Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Lactose Cheating

bincongo

By bincongo
in Food Intolerance & Leaky Gut

Recommended Posts

bincongo Contributor
bincongo
Posted

I am a new Celiac so I am still learning. I had a bowl of Ben and Jerry's ice cream a month ago and had a reaction. My intestines where having a bubble bath of their own. I thought the ice cream was gluten free so I assumed that I now had a lactose intolerance. For a month now I have tryed to be lactose free but yesterday I decided to cheat with using Cool Whip on my gluten free desert and buttermilk in my gluten free muffin mix. I may be having some symptoms but not too bad. My question is - do people find that their symptoms from a lactose exposure are different than a gluten one? And how important is it to stay lactose free or is it just a comfort thing. I wouldn't think of exposing myself to gluten but might still be making CC mistakes.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


quincy Contributor
quincy
Posted

I am a new Celiac so I am still learning. I had a bowl of Ben and Jerry's ice cream a month ago and had a reaction. My intestines where having a bubble bath of their own. I thought the ice cream was gluten free so I assumed that I now had a lactose intolerance. For a month now I have tryed to be lactose free but yesterday I decided to cheat with using Cool Whip on my gluten free desert and buttermilk in my gluten free muffin mix. I may be having some symptoms but not too bad. My question is - do people find that their symptoms from a lactose exposure are different than a gluten one? And how important is it to stay lactose free or is it just a comfort thing. I wouldn't think of exposing myself to gluten but might still be making CC mistakes.

Hi, sorry to hear about your dx. mine was in April and I am going through the same thing as you are. I am conflicted about dairy now also. I was dairy free (or so I thought) for awhile so in August I started increasing my intake of dairy and it came back to bite me... hard. My doc said to stay away from high fat dairy such as Ice Cream etc.

several things may be going on. You are lactose intolerant because your villi are damamged and the tips of the villi is where lactase enzyme is produced. also, your fat absorption is bad right now so your intestines cannot tolerate many fats until healing starts to kick in. I was unable to tolerate even too much olive oil at first and fish oil was out of the question. little by little I am able to absorb the good fats now but milk fat is still not good with me as I get the same reaction as to gluten. I don't know if I will ever go back to dairy. even the dairy in the pancake mix I love has it so I have to find dairy free and casein free. The other possibility is a casein intolerance (the protein in dairy causes similar symptoms to gluten reaction).

hopefully someone with more experience and knowledge will add to your topic to answer your questions more specifically....

Link to comment
Share on other sites
GlutenFreeManna Rising Star
GlutenFreeManna
Posted

I am a new Celiac so I am still learning. I had a bowl of Ben and Jerry's ice cream a month ago and had a reaction. My intestines where having a bubble bath of their own. I thought the ice cream was gluten free so I assumed that I now had a lactose intolerance. For a month now I have tryed to be lactose free but yesterday I decided to cheat with using Cool Whip on my gluten free desert and buttermilk in my gluten free muffin mix. I may be having some symptoms but not too bad. My question is - do people find that their symptoms from a lactose exposure are different than a gluten one? And how important is it to stay lactose free or is it just a comfort thing. I wouldn't think of exposing myself to gluten but might still be making CC mistakes.

I was completely dairy free for about 5 or 6 months and then I found I could tolerate small amounts. I'm about 8 months gluten free now and can tolerate low lactose cheese (hard cheeses like cheddar have little to no lactose) and yogurt (the lactose in yogurt gets broken down by the live yogurt cultures so it's easier to digest). I still cannot drink milk or eat ice cream without having stomach pains, bloating and mild D. I still cheat about once a month and try ice cream again (my hubby loves his ice cream so we always have some around). I have found coconut milk ice cream is just as good as (almost better than) regular ice cream. I also discovered I can tolerate goats milk and goats cheese with no problems.

As far as your differences in symptoms with Cool Whip, it has so little milk in it I bet it's very low lactose, if not lactose free. In fact Cool Whip used to be labeled a a non-dairy topping. And the buttermilk is probably also light on lactose due to the way it is cultured to break down the milk sugars. I learned on here that sour cream is low in lactose so I think it makes sense that buttermilk would be too.

Link to comment
Share on other sites
bincongo Contributor
bincongo
  • Author
Posted

I kinda thought Cool Whip wasn't too bad for us. I have been using Lactaid milk and didn't think I was having any problems with it. I do have to admit that I had a latte with real milk and maybe that was it. I just don't really like Soy milk and I don't like any of the other "substitute" milks. Anyway I hate my diet, who doesn't, so I make rich gluten free deserts like flourless chocolate cake and who knows but my gut probably can't handle all that fat.

Today I found that my symptoms were simular to ones I think I had when I ate gluten but maybe not as bad. As I said - can you tell in any way if it is gluten from CC that is causing the symptoms or lactose exposure? It would be nice if there was a difference but maybe not.

Link to comment
Share on other sites
sa1937 Community Regular
sa1937
Posted

For what it's worth, Breyers does make lactose-free ice cream. I bought the vanilla (only flavor I could find) at Wal-Mart a couple of weeks or so ago. Surprisingly it's the same price as the other Breyers ice cream.

I've been gluten free for 5 months now and have a single-serve size of Ben & Jerry's in the freezer that I'll try again one of these days (when I don't have to go anywhere the next couple of days). Lactaid also has lactose-free ice cream but I haven't found it yet in the stores where I shop.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. plumbago
      - plumbago replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed...
    2. trents
      - trents replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    3. Suzi374
      - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it.
    4. Suzi374
      - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be be...
    5. Peace lily
      - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight

      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,226
    • Most Online (within 30 mins)
      7,748
    NYKaren
    Newest Member
    NYKaren
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • plumbago
      Lots of tests

      By plumbago · Posted

      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed by endoscopy and biopsy of the duodenum. So, pathology will need to weigh in. It's not diagnosed on gastroscopy. (At least, not as far as I know). Two, did you get blood tests for celiac disease? You will need to be eating gluten in order for those to be accurate. Three, where was the CT angiogram (of what)? I could go on and on, but thought I'd start there.
    • trents
      Lots of tests

      By trents · Posted

      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      Lots of tests

      By Suzi374 · Posted

      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Lots of tests

      By Suzi374 · Posted

      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Would like to gain weight

      By Peace lily · Posted

      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
×
×
  • Create New...