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polarbearscooby

At Summer Camp And Just Need To Vent

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So I'm at Summer Bible camp with my little sister right? (She has medical needs and needs a family member with her to take care of them) And I had to pack my own food. I'm ok with that. I don't wanna eat anything cooked in a kitchen full of wheat by teens. But I hate that I have to take away my sisters time playing to rush back to my room (Not staying in the dorms) and cook some food and wolf it down (burning my tongue in the process) and hurry back to the lessons/games/w.e with everyone else.

I hate this.

I hate being gluten-free in the moment....

That is all

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I am glad you vented before you exploded - and I really hope it made you feel a bit better. Your sister is so blessed to have you there to take care of her and protect her. Don't let your sacrifices steal your joy! What you are doing there is so awesome, but you should slow down and take care of yourself too. You'll both be better off!


I am self-diagnosed - tired of going to the doctor's offices for them to tell me that they don't know what's wrong with me. I have been told the bowel problems are IBS for over 15 years - "Eat more fiber" is their only suggestion. June 2009, decided on my own to eat grain free and focus my diet on mainly whole foods.

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I am glad you vented before you exploded - and I really hope it made you feel a bit better. Your sister is so blessed to have you there to take care of her and protect her. Don't let your sacrifices steal your joy! What you are doing there is so awesome, but you should slow down and take care of yourself too. You'll both be better off!

Thanks :) I really did just need to vent before I exploded... It sucks that she's not getting the 'dorm experience' but at least she's here. Right now I'm gonna rush and eat lunch....

AHHH

Yeah, this diet can be a big pain in the a$$. I hope your sis is having fun. Try to have some fun, too.

Yes, yes it can. But CC and the questions are the worse

I think some of the adults are starting to think I have an eating disorder because they never see me eat.

Thank God this only goes till Wed.

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Yes, yes it can. But CC and the questions are the worse

I think some of the adults are starting to think I have an eating disorder because they never see me eat.

Thank God this only goes till Wed.

It is great that you are there for your little sister. I know it is difficult for you but the fact that your are taking her needs before your own says a great deal about your character. You are to be commended, give yourself a pat on the back.

As to the questions, yea they are likely a bit annoying but if you answer them simply, "I have celiac and can't risk being sick while I am here" and people ask more detailed questions it may be because they suspect they may have it or a family member or friend does. You don't need to give them a course in 'Celiac 101' just give them the name of this website and tell them they can come here for more info because right now you want and need to be with your sister.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Well I am SHOCKED! There are over a 100 kids at this camp, and a girl in MY family group has CELIAC! I knew there was a reason I was supposed to be here THIS week, and I've been praying over it, I guess this was it...She's going through a really tough transition period and needs a friend who understands. Praise God. She's kinda feeling left out with everyone around her eating wheat so I think I'll talk to the Dean about letting her eat lunch with me or something...I've been just eating on the run, but I'm willing to sit at the table in the foyer and eat with her....

As for my little sister, she's doing great, things are a little awkward for her but she gets why I have to eat different food (for the most part anyway) so that's good. She's worn out tho, (and I am too)

Ravenwoodglass: Thanks :) I don't mind the questions so much as the "eating disorder" look....where people try to get you to eat foods and don't believe you are eating.

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Well I am SHOCKED! There are over a 100 kids at this camp, and a girl in MY family group has CELIAC! I knew there was a reason I was supposed to be here THIS week, and I've been praying over it, I guess this was it...She's going through a really tough transition period and needs a friend who understands. Praise God. She's kinda feeling left out with everyone around her eating wheat so I think I'll talk to the Dean about letting her eat lunch with me or something...I've been just eating on the run, but I'm willing to sit at the table in the foyer and eat with her....

As for my little sister, she's doing great, things are a little awkward for her but she gets why I have to eat different food (for the most part anyway) so that's good. She's worn out tho, (and I am too)

Ravenwoodglass: Thanks :) I don't mind the questions so much as the "eating disorder" look....where people try to get you to eat foods and don't believe you are eating.

I am so glad you are there for this other little girl. You will surely be a big help for her, she must feel so sad and isolated.

Funny the way things work out sometimes.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Well I am SHOCKED! There are over a 100 kids at this camp, and a girl in MY family group has CELIAC! I knew there was a reason I was supposed to be here THIS week, and I've been praying over it, I guess this was it...She's going through a really tough transition period and needs a friend who understands. Praise God. She's kinda feeling left out with everyone around her eating wheat so I think I'll talk to the Dean about letting her eat lunch with me or something...I've been just eating on the run, but I'm willing to sit at the table in the foyer and eat with her....

That's great news! Good for both of you to know there is someone else there with the same issues.


 

 

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Oh, that's such a great story! She'll probably remember you her whole life, and your presence will make having this disease a lot more comfortable.

As a kid, my ex-boyfriend used to go to "diabetes camp" (actually Camp Joslin after the Boston diabetes center), where all the kids were diabetic. I think it is important for kids to meet others who have the same issues they do.

I googled "camp celiac" out of curiosity, and it turns out there are such things for celiac kids too!

http://celiacdisease.about.com/od/raisingaglutenfreechild/tp/SummerCamps.htm

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I completely agree being gluten-free is the biggest pain in the ass, esp. when you just want to eat in a hurry and that is just never an option. Im sorry your having a rough time :(

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Yeah she's having a really tough time and feeling very alone right now

And the bread everyone made today didn't help

If I had known they were gonna do that I would have brought stuff to make my own...

I didn't even go in the room it was horrible

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