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Monklady123

By Monklady123
in Coping with Celiac Disease

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Monklady123 Collaborator
Monklady123
Posted

I know I haven't been at this diet for very long but you'd think I would have learned BY NOW to read labels. I mean, I do read them. But not quite enough. Woke up this morning with that awful gluten headache. I couldn't think what I'd had yesterday that could possibly have caused it.

Then *bing* light bulb moment -- I asked my dd to bring me the bag of Chex Muddy Buddies that I'd just bought. The one that says it "may contain wheat ingredients" but I am not usually bothered by that "may" thing. At least so far I've been lucky not to be. Anyway...definitely no wheat ingredients in there.

However -- "barley malt". sigh... :ph34r:

Now I need to remember that the allergen listing will be for "wheat" but not necessarily for all gluten.

:rolleyes: at me.

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Mama Melissa Enthusiast
Mama Melissa
Posted

I feel your pain this disease is soo hard to deal with:(

Loey Rising Star
Loey
Posted

I know I haven't been at this diet for very long but you'd think I would have learned BY NOW to read labels. I mean, I do read them. But not quite enough. Woke up this morning with that awful gluten headache. I couldn't think what I'd had yesterday that could possibly have caused it.

Then *bing* light bulb moment -- I asked my dd to bring me the bag of Chex Muddy Buddies that I'd just bought. The one that says it "may contain wheat ingredients" but I am not usually bothered by that "may" thing. At least so far I've been lucky not to be. Anyway...definitely no wheat ingredients in there.

However -- "barley malt". sigh... :ph34r:

Now I need to remember that the allergen listing will be for "wheat" but not necessarily for all gluten.

:rolleyes: at me.

So sorry that the barley got you. We really need the FDA to do something about labeling. I hope you feel better soon.

Sending healing hugs and positive energy,

Loey

Monklady123 Collaborator
Monklady123
Posted
  • Author

Well, the barley malt was listed in the ingredients, so it was my own fault. I just read too fast and went directly to the allergen listing, forgetting that even if "wheat" isn't listed there is gluten in other things.

lovegrov Collaborator
lovegrov
Posted

Well, the barley malt was listed in the ingredients, so it was my own fault. I just read too fast and went directly to the allergen listing, forgetting that even if "wheat" isn't listed there is gluten in other things.

And even if barley were included in the allergens, they don't have to list them at the bottom separately. They just have to be in the ingredients somewhere.

richard

curiousgirl Contributor
curiousgirl
Posted

And even if barley were included in the allergens, they don't have to list them at the bottom separately. They just have to be in the ingredients somewhere.

richard

I continued to do the same thing when I was first diagnosed...forget to read the labels. Finally, when I would remember to read everything, I'd realize I forget my readers....it's all coming together now, though. Tuff to change old habits. Feel better soon...

AZGirl Rookie
AZGirl
Posted

Sorry you feel so bad; hope it lets up soon.

I wanted to thank you for the reminder. I had to come home from work today after getting glutened. I'm trying to investigate the culprit and you reminded me that it's not just wheat that is the culprit, so thanks.

I hope you feel better.

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Loey Rising Star
Loey
Posted

Well, the barley malt was listed in the ingredients, so it was my own fault. I just read too fast and went directly to the allergen listing, forgetting that even if "wheat" isn't listed there is gluten in other things.

We really do need for the FDA to recognize Celiac and step it up. There are a lot of products out here that include ingredients that are bad for us and we need a degree in science or medicine to understand them. I really hope you're feeling better.

Sending healing energy,

Loey

Skylark Collaborator
Skylark
Posted

Been there, done that. I hope you feel better soon!

sandsurfgirl Collaborator
sandsurfgirl
Posted

Hope you feel better! That darn barley will get ya!

cap6 Enthusiast
cap6
Posted

Hope you feel better. I did the same thing. Threw a package of soup into the cart that I had purchased before & knew as "safe". They changed the ingredients on me. It's hard to always remember.

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