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pinkcloud

Worth Looking Into Celiac?

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I am a 32 year old female. I've wondered if i could possible have Celiac for at least the last 15 years. i started noticing in college, where i'd have horrible episodes of cramping, very strong abdominal pain, alternating with episodes of running to the bathroom with soft, foamy, mucus-filled stools. i've had gurgling sounds in my tummy all the time and it seemd as though i was physically unable to pass the air/gas that was trapped there. i've noticed it was worse after eating bread/beer, but it was college and my options were limited. i did see a doctor, who diagnosed me with IBS and told me to take anti-anxiety meds. of course they didn't help. he then advised to stay away from bread if i thought that was a problem...

years later i had a similar experience with the military docs. i had an endoscopy, but not a colonoscopy. nothing besides IBS was found.

last April, in desperation, my mom made me get a "food sensitivities' test (the (Company Name Removed - They Spammed This Forum and are Banned)). it turned out i was sensitive to a lot of things. gluten was a 'mild' sensitivity.

so here i am now. still in pain, still bloated, tired, with itchy skin and severe sinus issues, still running to the bathroom (three times a day max, usually just one, and on some days not at all (well, normal, not the 'urgent' kind)--so not terribly often). i have an endocrynologist that i see to watch the small cysts on my thyroid, who ran blood tests for thyroid stuff and also auto-immune ones, and all were fine. does it mean it can't possible be Celiac? with the negative auto-immune test, and the 'mild' sensitivity to gluten, that is. or should i pursue further?

thanks and sorry this is so long!@

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Could be celiac or gluten sensitivity.

what "auto-immunity"-tests did your ob/gyn run?

The food intolerance test, was it IgG antibodies?

The normal tests for celiac are:

tissue transglutaminase IgA

Endomysium Ab

deaminated gliadin IgA

total IgA to check if IgA type tests are valid

Also, b-12 and vitamin D and ferritin tend to be lowish with celiac


gluten-free since may 06 after neg. biopsy symptoms went away and DH symptoms which I had since 03 got gradually better.

daughter officially diagnosed celiac and casein intolerant.

non-DQ2 or DQ8. Maybe DQ1? Updated: Yes, double DQ5

Hypothyroid since 2000, thyroxine first started to work well 06 on a low-carb and gluten-free diet

Lost 20 kg after going gluten-free and weighing 53 kg now. neg. biopsy for DH. Found out afterwards from this forum that it should have been taken during an outbreak but it was taken two weeks after. vitaminD was 57 nmol/l in may08)

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Could be celiac or gluten sensitivity.

what "auto-immunity"-tests did your ob/gyn run?

The food intolerance test, was it IgG antibodies?

The normal tests for celiac are:

tissue transglutaminase IgA

Endomysium Ab

deaminated gliadin IgA

total IgA to check if IgA type tests are valid

Also, b-12 and vitamin D and ferritin tend to be lowish with celiac

let's see--the doctor did an Antinuclear Antibodies, IFA test which was netagive

my Vit D was low

I'think' the (Company Name Removed - They Spammed This Forum and are Banned) is the IgG test, but i am no scientist and therefore am confused.

I think i should also add that I have Raynaud's syndrome, which i think is an auto-immune condition. it was discovered when i went in for a thyroid check because i'm constantly cold, my fingers turn blue, i get muscle cramps and aches and pains like crazy, and i have freakishly dry and itchy skin.

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You lack celiac tests, and the newest one is the daminated gliadin test, make sure you get at least that one


gluten-free since may 06 after neg. biopsy symptoms went away and DH symptoms which I had since 03 got gradually better.

daughter officially diagnosed celiac and casein intolerant.

non-DQ2 or DQ8. Maybe DQ1? Updated: Yes, double DQ5

Hypothyroid since 2000, thyroxine first started to work well 06 on a low-carb and gluten-free diet

Lost 20 kg after going gluten-free and weighing 53 kg now. neg. biopsy for DH. Found out afterwards from this forum that it should have been taken during an outbreak but it was taken two weeks after. vitaminD was 57 nmol/l in may08)

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