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Simona19

Rash From Gluten?

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Thoughts After Recent Blood Test Rate Topic: #1 from miobrien

Skylar wrote

(Diarrhea, constipation, bloating, cramping, reflux, stomachaches, ridges in your nails, thin tooth enamel, thin hair, low iron, low B vitamins, fatigue, anxiety, depression, canker sores in your mouth, or a blistered and itchy rash.)

From his list I have, had: diarrhea, constipation, bloating , cramping, reflux, stomachaches, ridges in my nails, thin hair + they are folling out like craizy_ I would need wig in the future, low iron, fatigue, depression, cancer sores in my mouth. And blistered and itchy rash? Plus I have milk intolerance, nut, kiwi, banana, orange, pineapple, cantaloupe, honey allergy. I have latex allergy and indor and outdor allergy all year around, and asthma. Plus elevated hormones for the hypothyiroidism - I don't need the medicine for it yet, but in the near future I would be force to take them.

I would like to ask you, if anybody knows what it means:

For the past 4 years I have been having itchy rash with some tiny blisters. The rash is small (big like quader), patchy (only two-four at the time), and they are only on my arms or legs. I would have them for less than 24 hours, only few would last more then a day. I always thought that I have this from the sun because they usually appeared when I was working in my garden, and I checked pictures online for the skin rash from gluten which didn't looked like mine. Yesterday I made hamburgers for us on a grill. I thought myself that I will eat same ground meat as others, and that I will cook on the same side where I'm grilling hamburgers and buns. It was 7 clock in the evening and the rash came back - only one spot on the left hand with two blisters. After I ate hamburger - just meat and Anie's gluten free and casein free pasta with tomato sauce a half hour later I had major stomach pain, more like a cramps. I didn't have D only later a lot of gas. All lasted for more than 24 hours.

I know that I can't eat contaminated food, I know that isn't safe, but in the back of my mind I still feel the doubt. Everybody here are telling me that I have the celiac, but my doctors don't think that. I know that all signs are pointing to that, but it looks like I'm not ok with going 100% gluten free without fight. Ach... My stomach needs something else than my brain wants. :huh::huh::huh:

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Didn't you say in another post you have a Marsh 1 biopsy? You have all the symptoms of celiac, intestinal damage, and you react very strongly to gluten, including delayed skin reactions and a rash that sure sounds like DH.

The rash can be biopsied to see if it's DH by a doctor taking a skin sample next to an active lesion. Your doctor doesn't sound particularly helpful so you would have to go to a dermatologist separately.

I am genuinely confused at this point as to what you're looking for, though. You have all the symptoms of celiac, problems that resolve when you go gluten-free, and you even had some villous damage on biopsy. You are more "diagnosed" than half the people on this board who are feeling great gluten-free. Don't you want to be rid of all these awful health problems???

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Yesterday I made hamburgers for us on a grill. I thought myself that I will eat same ground meat as others, and that I will cook on the same side where I'm grilling hamburgers and buns. It was 7 clock in the evening and the rash came back - only one spot on the left hand with two blisters. After I ate hamburger - just meat and Anie's gluten free and casein free pasta with tomato sauce a half hour later I had major stomach pain, more like a cramps..........My stomach needs something else than my brain wants. :huh: :huh: :huh:

You say you cooked your hamburger on the same side of the grill where you were grilling buns (presumably not gluten free), and you wonder why you react? You cross-contaminated yourself. You cannot do that and stay gluten free. Yes, your brain is not working for your stomach and if you want to feel better you will have to change that brain of yours :P You must be very strict with the diet AND in avoiding cross-contamination. Tell that brain of yours to get with the program and protect you from doing such silly things.


Neroli

"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973

Lactose free 1990

(Mis)diagnosed IBS, fibromyalgia '80's and '90's

Diagnosed psoriatic arthritis 2004

Self-diagnosed gluten intolerant, gluten-free Nov. 2007

Soy free March 2008

Nightshade free Feb 2009

Citric acid free June 2009

Potato starch free July 2009

(Totally) corn free Nov. 2009

Legume free March 2010

Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

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Didn't you say in another post you have a Marsh 1 biopsy? You have all the symptoms of celiac, intestinal damage, and you react very strongly to gluten, including delayed skin reactions and a rash that sure sounds like DH.

The rash can be biopsied to see if it's DH by a doctor taking a skin sample next to an active lesion. Your doctor doesn't sound particularly helpful so you would have to go to a dermatologist separately.

I am genuinely confused at this point as to what you're looking for, though. You have all the symptoms of celiac, problems that resolve when you go gluten-free, and you even had some villous damage on biopsy. You are more "diagnosed" than half the people on this board who are feeling great gluten-free. Don't you want to be rid of all these awful health problems???

Thank you so much. I'm sorry for posting so many posts with the questioning my celiac disease. I'm Libras, and they are always going back and forth on anything. I know in my mind why I can't eat gluten and milk and other things. Everything is screaming at me that I can't. My body reacts very strongly against that, but stupid me I need "more" proof. Stupid me. I want to be better. I have been sick all my life, always something. Now my family members(not my husband or son) and my friends don't even want to listen to me. They just ask: "What again?" They don't believe me. They make fun from me, and I don't want to be the one (special) feeling strange in the room of people. Maybe that is the reason why I'm always asking you people for help and answears. I'm sorry for that. I'm like a teanager, but I promise, I will get better.

I bought a new pantry cabinet yesterdey for my gluten free things, and last week a new toaster oven. I'm also using new utensils in the kitchen and I'm cooking everything for me gluten free (only that stupid hamburger).

I'm getting there. Slowly, but I will catch up. Thank you for your patience.

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You will get there. Every slip up you make is showing you more strongly that you need to be strict. For some of us there is an addictive factor to gluten and it can take a while to get past that. There is also a bit of withdrawl for many which can make us feel out of sorts and moody which can lead to 'risky behavior'.

If you slip up you slip up, don't beat yourself up about it just resolve to try harder and not make the same mistake again.

We understand how hard this is and we are here for you when you need us to be.

As you start to get healthier you may find your friends and family being more supportive also.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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So you ARE going gluten-free? I'm so glad to hear it. :D

Please don't feel bad about asking for help and answers. This diet is a big change and the one thing people hate the most is change. Around here, we are pretty much experts at encouraging people to listen to their bodies. Your doctor does not live in your body, miserable and curled up on the couch with a stomachache and D a couple hours after eating gluten. Sometimes I wish they could feel our intolerance symptoms for a day so they would take this more seriously. Imagine if that smug, dismissive doctor got up in the morning feeling exhausted, got a stomachache from their eggs and toast that they barely had the energy to cook, had to run for the bathroom between patients all day, and laid down and couldn't sleep that night from gluten-caused anxiety and insomnia. I imagine he/she would change his tune about gluten intolerance and celiac.

Your family will come around as they see you recover. We have a lot of people around here who had skeptical families. Once they got well the families became very supportive. It happened to me, and my mom went from skeptical to going on the gluten-free diet herself and feeling much better.

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Sometimes I wish they could feel our intolerance symptoms for a day so they would take this more seriously. Imagine if that smug, dismissive doctor got up in the morning feeling exhausted, got a stomachache from their eggs and toast that they barely had the energy to cook, had to run for the bathroom between patients all day, and laid down and couldn't sleep that night from gluten-caused anxiety and insomnia. I imagine he/she would change his tune about gluten intolerance and celiac.

If wishes were horses there would sure be a lot of doctors riding and looking for the closest bathroom. :D

So many doctors seem to lose their empathy once they get their degrees. If they had any to begin with.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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It would be priceless to see that in action. :D:D:D

When I was driving in the morning to take my son to school, I always listened The NEW YORK Radio Station 100,3. People were wishing diarrhea to somebody(like boss, neigbor, boyfriend or co-worker) who made them angry with the help of moderators. The funny thing was that everybody reported back that the person actually had the diarrhea that day.

Once I told this story to my sister because she was very upset. Her teacher gave her D on very important test. I told her to wish diarrhea to her. We were laufing like crazy. I don't know, if she ever did, but that conversation did picked up her mood for sure. :lol::D

When we are upset with somebody - like our doctors - we can just wish for them the big Diarrhea!!!

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I have had a couple of young female doctors, extremely attractive and know it, (dh claims one of them slept her way through Stanford, she was so inept) who look down their noses at my imperfections. I will not go to them anymore, they are so demeaning of any lack of perfection," look how wonderful my body is, how could you let yourself gain 20 lbs and your skin get in such terrible shape?" and it makes you wonder why on earth they chose medicine as a profession. I wish upon them diarrhea, psoriasis, thunder thighs, elephantiasis and a crippling disease that leaves them walking with a walker, if they can walk at all. I wish for them adult onset acne, drooping boobs, warts on the ends of their noses, cosmetic surgery gone wrong, endless pain.... And it makes me laugh and feel better. :ph34r::lol:


Neroli

"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973

Lactose free 1990

(Mis)diagnosed IBS, fibromyalgia '80's and '90's

Diagnosed psoriatic arthritis 2004

Self-diagnosed gluten intolerant, gluten-free Nov. 2007

Soy free March 2008

Nightshade free Feb 2009

Citric acid free June 2009

Potato starch free July 2009

(Totally) corn free Nov. 2009

Legume free March 2010

Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

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I don't care who you sleep with, you've got to have some brains and credentials just to get INTO Stanford, much less through it.

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Too bad doctors aren't automatically issued common sense, compassion and good bedside manners upon graduation from medical school!!!


Sylvia

Positive Celiac Blood Panel - Dec., 2009

Endoscopy with Positive Biopsy - April 9, 2010

Gluten Free - April 9, 2010

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I don't care who you sleep with, you've got to have some brains and credentials just to get INTO Stanford, much less through it.

That may well be, but this woman bought a thriving practice (from my former doc who retired) and killed it in five years - ended up working for Kaiser! :P


Neroli

"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973

Lactose free 1990

(Mis)diagnosed IBS, fibromyalgia '80's and '90's

Diagnosed psoriatic arthritis 2004

Self-diagnosed gluten intolerant, gluten-free Nov. 2007

Soy free March 2008

Nightshade free Feb 2009

Citric acid free June 2009

Potato starch free July 2009

(Totally) corn free Nov. 2009

Legume free March 2010

Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

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I haven't read all the replies but I get rashes that are very itchy when I'm glutened. They look like blisters.


Grain-free,dairy-free, soy-free (celiac, possible colitis now as well).

Extremely allergic to shellfish, Aspirin & Ibuprofen

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