Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Weird Cholesterol Levels


DoogiePCT

Recommended Posts

DoogiePCT Apprentice

Hey guys-

I posted my story in a thread below. Long story short, I think I might have Celiac. I had my doc run my cholesterol check (being 23, he never ran it before) the results came back WEIRD and I'm scared....

HDL was 81

LDL was 41

VLDL was 11

Total cholesterol 133

Any idea what this could be?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

Don't worry. It's just another sign of celiac. Celiac can cause low cholesterol if you're not absorbing fats very well.

Link to comment
Share on other sites
DoogiePCT Apprentice

But why would the HDL be so high?

Link to comment
Share on other sites
Skylark Collaborator

I'm not sure the lipid profile is going to be completely normal when your total cholesterol is so low. HDL above 60 is considered good anyway, and your HDL:LDL ratio is below 3, which is also considered very healthy.

Link to comment
Share on other sites
Jestgar Rising Star

But why would the HDL be so high?

Do you exercise?

Link to comment
Share on other sites
Gemini Experienced

But why would the HDL be so high?

You may have partial villi damage, which means you are still able to absorb some fats. I wouldn't be worried about this at all....except as an indicator of possible Celiac. Your healthy cholesterol is excellent and your bad is low, which is great. My cholesterol still runs low overall, which at 51 years old, is about as good as it gets. The one number, the HDL, was dangerously low for me at time of dx but now is up to 60...still working on raising that.

Don't sweat an overall number of 133....many people would kill for those numbers without meds.

Link to comment
Share on other sites
DoogiePCT Apprentice

Thanks so much! Load off my mind. I run about 50 miles a week.

I am currently undiagnosed with Celiac. I am strongly genetically positive (DQ2 and DQ8), even though no one in my family is diagnosed, but all serologic markers ( all IGA's, DGP's, and TtG's and EMA) were strongly, strongly negative as of last month.

I am a 23 year old male with a history of low body weight (5'10, 125) in spite of high (3000+ per day) caloric intake, and occasional headaches and gastric issues, and early childhood cancer (thyroid, which I forgot to mention in the last post) but other than that I feel great. I had a negative biopsy 2 years ago, and the GI would still like to run a Capsule endoscopy, which will happen this week or early next. I am aware that thyroid cancer is correlated with celiac, so even though the immediate response is serology and (2 year old) biopsy negative, no celiac, I feel the need to really push to figure this out.

You may have partial villi damage, which means you are still able to absorb some fats. I wouldn't be worried about this at all....except as an indicator of possible Celiac. Your healthy cholesterol is excellent and your bad is low, which is great. My cholesterol still runs low overall, which at 51 years old, is about as good as it gets. The one number, the HDL, was dangerously low for me at time of dx but now is up to 60...still working on raising that.

Don't sweat an overall number of 133....many people would kill for those numbers without meds.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Roda Rising Star

A few years before I started with my symptoms I had my first cholererol pannel done and it was weird too. My HDL was low as was all the others. My triglyceride level was barely on the low end of the chart and a doctor commented to me that she had never seen one so low and that I was lucky. Fast forward a few years and I get my celiac diagnsis and I read somwhere that low cholesterol and triglycerides can be a sign of malabsorption. Just another piece of the puzzle missed early on. I had everything rechecked a year after diagnosis and it is normalizing. I still need to raise the HDL some more though.

Link to comment
Share on other sites
Jestgar Rising Star

Thanks so much! Load off my mind. I run about 50 miles a week.

My boss runs marathons and his HDL is in the 100's. Makes me think the values they give as minimums are ridiculously low.

Link to comment
Share on other sites
ravenwoodglass Mentor

A few years before I started with my symptoms I had my first cholererol pannel done and it was weird too. My HDL was low as was all the others. My triglyceride level was barely on the low end of the chart and a doctor commented to me that she had never seen one so low and that I was lucky. Fast forward a few years and I get my celiac diagnsis and I read somwhere that low cholesterol and triglycerides can be a sign of malabsorption. Just another piece of the puzzle missed early on. I had everything rechecked a year after diagnosis and it is normalizing. I still need to raise the HDL some more though.

Yea I had a doctor congratulate me for my really low numbers also. At the time I was eating mostly very fatty fried foods, lots of ice cream and butter etc. My cholesterol should have been through the roof. I also had lots of celiac symptoms at the time that were blown off as 'nerves'. If only doctors would look past the lab results and really listen to their patients maybe we could get diagnosed before we are half dead. GRRRRRR

Link to comment
Share on other sites
frieze Community Regular

A few years before I started with my symptoms I had my first cholererol pannel done and it was weird too. My HDL was low as was all the others. My triglyceride level was barely on the low end of the chart and a doctor commented to me that she had never seen one so low and that I was lucky. Fast forward a few years and I get my celiac diagnsis and I read somwhere that low cholesterol and triglycerides can be a sign of malabsorption. Just another piece of the puzzle missed early on. I had everything rechecked a year after diagnosis and it is normalizing. I still need to raise the HDL some more though.

My HDL went up when i supplemented with Vit D. My Vitamin D level was only 49, so i have upped that again.....will see what the cholesterol is in a few months.

Link to comment
Share on other sites
Roda Rising Star

I'm going for a complete check up with my NEW(she so get's celiac) pcp next month. I'm sure I'll be having things rechecked then. I've been taking Rx vitamin D 50,000 iu once a week for two years now.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,176
    • Most Online (within 30 mins)
      7,748

    a-ball
    Newest Member
    a-ball
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • awright24
      I have my endoscopy on Thursday, has anyone had the procedure done with a cough? I don't have a continuous cough, but every now and then throughout the day I have sort of coughing episodes. They are a lot better than they were but I called endoscopy and they said to speak to my gp and my gp got back to me and said I need to ask endoscopy if its ok if I have it done still.  Help!
    • MMH13
      Thank you so much, everyone. For the moment my doctor just has me taking iron but hopefully we can reconnect soon. I'm going to look into genetic testing, too. Great advice all around and I appreciate it--and you can bet I'm going off the PPIs!
    • Eldene
      I walk fast for fitness, 4 to 6 km per day. I am also 74 years old. Apart from the Celiac challenge, my lifestyle is healthy. I had a sciatiac nerve pinching under my one foot, with inflamation in my whole shin. It was almost cured, when the other shin started paining and burning. I do stretches, use a natural cooling gel and rest my feet. Can Celiac cause muscle pains/inflamation, or is it just over-excercising?
    • LovintheGFlife
      I recently started shopping at a nearby Trader Joe's store. I was surprised at the number and variety of (healthy) gluten-free options sold there. I must admit their low prices are also quite tempting. However, I am curious as to the labeling on all their packages. While none of their products are certified as gluten-free, many are identified as 'GLUTEN FREE' on the packaging. Are these items safe for celiacs? Has anyone tried Trader Joe's products and have there been any adverse reactions?
    • Beverley Ann Johnson
      HI, my doctor suggested one week of consuming gluten before blood tests.  I have been gluten free for 3 years.  Has anyone been through this and will I get exact results after one week of consuming gluten?  I don't even know if I can do this, if I get sick I am not sure if I can continue, any suggestions??  Thanks in advance.  
×
×
  • Create New...