Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Rant

conniebky

By conniebky
in Coping with Celiac Disease

Recommended Posts

conniebky Collaborator
conniebky
Posted

I don't feel good

I can't keep my eyes open

I can't take my pain pills because I don't need that much anymore

I got Meijer's brand Advil.

I took two.

I got a reaction.

I wrote to them.

They wrote me back with a gluten free link that doesn't work

They told me they'll forward this on to someone else

I can't brush my teeth good and my mouth is disgusting yucky

He doesn't want me using mouthwash yet, just salt water

I feel filthy from head to toe

I didn't wash my hair cuz I didn't feel like it

I want some real food but can't have that yet

I got some broc cheese soup for lunch and it was good but I need a gallon of it

ok i'm done ranting now.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Poor baby! Most of the Advil/tylenol type stuff is gluten-free that I have found. Go take a shower & wash your head! (Say that in your Grandmothers voice!) It will improve your mood.

Can you eat little tiny bits that you don't need to chew yet? Hamburger chopped up really dinky in a little beef broth would probably hit the spot. Maybe a bakes potato with lots of butter or mixed with the mixer and milk & butter until creamy? An over ripe fresh peach mushed up? Making meself hungy. :P

ravenwoodglass Mentor
ravenwoodglass
Posted

(((((((((((((((((Hugs))))))))))))))))))))

The advice to take a nice warm shower is a good one. If you have any lavender scented soap, or any other favorite scent, it might make you feel better.

Do you have any cream of buckwheat on hand? That's a favorite comfort food of mine. Perhaps some scrambled eggs or some rice noodles broken up in small swallow whole bits and some nice chicken broth might be doable.

I hope your feeling better soon.

Gemini Experienced
Gemini
Posted

I don't feel good

I can't keep my eyes open

I can't take my pain pills because I don't need that much anymore

I got Meijer's brand Advil.

I took two.

I got a reaction.

I wrote to them.

They wrote me back with a gluten free link that doesn't work

They told me they'll forward this on to someone else

I can't brush my teeth good and my mouth is disgusting yucky

He doesn't want me using mouthwash yet, just salt water

I feel filthy from head to toe

I didn't wash my hair cuz I didn't feel like it

I want some real food but can't have that yet

I got some broc cheese soup for lunch and it was good but I need a gallon of it

ok i'm done ranting now.

Connie dear.....I had only one molar pulled in January and thought that a pain in the butt as far as all the things you ranted about so I cannot imagine what pulling 6 teeth must be like. It was 6, wasn't it? :o My implant will be started in October so there's more fun coming for me down the road.

Take a shower and wash your hair so you'll feel cleaner and calmer. Even if you don't need the pain meds, maybe take one anyway for the hell of it as you shouldn't drink alcohol right now. ;) That always works for me! Eat your favorite mushy foods so you won't be hungry, which always makes people grumpy. Not much else that can be done...it's one of those pain in the arse times when you just have to get through it and try not to lose your mind. I am thinking of you and sending healing thoughts your way. Dental work is just no fun as it impacts what you can eat and that's huge. Feel free to rant away!

conniebky Collaborator
conniebky
Posted
  • Author

And tell me WHY I'm craving 3 Musketeers and Milky Ways and PB cups????

I have NEVER been a candy eater.

The good news is, I get off work in 16 minutes.

lucia Enthusiast
lucia
Posted

Oh, Connie - this too shall pass. I hope you can go home, maybe have a nice bath, and surround yourself with good things. Maybe watch something that makes you laugh?

kareng Grand Master
kareng
Posted

And tell me WHY I'm craving 3 Musketeers and Milky Ways and PB cups????

I have NEVER been a candy eater.

The good news is, I get off work in 16 minutes.

You went to work like that? :P Supposedly, if we crave candy, we are actually craving fruit. OK, maybe...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


curiousgirl Contributor
curiousgirl
Posted

I don't feel good

I can't keep my eyes open

I can't take my pain pills because I don't need that much anymore

I got Meijer's brand Advil.

I took two.

I got a reaction.

I wrote to them.

They wrote me back with a gluten free link that doesn't work

They told me they'll forward this on to someone else

I can't brush my teeth good and my mouth is disgusting yucky

He doesn't want me using mouthwash yet, just salt water

I feel filthy from head to toe

I didn't wash my hair cuz I didn't feel like it

I want some real food but can't have that yet

I got some broc cheese soup for lunch and it was good but I need a gallon of it

ok i'm done ranting now.

Conniebky, I know EXACTLY how you feel! And, I appreciate the format in which you shared your frustration. To the point! No beating around the bush! Not writing, rewriting, editing and reediting til 3 hours pass and that frustrating energy is still swarming around because it hasn't been "released." Can you use Tom's toothpaste?

curiousgirl Contributor
curiousgirl
Posted

I don't feel good

I can't keep my eyes open

I can't take my pain pills because I don't need that much anymore

I got Meijer's brand Advil.

I took two.

I got a reaction.

I wrote to them.

They wrote me back with a gluten free link that doesn't work

They told me they'll forward this on to someone else

I can't brush my teeth good and my mouth is disgusting yucky

He doesn't want me using mouthwash yet, just salt water

I feel filthy from head to toe

I didn't wash my hair cuz I didn't feel like it

I want some real food but can't have that yet

I got some broc cheese soup for lunch and it was good but I need a gallon of it

ok i'm done ranting now.

Conniebky, I know EXACTLY how you feel! And, I appreciate the format in which you shared your frustration. To the point! No beating around the bush! Not writing, rewriting, editing and reediting til 3 hours pass and that frustrating energy is still swarming around because it hasn't been "released." Can you use Tom's toothpaste?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. nancydrewandtheceliacclue
      - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

      @Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future.
    2. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down...
    3. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

      @Russ H, I partly agree and partly disagree with you. After looking at it again, I would say that the slick graphic I posted overestimates the risk. Your math is solid, although I find estimates of gluten in white bread at 10-12% rather than the 8% you use. Somewhat contradicting what I wrote before, I agree with you that it would be difficult to ingest ...
    4. Peace lily
      - Peace lily commented on Scott Adams's article in Latest Research
      2

      New Study Reveals How the Immune System Learns Which Foods Are Safe to Eat

      Hi everyone well I don’t understand totally,I look for gluten-free only. I seem to be super sensitive. I had a problem the other day don’t know why it happen . I’m the only that handles my food . My husband has pancreatitis he’s fine with me cooking gluten-free I’ve tried doing both it doesn’t work for me strictly gluten-free kitchen. But he can actu...
    5. nancydrewandtheceliacclue
      - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

      @Aretaeus Cappadocia thank you for your reply and the link, that is very helpful to get a visual of just how small of an amount can cause a reaction. I know I am not consuming gluten or coming into contact with gluten from any other source. I will stop touching/tossing bread outside! My diet has not changed, and I do not have reactions to the things I am...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,061
    • Most Online (within 30 mins)
      10,442
    Francisco1007
    Newest Member
    Francisco1007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      @Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future. 
    • Aretaeus Cappadocia
      Celiac flare years after diagnosis

      By Aretaeus Cappadocia · Posted

      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down your experiences and questions in outline form and bring this to your Dr. I suggest writing it down so you don't get distracted from telling the Dr everything you want to say while you have their attention.
    • Aretaeus Cappadocia
      Celiac flare years after diagnosis

      By Aretaeus Cappadocia · Posted

      @Russ H, I partly agree and partly disagree with you. After looking at it again, I would say that the slick graphic I posted overestimates the risk. Your math is solid, although I find estimates of gluten in white bread at 10-12% rather than the 8% you use. Somewhat contradicting what I wrote before, I agree with you that it would be difficult to ingest 10 mg from flinging bread.  However, I would still suggest that @nancydrewandtheceliacclue take precautions against exposure in this activity. I'm not an expert, I could easily be wrong, but if someone is experiencing symptoms and has a known exposure route, it's possible that they are susceptible to less than 10 mg / day, or it is possible that there is/are other undetected sources of exposure that together with this one are causing problems. At any rate, I would want to eliminate any exposure until symptoms are under control before I started testing the safety of potentially risky activities. Here is another representation of what 10 mg of bread would look like. https://www.glutenfreewatchdog.org/news/wp-content/uploads/2019/10/10mgGlutenCrumbsJules.jpg Full article that image came from: https://www.glutenfreewatchdog.org/news/what-does-10-mg-of-gluten-look-like/
    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      @Aretaeus Cappadocia thank you for your reply and the link, that is very helpful to get a visual of just how small of an amount can cause a reaction. I know I am not consuming gluten or coming into contact with gluten from any other source. I will stop touching/tossing bread outside! My diet has not changed, and I do not have reactions to the things I am currently eating, which are few in number. My auto immune reaction just seems so severe. The abdominal pain is extreme. It takes a lot out of me. I guess I will be this way for the rest of my life if I ever happen to come into contact with gluten? I appreciate the help. 
    • Jmartes71
      Skin issues

      By Jmartes71 · Posted

      Thankyou I did find out the Infectious disease is the route to go rather than dermatologist. I did reach out to two major hospitals and currently waiting on approval for one of them in Infectious Diseases to call me. I also did have implants ( I didn't know and sense not properly in my medical. Neither did surgeon)in 2006 and there was a leak 2023 during the same time I was dealing with covid, digestive issues, eyes and skin.Considering I " should  be fine" not consuming gluten/wheat, taking vitamins for sibo and STILL feeling terrible.It has to be parasites. I also take individual eye drops prescribed, could there be an issue there? Anyways my pcp thinks I need therapy because again they don't acknowledge my digestive issues because in my records it shows im fine, hintz the reason I had to go back to bay area hospital:(  I thought skin issues maybe sibo related but I feel and have seen and seriously trying not to think about it because it's disgusting. 
×
×
  • Create New...