Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Lab Results


bincongo

Recommended Posts

bincongo Contributor

I posted this on another forum but it is more appropriate here.

I got my labs back and I just wanted to run some things by some of the smart people on this forum. My doctor wasn't concerned about any of it. She will retest me in 4 months. I know I am a new Celiac so my IgG was 102 and my IgA 11.1, Reticulin Abs - positive 1:20, Endomysial Abs - negative.

I also had a few other things tested. I had taken supplements up until about a week before my labs and then decided I wanted to know what my body was doing without supplements so I quit. My vitamin D was normal and so was my B12 but my B6 was elevated 70, in a range of 5-50. I forgot to ask for a magnesium test. I am close to being anemic but not out of range. My WBC is low 3.74, with MCHC of 31.7 and Neutrophils of 1.99.

I have stopped taking any vitamin B's but I am still taking Magnesium Citrate. I have a problem with constipation and I feel it helps but wondering if there is any danger in doing so. I continue to have problems with sleep but don't know if it is related. I take Levothyroxine but will be switching to Synthroid non generic. My T4 was 7.06 and TSH 1.27 on meds.

All in all I came out better than I expected so maybe my Celiac was caught early but I still would like some advice.

Dx Celiac July 2010 by Endoscopy biopsy- had Endoscopy for another reason, not for possible Celiac

Hypothyroid Dx 2009.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



burdee Enthusiast
I got my labs back and I just wanted to run some things by some of the smart people on this forum. My doctor wasn't concerned about any of it. She will retest me in 4 months. I know I am a new Celiac so my IgG was 102 and my IgA 11.1, Reticulin Abs - positive 1:20, Endomysial Abs - negative.

I also had a few other things tested. I had taken supplements up until about a week before my labs and then decided I wanted to know what my body was doing without supplements so I quit. My vitamin D was normal and so was my B12 but my B6 was elevated 70, in a range of 5-50. I forgot to ask for a magnesium test. I am close to being anemic but not out of range. My WBC is low 3.74, with MCHC of 31.7 and Neutrophils of 1.99.

I have stopped taking any vitamin B's but I am still taking Magnesium Citrate. I have a problem with constipation and I feel it helps but wondering if there is any danger in doing so. I continue to have problems with sleep but don't know if it is related. I take Levothyroxine but will be switching to Synthroid non generic. My T4 was 7.06 and TSH 1.27 on meds.

All in all I came out better than I expected so maybe my Celiac was caught early but I still would like some advice.

Dx Celiac July 2010 by Endoscopy biopsy- had Endoscopy for another reason, not for possible Celiac

Hypothyroid Dx 2009.

Are you sensitive to dairy? Many newly diagnosed celiacs cannot digest lactose, because their intestinal villae have not yet healed. If you cannot tolerate lactose, you may not tolerate Synthroid, which includes Lactose Monohydrate in its 'inert ingredients'. However, a compounding pharmacist can prepare Synthroid without that lactose ingredient, if you really need that specific thyroid supplement.

cassP Contributor

may i ask you what your TSH & T4 numbers were BEFORE u got on meds???

i need to retest my thyroid. havent tested since 2006- and back then my TSH was around 4.50 ???

bincongo Contributor

Are you sensitive to dairy? Many newly diagnosed celiacs cannot digest lactose, because their intestinal villae have not yet healed. If you cannot tolerate lactose, you may not tolerate Synthroid, which includes Lactose Monohydrate in its 'inert ingredients'. However, a compounding pharmacist can prepare Synthroid without that lactose ingredient, if you really need that specific thyroid supplement.

I am sensitive to lactose. I get my Synthroid by mail so I guess I should call them. Does Levothyroxine have lactose in it too? My sister has Hashimoto's and her specialist doesn't beleive in generic so I thought I should switch too but my sister isn't Celiac or lactose sensitive.

bincongo Contributor

may i ask you what your TSH & T4 numbers were BEFORE u got on meds???

i need to retest my thyroid. havent tested since 2006- and back then my TSH was around 4.50 ???

I don't know what my TSH was. That was my pre Celiac days and I wasn't concerned about keeping a copy of my lab results for myself. Actually I just realized that they did give me two lab results. The TSH of 1.27 and T4 of 7.06 was from December of last year after taking meds for 3 months. The most recent labs are TSH of 2.58 and Free T4 of 1.12. I am not sure what that means.

burdee Enthusiast

I am sensitive to lactose. I get my Synthroid by mail so I guess I should call them. Does Levothyroxine have lactose in it too? My sister has Hasimoto's and her specialist doesn't beleive in generic so I thought I should switch too but my sister isn't Celiac or lactose sensitive.

You can "google" Levothyroxine ingredients, which were (inert ingredients): "butylated hydroxyanisole, colloidal silicon dioxide, crospovidone, magnesium stearate, mannitol, microcrystalline cellulose, povidone, sodium lauryl sulfate and sucrose." I'd have problems with mannitol and sugar, but you may not.

Contact the company which markets your 'Synthroid' to verify ingredients. Most brands of T4 replacement thyroid supplements have the same active ingredients, but the inactive ingredients may affect absorption in the intestines. I've read that Levoxyl is more easily absorbed by people with intestinal problems. When I saw that Synthroid included lactose and Levothyroxine included mannitol and sugar in the inactive ingredients, I understood how people with lactose and alochol based sugar sensitivities may have intestinal reactions to those drugs. Inflammatory (intolerance) reactions would certainly affect absorption.

burdee Enthusiast

I also had a few other things tested. I had taken supplements up until about a week before my labs and then decided I wanted to know what my body was doing without supplements so I quit. My vitamin D was normal and so was my B12 but my B6 was elevated 70, in a range of 5-50. I forgot to ask for a magnesium test. I am close to being anemic but not out of range. My WBC is low 3.74, with MCHC of 31.7 and Neutrophils of 1.99.

I have stopped taking any vitamin B's but I am still taking Magnesium Citrate. I have a problem with constipation and I feel it helps but wondering if there is any danger in doing so. I continue to have problems with sleep but don't know if it is related.

I also had low WBC and MCHC results on my last blood tests. Both of those results could mean anemia which causes fatigue and sleep problems. My doc suggested I take more Vitamin B12 and folate. Deficiencies of those could lower WBC. I'm eating more iron rich foods (because I don't tolerate iron supplements) to raise my MCHC.

I've taken magnesium supplements for years to cope with chronic constipation problems. Many newly diagnosed celiacs have magnesium deficiencies, because the celiac damaged intestines don't absorb enough magnesium from food. I also had low stomach acid production, which prevents adequate magnesium digestion in the stomach. Too much magnesium will cause diarrhea, which will tell you to take less magnesium. If you struggle with constipation, you probably need a lot of magnesium. Did the thyroid supplements help resolve your constipation problem? I just started Levoxyl 3 weeks ago and hoped that would improve my regularity.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bincongo Contributor

I also had low WBC and MCHC results on my last blood tests. Both of those results could mean anemia which causes fatigue and sleep problems. My doc suggested I take more Vitamin B12 and folate. Deficiencies of those could lower WBC. I'm eating more iron rich foods (because I don't tolerate iron supplements) to raise my MCHC.

I've taken magnesium supplements for years to cope with chronic constipation problems. Many newly diagnosed celiacs have magnesium deficiencies, because the celiac damaged intestines don't absorb enough magnesium from food. I also had low stomach acid production, which prevents adequate magnesium digestion in the stomach. Too much magnesium will cause diarrhea, which will tell you to take less magnesium. If you struggle with constipation, you probably need a lot of magnesium. Did the thyroid supplements help resolve your constipation problem? I just started Levoxyl 3 weeks ago and hoped that would improve my regularity.

In response to burdee - I am not sure where to go from here with Synthroid. Maybe I should have left well enough alone. If I were sensitive to sugar I would be in big trouble with what I eat so no problem there. I am a little concerned about my WBC and MCHC since I think this is the first time it came up low but I will take a mulivitamin and it sounds like several people agree I should continue to suppliment B12. It would be interesting if my sleep problems were also related to anemia.

As far as the thyroid supplements helping my constipation I am not sure. My thyroid problem was discovered before my Celiac and my constipation has gotten worse since I have been gluten free.

burdee Enthusiast

In response to burdee - I am not sure where to go from here with Synthroid. Maybe I should have left well enough alone. If I were sensitive to sugar I would be in big trouble with what I eat so no problem there. I am a little concerned about my WBC and MCHC since I think this is the first time it came up low but I will take a mulivitamin and it sounds like several people agree I should continue to suppliment B12. It would be interesting if my sleep problems were also related to anemia.

As far as the thyroid supplements helping my constipation I am not sure. My thyroid problem was discovered before my Celiac and my constipation has gotten worse since I have been gluten free.

Have you tried Levoxyl? Levoxyl's inert ingredients are "microcrystalline cellulose, crocarmelose sodium and magnesium stearate". I've had no reaction problems with Levoxyl, despite my 7 food allergy restrictions and several other intolerances (related to leaky gut). I react to mannitol, sorbitol, etc. with IBS symptoms. I react to any form of cane sugar with tachycardia and nausea, but I can tolerate beet sugar.

Since my blood tests indicated low WBC and MCHC, I've eaten high iron foods and taken high amounts of B12 and folate for a month. I haven't retested, but I feel much more energetic. So I suspect the extra iron, B12 and folate decreased anemic symptoms from low WBC and MCHC. However, Levoxyl could have also improved my energy. I also finally recovered from a bad cold after taking therapeutic amounts of Vitamin D3 (6,000 IU daily for 2 weeks). So any one of those things could have improved my energy levels. Nevertheless, Levoxyl didn't improve my regularity yet. So I suspect the vitamins helped more than thyroid supplement.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Breakfast ideas besides oatmeal as Avenin can be gluten?

    2. - RMJ replied to Ginger38's topic in Coping with Celiac Disease
      5

      The Struggle Has Overtaken Me

    3. - Aretaeus Cappadocia replied to Ginger38's topic in Coping with Celiac Disease
      5

      The Struggle Has Overtaken Me

    4. - Aretaeus Cappadocia replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten challenge - Need some guidance

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,180
    • Most Online (within 30 mins)
      10,442

    Nancy sirois
    Newest Member
    Nancy sirois
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I read gluten-free oatmeal Avenin can cause gluten like symptoms. I read Bobs Redmill gluten-free creamy buckwheat cereal and Millet are good alternatives with ultra low heavy metals, mold but it seems it takes longer to prepare the minute oats. What have you changed your breakfast to.
    • RMJ
      Ginger38, that sounds very difficult.  Each dietary restriction makes it harder to figure out what to eat. Before my celiac diagnosis I already watched out for my cholesterol level and migraine triggers, but those are much easier than diabetes restrictions. One “bad” meal isn’t that much of a problem for cholesterol levels, and my migraines only happened if I consistently ate the triggers. After many years I’ve figured out how to bake gluten free but I think many recipes have more starch which wouldn’t work for diabetes. If you go with the elephant eating analogy, I think the first portion to work on would be the diabetes, since the immediate consequences of not being careful (passing out from low blood sugar, or diabetic coma from high blood sugar) are so severe. The next portion would be celiac. The serious consequences aren’t as immediate, but if you have celiac disease, I think of eating gluten like a booster shot - revving up the immune system, but to attack yourself leading to long term damage. It sounds like you are experiencing this damage now. I did a google search on “gluten free food for diabetics” and a number of sites with advice came up.  If your insurance will cover it and you can find one, a registered dietician who knows about both diabetes and celiac disease might help you figure out what to eat safely. Hopefully my post will both scare and encourage you, as requested, with a big dose of compassion because this sounds very difficult and you are clearly suffering.
    • Aretaeus Cappadocia
      Reading the original post on this thread made me think of "How To Eat An Elephant". The key point is that a whole, big problem can seem insurmountable but if you break it into bite-sized pieces it is much easier to accomplish. Here is the google description. It's not bad: If you're facing a daunting goal, you can use these steps to "eat your elephant": Identify the Elephant: Clearly define the large project or goal that feels overwhelming. Break it Down: Divide the major task into smaller "bite-sized" pieces. If a piece still feels too big, break it down further. Prioritize: Decide which "bite" to take first based on necessity or impact. Focus on the Now: Instead of worrying about the whole animal, focus only on the single step you are taking right now. Maintain Consistency: Progress comes from taking the "next right step" every day until the task is complete. Celebrate Small Wins If I understood Ginger38's post correctly, you are facing the prospect of a gluten challenge, but you are already eating gluten on an intermittent basis. It also sounds like many of the symptoms you attribute to gluten consumption are in full expression. Step back and take a deep breath. Get a notebook and start a gluten-related diary. Don't try to make it perfect; just record what you can about food intake and what you experience as you go along. Talk to your Dr's office (nurse, Dr, whomever) about the challenge. The most rigorous challenge is for someone who has already gone truly gluten free but now needs a clear diagnosis. Someone who is already eating gluten should not need as much "challenge". Even at that, google describes an example challenge as 1-2 slice of bread or 1/2 cup of pasta a day. If that describes your existing diet you are already there. For the moment, try to focus on getting past the challenge and test. Once you have the results, start planning accordingly.
    • Aretaeus Cappadocia
      I don't know the answer to your question any better than a google search, but I am sure someone else will step up and answer. I am popping up to recommend that you keep a careful diary (in case you weren't already). Try to catalog what you are eating and experiencing. Bring a copy to your next visit (and if you have access to the Dr, also send a copy a couple days in advance). Don't assume that they will read it. They might, but they also might be under tremendous time pressure and not get to it. Two other suggestions: if your healthcare provider has a web portal, sign on and search for "gluten challenge". They may have a standard page and Dr assumed you would find it on your own. If that doesn't work, call the Dr's office and ask the office for their official advice. You probably wouldn't need to speak to the Dr directly. There should be some nurse or staff member who could answer that
    • Xravith
      After few months going gluten free, I decided to reintroduce gluten in my diet so I can do a proper diagnosis for Celiac disease. During the gluten free period I felt incredibly good. I stopped having hypoglycemia symptoms, I gained some muscle (Still, I am considerably underweight) and my anxiety totally disappeared. I felt totally like a new person. Now, I almost reached the second week of gluten challenge and all my symptoms are progressively coming back. The first days I was ok, just a bit of acid reflux I could control with medicines. However, after the first week I started to feel real stomach pain and tiredness, my face is growing acne and sometimes (specially when I walk) i feel painful migraines.  I am afraid If I am eating too much gluten or not enough, the "4 slices of bread" indication confuses me. I am actually eating 20 g of bread, 3 biscuits and 40 g of croissant each day. My doctor was not very specific when he gave me the medical order for the gluten challenge, so I invented my own daily gluten menu. Do you have any suggestions? 4 weeks will be enough to do the blood test with my current gluten intake?  Thank you
×
×
  • Create New...