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Nicole Ren

Endometriosis And Bladder Issues

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I was diagnosed with Celiac Disease in October of 2009, I was 18 years old. I had always had heavy/painful periods, and I had seen a urologist for bladder problems (every time I gave a urine sample there was blood in it) after a very uncomfortable cystoscopy(sp) and several ultrasounds of the kidneys and bladder they still couldn't find the source of the blood. I still to this day have blood in the samples, it's been frustrating. About a year and a half ago my gynocologist started me on Nuvaring because my periods have always given me trouble. I then started having even more problems, extreme shooting pain during my periods and midnight pelvic spasms that were VERY painful. She then told me it could be endometriosis, but diagnosed or not the treatment is the same we didn't have a scope done. She told me to skip my periods and just move on to the next ring after the three weeks were up. This did help the pain, but when I had to get the prescription filled again it was messed up and I ended up just stopping the nuvaring all together. An interesting thing happened. The first period after I stopped was painful yes, but after that I didn't have the shooting pain OR the muscle spasms. So....was the nuvaring causing those symptoms? I'm wondering if I even have endometriosis at all. I'm seeing my gyno Friday to talk about it. I know that endometriosis sometimes comes with the celiac disease territory but how common is it actually? Is it really that common of an occurrence?

I'm just wondering if there are any women out there going through this, I've also wondered if the bladder problems were related to celiac disease? Any feedback is appreciated :)

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Tell ya what, I had been gluten free for a year and a half. I needed a DnC, had some cysts. Been a long time suffer of endometriosis for most of my adult life (was confirmed by an ob/gyn about 10 years ago and prior to this DnC, about 1 year it was still there), so Doc went in, did his thing. Told my parents no endometriosis was found. IT WAS GONE! Only after being gluten free...so...ya I think there is a link. I also get frequent bladder infections (or use too) as well.

Anyways I think there is a link, because of my experience.

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I believe there is a HUGE connection to GYN issues. I had endometriosis, cysts, fibroids, painful periods, and multiple miscarriages and a horrible very early menopause that resulted in a hysterectomy. Had I known at a younger age that I had Celiac, and been able to treat it with a proper diet, I may have been able to avoid all those complications and had children.

GYN and bladder issues are listed as definite celiac symptoms and even now, post hysterectomy, I have pelvic floor pain which my GYN and I believe is a result of years of muscle stress and dysfunction from a life time of bowel inflammation from the celiac disease. I am in PT for that pain and it is gruesome.

Before DX and going gluten-free, I had awful bladder pain and urinary urgency--those inflamed intestines press on everything down there--and now, it is GONE! :)

So, YUP! I think so!!

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IrishHeart and others, how long after you went gluten-free did the urinary urgency or frequency go away? I have had a feeling of needing to pee nearly all the time, sometimes worse after I void (and I am voiding nearly completely, that's been checked) and definitely worse after a BM. I have only been gluten-free for two weeks... but am hoping to see some resolution or lessening of symptoms soon. I felt more energetic at first, but am now very sleepy all the time again, with no change in the bladder symptoms...

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