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Hidradenitis Suppurativa

LindsayO

By LindsayO
in Related Issues & Disorders

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LindsayO Newbie
LindsayO
Posted

Just looking for some input/experience from members diagnosed with Celiac's and HS. I have had HS, now at about a stage 2, since middle school (I am now 25). Nothing has ever helped it. Not lancing, not abx, not extreme weight loss (100 pounds). It has been a huge problem for me. I had been (mis)diagnosed with irritable bowel synodrome for 6 years. After a terrible terrible stomach ache and hospitalization my gluten intolerance was discovered and Celiac's diagnosed. That was in June and I have been gluten free since. My HS seemed a little better without gluten but not in any way cured.

Was wondering if anyone else has experience with this?

How long for improvement in the HS without gluten?

How is your HS now?

If your HS went into remission, how long and has it stayed that way 100%?

Thank you for ALL your imput and feel free to ask me questions, I'm an open book, I've dealt with this HS forever and tried almost everything aside from surgery.

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ravenwoodglass Mentor
ravenwoodglass
Posted

I do seem to recall other topics about HS. You might want to do a board search to see what others have had to say about it. One thing you may want to do if you haven't alreay is make sure you have eliminated gluten from topical items like lotions, shampoos etc. I don't know if it would help but it won't hurt. I do hope this resolves for you as I understand it can be quite painful.

pricklypear1971 Community Regular
pricklypear1971
Posted

If there is mast cell involvement cromolyn cream may help. It helped stop some itching for my DH.

Recipe at Open Original Shared Link

  • 3 weeks later...
nora-n Rookie
nora-n
Posted

here is one of the discussions about HS

nora-n Rookie
nora-n
Posted

here is a huge discussion on hidradenitis suppurativa: Open Original Shared Link

Archived

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