Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

New Weird Symptom...

zebaldwin

Recommended Posts

zebaldwin Explorer
zebaldwin
Posted

I'm afraid to even ask my doctor in fear he'll just think I'm making it up...but I starting getting this really strange feeling in my lower throat/upper lungs (not exactly sure) but it's a random sharp pain every once in a while...almost like when you swallow something to big. Its not my throat itself...maybe the muscle.

Just curious if anyone has had anything or heard of anything like this. It's been going on for a couple weeks now. Doesn't really get worse or better.

Sorry if this is a stupid question

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Emilushka Contributor
Emilushka
Posted

Not a stupid question. There are tests to evaluate your muscle function. If this is continuing and it's only in your esophagus, there's such a thing as an esophageal muscle spasm (along with other functional problems) that you could be experiencing. It sounds like it's worth an evaluation.

Link to comment
Share on other sites
IrishHeart Veteran
IrishHeart
Posted

I ask so many questions on here about seemingly bizarre questions and no one thinks they are stupid. Feel safe to ask anything--these people have seen it all/heard it all/experienced it all! And someone answers with kindness!

That said...I HAVE had this same sensation. As if I have swallowed a giant pill and it hurts like heck!? One day, just drinking WATER did it. It really hurt, but then it passed. I do not know what causes it, sorry.

I had it for a long time. Months. Then, one day, it stopped. I am not sure if it is because I am healing and the inflammation--which is in my GI tract from my throat to my well,you know.. <_< --is subsiding.

I agree with Emilushka. Might be worth asking your doctor if it continues to give you grief.

Link to comment
Share on other sites
cassP Contributor
cassP
Posted

I'm afraid to even ask my doctor in fear he'll just think I'm making it up...but I starting getting this really strange feeling in my lower throat/upper lungs (not exactly sure) but it's a random sharp pain every once in a while...almost like when you swallow something to big. Its not my throat itself...maybe the muscle.

Just curious if anyone has had anything or heard of anything like this. It's been going on for a couple weeks now. Doesn't really get worse or better.

Sorry if this is a stupid question

i had something similar months ago- while at work- it scared the bejesus out of me- then it seemed to migrate to my upper right rectus abdominus (upper right stomach muscle in an 8 pack)-> where i had severe muscle spasms- so bad i was asking my manager if i could leave- and i was the tears were just dripping like crazy... i went to a walk in clinic- the osteopath felt around- bottom line- i got muscle relaxers- and found some relief.

still didnt know what the pain in my throat/esophagus region was...then i started googling at home- and really scared myself with all the aortic aneurisms... pain starting in the throat- going to the stomach

BUT- i was fine obviously....

also scaring myself - with all my reflux issues- and smoking- i thought about barrets esophagus, etc...

anyways- a few weeks later i was dx with Hypothyroid.. then Hashimoto's... then also Grave's... so, now im wondering if the pain was coming from my thyroid...??

also found out im vit. D deficient... then i was reading about Hyperparathyroidism which can also lead to muscle spasms..???????

sorry for all the thinking outloud- but maybe you're having something similar??? maybe you should have your thyroid checked- a panel, and also maybe the doc checking for swelling ??

Link to comment
Share on other sites
cassP Contributor
cassP
Posted

I ask so many questions on here about seemingly bizarre questions and no one thinks they are stupid. Feel safe to ask anything--these people have seen it all/heard it all/experienced it all! And someone answers with kindness!

That said...I HAVE had this same sensation. As if I have swallowed a giant pill and it hurts like heck!? One day, just drinking WATER did it. It really hurt, but then it passed. I do not know what causes it, sorry.

I had it for a long time. Months. Then, one day, it stopped. I am not sure if it is because I am healing and the inflammation--which is in my GI tract from my throat to my well,you know.. <_< --is subsiding.

I agree with Emilushka. Might be worth asking your doctor if it continues to give you grief.

um- sorry to go on and on about the thyroid- but you mentioned the pill getting stuck-> have u and i already discussed if youve had a thyroid panel????

hope im not annoying anyone- but im learning so so much about it these days with my dx... and kinda frustrated that i AT LEAST had it for the last 7 years- but never knew all these symptoms <_< i wish i had. i only thought it involved being cold and overweight... if only i could have known and not suffered <_<

Link to comment
Share on other sites
zebaldwin Explorer
zebaldwin
  • Author
Posted

Thanks guys.

I have had my thyroid checked and recently a full physical...

It's just very weird. Doesn't exactly feel like a muscle, but it definitely isn't like a soar throat. And it's just a quick shooting pain...happens randomly throughout the day, usually after I swallow.

My doctor has just been very sympathetic with me so far (even after months of no results) and I dont want to throw random symptoms at him and have him start to not take me seriously...maybe a stupid fear to have.

Link to comment
Share on other sites
cassP Contributor
cassP
Posted

Thanks guys.

I have had my thyroid checked and recently a full physical...

It's just very weird. Doesn't exactly feel like a muscle, but it definitely isn't like a soar throat. And it's just a quick shooting pain...happens randomly throughout the day, usually after I swallow.

My doctor has just been very sympathetic with me so far (even after months of no results) and I dont want to throw random symptoms at him and have him start to not take me seriously...maybe a stupid fear to have.

if you're gluten intolerant, or celiac: have you had a history of reflux? or silent reflux? when was your last endoscopy?? if its been a while- it might be a good idea to scope and check everything..?? and maybe get your vitamin levels checked too...

hope you get it all figured out :)

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

um- sorry to go on and on about the thyroid- but you mentioned the pill getting stuck-> have u and i already discussed if youve had a thyroid panel????

hope im not annoying anyone- but im learning so so much about it these days with my dx... and kinda frustrated that i AT LEAST had it for the last 7 years- but never knew all these symptoms <_< i wish i had. i only thought it involved being cold and overweight... if only i could have known and not suffered <_<

cass---Thyroid is a good idea, but I had mine checked repeatedly. No nodules, low antibodies. TSH good. Thanks for the thought!! G.

Link to comment
Share on other sites
zebaldwin Explorer
zebaldwin
  • Author
Posted

Im not diagnosed with celiac or gluten intolerance...but bloodwork came back negative last week, moving forward with a GI (hopefully) this week...then either way Im going to go on the diet. I am praying I have at least gluten intolerance (to explain all my other symptoms) and was just curious if this could be part of that...

Link to comment
Share on other sites
mushroom Proficient
mushroom
Posted

Do you think it could possibly be esophageal spasm? Here is a link with links to other websites: Open Original Shared Link

I have occasionally had this, though not so much lately.

Link to comment
Share on other sites
zebaldwin Explorer
zebaldwin
  • Author
Posted

Hmmm...not sure if that's what it is.

I'm thinking maybe a symptom from being stressed about all the other symptoms...I think I'll bring it up to my doctor tomorrow

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. plumbago
      - plumbago replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed...
    2. trents
      - trents replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    3. Suzi374
      - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it.
    4. Suzi374
      - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be be...
    5. Peace lily
      - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight

      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,224
    • Most Online (within 30 mins)
      7,748
    Suzi374
    Newest Member
    Suzi374
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • plumbago
      Lots of tests

      By plumbago · Posted

      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed by endoscopy and biopsy of the duodenum. So, pathology will need to weigh in. It's not diagnosed on gastroscopy. (At least, not as far as I know). Two, did you get blood tests for celiac disease? You will need to be eating gluten in order for those to be accurate. Three, where was the CT angiogram (of what)? I could go on and on, but thought I'd start there.
    • trents
      Lots of tests

      By trents · Posted

      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      Lots of tests

      By Suzi374 · Posted

      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Lots of tests

      By Suzi374 · Posted

      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Would like to gain weight

      By Peace lily · Posted

      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
×
×
  • Create New...