Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

The Results Are In

Buffheart

Recommended Posts

Buffheart Apprentice
Buffheart
Posted

Actually the results came in a few days ago via my mother because I moved a few weeks ago. The GI doctor said nothing has changed since my last round of tests in 2010. My blood work was relatively normal and the endoscopy showed no damage. Like last time he also said that my IgA levels were low, though I do not have the actual score. He also said there is no need to see him and that I do not have Celiac, though I can still cut out gluten, which I have been doing.

I'm just wondering why I would have low IgA levels two years in a row? What causes it? Could that be indicative of gluten intolerance?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

When the doctor says your IgA levels are low, is he talking about your total serum IgA? This is a control test that is run to make sure that you produce normal quantities of IgA. If this result was low, then it would invalidate all other IgA testing. Write and ask for a copy of the results of your blood testing just to clarify what was tested and what the results were. I do understand that the scope results were negative, but if the doctor doesn't take enough samples and/or the damage is patchy, it is easy to miss the damage, or you may not yet have done enough intestinal damage to test positive. At any rate, it would be helpful if you could post your results here so those of our posters who are expert at interpreting them could take a look.

ravenwoodglass Mentor
ravenwoodglass
Posted

In addition to what Mushroom said had you been gluten free before the second scope and blood tests? If you were they should be negative results. If you are gluten free is the diet helping? That's the most important thing.

Buffheart Apprentice
Buffheart
Posted
  • Author

Mushroom- I will try to get a hard copy of the results but that might be a bit difficult as I am out of state and am in college now, but I will see what I can do. If all else fails I should be going back home in March for a week and will see about getting them then. But hopefully they will be willing to send them out here so I don't have to wait. If it makes it better, I am pretty sure it was total IgA levels he tested for. But everything else came back normal. No anemia, nothing like that, so I still don't know why I feel exhausted all the time.

Raven- No, I had not been on a gluten free diet before that. After my 2010 endoscopy the doctor told me I could try going gluten free, but at that time I was living with my parents and was unemployed and they told me that I wasn't allergic so I didn't have to go gluten free so they wouldn't usually help me buy gluten free food and they definitely wouldn't cook gluten-free foods. But now I'm on my own and things have changed. I have been gluten free, to the best of my abilities (I am in college, living in a dorm, and can't cook my own food, so the chef has been sending over gluten free meals, but there is always the risk of CC) for about three weeks now. The only difference I have noticed is that my face looks clearer from the acne I have had for years. That's the only change I have noticed, but I never had a whole lot of symptoms anyway.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,084
    • Most Online (within 30 mins)
      10,442
    Melvac
    Newest Member
    Melvac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...