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Brutus

What Are My Other Options?

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I'm looking for a little advice. Celiac Disease is on both sides of my family. I have eczema, bloatedness, fatigue, anxiety disorder and depression (on antidepressants), notable foul smelling gas and stools, and am IgA deficient (along with other symptoms). I was blood tested for celiac and it came back negative. I went on a gluten-free diet and most symptoms went away, and I felt much more energized, though could this be a placebo effect?

I don't want to go through with the endoscopy, mainly for financial reasons. Are there other reliable tests besides the blood test? I know my IgA deficiency can throw off the results. Could this be something else besides celiac? I was thinking about Enterolab but have heard mixed reviews, and plus, I'm not sure if my IgA deficiency will throw that test off as well.

Thanks for the help. I'm just a bit frustrated.

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I'm looking for a little advice. Celiac Disease is on both sides of my family. I have eczema, bloatedness, fatigue, anxiety disorder and depression (on antidepressants), notable foul smelling gas and stools, and am IgA deficient (along with other symptoms). I was blood tested for celiac and it came back negative. I went on a gluten-free diet and most symptoms went away, and I felt much more energized, though could this be a placebo effect?

I don't want to go through with the endoscopy, mainly for financial reasons. Are there other reliable tests besides the blood test? I know my IgA deficiency can throw off the results. Could this be something else besides celiac? I was thinking about Enterolab but have heard mixed reviews, and plus, I'm not sure if my IgA deficiency will throw that test off as well.

Thanks for the help. I'm just a bit frustrated.

Many consider a positive dietary response to be a valid test. Why not just do the diet, strictly? Do you need a doctor to verify before you can stick to the diet?


Gluten free is not so bad! If you are new, hang it there, it gets easier!

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If the diet works for you, Brutus, I would think it is highly unlikely that your symptoms would have any other cause. Of course, if your symptoms continue unabated you should explore further testing. Keep in mind that recovery from gluten has its ups and downs, so do not be discouraged if you have have some small temporary recurrences of symptoms along the way, or variations in bowel habits. These are quite normal in gluten recovery.


Neroli

"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973

Lactose free 1990

(Mis)diagnosed IBS, fibromyalgia '80's and '90's

Diagnosed psoriatic arthritis 2004

Self-diagnosed gluten intolerant, gluten-free Nov. 2007

Soy free March 2008

Nightshade free Feb 2009

Citric acid free June 2009

Potato starch free July 2009

(Totally) corn free Nov. 2009

Legume free March 2010

Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

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Thanks for the responses! I guess I would prefer a dx to make it "official." Also, my family believes that it is all in my head. I guess it is more for them than for me.

I would do a biopsy but financially it is not possible at the moment. I'm intending to go gluten free, and I know that throws off biopsy results -- so I guess that means the biopsy is out.

The only reason I speculated about Enterolab is because you can be gluten free and still do the testing. Plus, compared to the cost of a biopsy, it is relatively cheap. I'm just a bit skeptical about its reliability.

If anyone knows a good doctor in the DC Metro area that is knowledgeable about Celiac Disease, please let me know.

Thanks for the input!

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Your family believes it is all in your head, yet you have Celiac on both sides of your family? That seems odd and not very understanding!

I was "diagnosed" by an allergy doctor, went gluten free for 7 months before my biopsy, so of course it came back negative, so the positive dietary response had to be enough. I do react badly with bits of gluten, so I just assume I am Celiac for sure. Sometimes I doubt it though, it's tough. But I would say if the diet makes you feel better then DO IT!

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Thanks for the responses! I guess I would prefer a dx to make it "official." Also, my family believes that it is all in my head. I guess it is more for them than for me.

I would do a biopsy but financially it is not possible at the moment. I'm intending to go gluten free, and I know that throws off biopsy results -- so I guess that means the biopsy is out.

The only reason I speculated about Enterolab is because you can be gluten free and still do the testing. Plus, compared to the cost of a biopsy, it is relatively cheap. I'm just a bit skeptical about its reliability.

If anyone knows a good doctor in the DC Metro area that is knowledgeable about Celiac Disease, please let me know.

Thanks for the input!

http://www.celiaccenter.org/


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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