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suzyq63

Whole Body Hurting?

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Is this a common symptom? My daughter has been gluten-free for about 6 weeks. Celiac was caught extremely early stages. Prior to diagnosis, she would often complain of her whole body hurting - like the body aches you get when you're sick. Those complaints had gone away but have come back in the last 2 days, usually at night. She also deals with Type 1 diabetes and epilepsy; it can be hard to figure out what is related to what. Thank you.

Paula

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Oh MY!

That sounds just like me! My whole body feels like I am getting the flu.

I am gluten-free for almost a month and was "ok" but this weekend, I just feel horrible, sick, flu like...

I think these things take time and everybody is different...I hope she feels better soon

ada


TTG >200 (normal <10)

IgA gliadin 24 (normal <11)

IgG gliadin 38 (normal <11)

Endoscopy showed damage that looked like "classic celiac", biopsy showed total villous atrophy

Started gluten-free diet Aug 31, 2010

Only real symptoms are huge weight loss and neuropathy

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I don't know if it's common, but I used to be like that. I remember complaining that I felt like I was 100 years old. I think I was about 28 at the time. I always attributed it to being overweight, and then to the arthritic joint pain I started experiencing. It had gotten to the point that I was taking ibuprofen every day just to get moving.

After eliminating gluten, I mostly stopped hurting. I ate wheat a few days ago, and I feel awful today. Right now my whole body hurts, from my head to my toes and everywhere in between.

Is it possible your daughter has accidentally eaten some gluten? Or could she be developing a sensitivity to another food in her diet? Did she eat anything new in the past week or so?

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Thank you! I am wondering if she was glutened. She hasn't eaten anything different, but maybe it was cross-contamination. We had been doing so well; hopefully this will pass quickly.

Paula

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I decided to go gluten free because of horrible migraines. Since going gluten free, I have seen a significant decrease in my migraines. However, when I first eliminated gluten I had one of the worst migraines I've ever had and my joint pain felt worse. I almost gave up because I thought I couldn't be gluten intolerant if I was still feeling so bad. My mom and husband were wonderfully supportive and after two weeks I began to finally feel better. But, I have to say that it took me four months for my exhaustion and body pain to fully go away. I recently read an article on gluten withdrawal and I think I may have had that. I accidentally glutened myself 2 times since then and I KNOW it because of how similarly horrible I feel. I have been gluten free for 9 months now and feel wonderful. Hang in there!

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