiss or disregard the small group of people who are 100^ gluten intolerant by saying things are conjecture. Just because you haven't done thr research or aren't as sensitive to gluten doesn't mean that everyone is like you. 
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