Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Are Enterolab Tests Reliable?


Lori2

Recommended Posts

Lori2 Contributor

How reliable are test results from EnteroLab? I tested negative on the blood test for Celiac. Here are my EnteroLab results:

Fecal Anti-gliadin IgA 219 Units (Normal Range is less than 10 Units)

Fecal Anti-tissue Transglutaminase IgA 86 Units (Normal Range is less than 10 Units)

Quantitative Microscopic Fecal Fat Score 285 Units (Normal Range is less than 300 Units)

Fecal Anti-casein (cow


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

Enterolab measures what they claim, but the interpretation of the tests is a case of "buyer beware".

If eliminating fruit helps, you may have a condition called fructose malabsorption where fructose stays in the gut if you eat too much. The symptoms are bloating, gas, cramping, stomach upset, and diarrhea. A doctor can test for hydrogen produced by gut bacteria in your breath, sort of like a lactose intolerance test. You would go on a low FODMAP diet if that's your problem.

Open Original Shared Link explains it pretty well.

Ahorsesoul Enthusiast

I suggest you cut out all gluten, dairy and soy for a few months to see if you improve. Since you have been gluten free for such a short time your intestines may need to heal before you see more improvements. Dairy and soy seem to hinder intestinal healing. I was able to add them back without problems. Made a major difference.

Lori2 Contributor

I really don't use any soy in my diet and according to the EnteroLab results, dairy should not be a problem. Or would the high-normal testing indicate a possible problem.

Fecal Anti-casein (cow

burdee Enthusiast

How reliable are test results from EnteroLab? I tested negative on the blood test for Celiac. Here are my EnteroLab results:

Fecal Anti-gliadin IgA 219 Units (Normal Range is less than 10 Units)

Fecal Anti-tissue Transglutaminase IgA 86 Units (Normal Range is less than 10 Units)

Quantitative Microscopic Fecal Fat Score 285 Units (Normal Range is less than 300 Units)

Fecal Anti-casein (cow

Skylark Collaborator

Food allergy tests will not be helpful if the problem is fructose malabsorption.

ravenwoodglass Mentor

How reliable are test results from EnteroLab? I tested negative on the blood test for Celiac. Here are my EnteroLab results:

Fecal Anti-gliadin IgA 219 Units (Normal Range is less than 10 Units)

Fecal Anti-tissue Transglutaminase IgA 86 Units (Normal Range is less than 10 Units)

Quantitative Microscopic Fecal Fat Score 285 Units (Normal Range is less than 300 Units)

Fecal Anti-casein (cow


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lori2 Contributor

Thanks for your responses. In reading through the forum, I realize that I am much more fortunate than most of you. I am 80 years old and have lived most of my life without major health problems

ksymonds84 Enthusiast

My Gastro doctor (who is a Celiac expert) believes Dr. Fine has an excellent tool in screening probable celiac patients and used it for himself (he has suffered IBS for years with negative blood work and endoscopy for celiac) and his children. Since Dr.Fine hasn't published for peer view my doctor does not use the test to diagnose. He did look at my results from enterolab and took them seriously but still of course had me do the challenge and scope me. If you are not going to do further testing then do the diet and see if it helps. I also have fructose malabsorption along with my celiac and know my threshold for fructose intake, as long as I don't go over I do fine.

Skylark Collaborator

I think maybe I understand why Dr. Fine is not publishing. He has a little data on his website showing that he has sacrificed specificity in order to have high sensitivity on his tests, and he pretty much says as much in the accompanying test. I'm not sure the way he has defined the reference ranges would survive a peer review.

  • 4 weeks later...
starla Newbie

Hi. I have the same 303, 602 as you. I just wanted to tell you that gluten had me constipated for two years (among a slew of other symptoms). Within a few days of taking it out of my diet (prob no more than a week or so) my stool turned to diarrhea. My sister suggested taking corn out of my diet because she successfully cleared everything up by doing that. Once I was gluten/corn/dairy free - my life literally changed.

Corn is way worse than gluten as far as avoiding it. I'm just going to go ahead and say that and the main reason why is because it's in everything. Literally. It's also not a Top 8 Allergy in the US so manufacturers don't have to list it. It's in food, makeup, lotions, on stamps, in perfumes/fragrances, cleaning supplies (especially eco friendly), it's sprayed on fruit (to ripen at the right time), and doused over meat (preservative), it's in almost every juice/soda (citric acid), anything fortified (vitamins in cereals, milk, etc), coated on rice (enriched) to add nutrients, and in almost everything boxed or bagged (salt... iodine is connected to salt via a corn derivative).

With having the same genes as me - - I just had to throw this out there. I really wish I just had a gluten problem. Not to be dismissive of the difficulty of following a gluten free diet - gluten is in a LOT of products/foods out there. But, when I layered on the corn issue - almost no gluten free foods are safe (Namaste is my saving grace). I can a lot of my foods... sauces, condiments, salsa's, jelly's.... It takes a lot of work and research. If you decide it may help you - I have tons of links to forums and sites. There is a google spreadsheet that a corn avoiders forum maintains with safe brands and there are so many people gluten sensitive as well (and dairy) that it also specifies those options.

Traveller Rookie

I think maybe I understand why Dr. Fine is not publishing. He has a little data on his website showing that he has sacrificed specificity in order to have high sensitivity on his tests, and he pretty much says as much in the accompanying test. I'm not sure the way he has defined the reference ranges would survive a peer review.

Skylarks's point is a good one. If by "reliable" you mean "truthful", no test will be reliable. Even serologic tests for celiac have what I consider to be a high false negative rate (report negative results when subject has celiac). However, if by "reliable" you mean "helpful in decisionmaking", I consider the test reliable.

I don't believe my Enterolab test was dead on truthful, but it aided me in deciding to give up gluten. Other factors that aided the decision included family history, children diagnosed by biopsy, the subsequent dietary response, and response when gluten is unexpectedly reintroduced (i.e. "glutened").

Untimately, the preponderance of evidence is what counted for me. For someone who is a silent celiac, however, the answer may be different.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

    2. - ThomasA55 replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

    3. - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

    4. - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,086
    • Most Online (within 30 mins)
      10,442

    Joseph01
    Newest Member
    Joseph01
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Does my iron loss sound like celiac to you?
    • trents
      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
    • ThomasA55
    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
×
×
  • Create New...