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Help! I'm Celiac, Pcos, With Severe Thyroid Problems Since Childhood!

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Hi, I just joined because my specialist, dr and naturopath are at their wits end.. they're all working together to try and regulate my thyroid which has been extreme hyper to hypo since grade 3! I'm not eating gluten at all but now my thryoid has gone totally off and is super low, my vitamin d borders on rickets and my iron will not absorb. They're convinced somehow my celiac is out of control and blocking abosorption.. I'm even drinking oj when I eat red meat to help with absorption (I was a long time vegetarian and am not enjoying the red meat thing but it's necessary.. ). Just wondering if anyone has experienced this with their celiac and thyroid and if they have any advice.

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Welcome to the board. That doesn't sound fun at all. I have had big thyroid trouble since I went gluten-free too. I'm still not sure what caused it.

Have you tried going off dairy? It can be a big problem for celiacs, plus if you're digesting poorly opiate-like peptides from dairy can get across your gut and mess with your immune system.

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Have they done an endoscopy to see what's going on?

I can't do the celiac test.. last time I accidentally ate some chocolate that had gluten in, I had to run to the store to buy benedryll.. my throat was swelling up.. I am meeting with a GI soon to discuss options and a celiac specialist nutritionalist.

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Welcome to the board. That doesn't sound fun at all. I have had big thyroid trouble since I went gluten-free too. I'm still not sure what caused it.

Have you tried going off dairy? It can be a big problem for celiacs, plus if you're digesting poorly opiate-like peptides from dairy can get across your gut and mess with your immune system.

I never used to eat dairy, but I have been lately having a glass with dinner, my fiancee and his family drink a lot of it and I've picked up the habit.. Going to try going off it totally for a bit and see if it helps. I'm taking probiotics regularly to aid in digestion. but literally in a manner of weeks my thyroid goes from 50 times to high to 30 times to low. My specialist has never seen the like, and it only started happening a year ago and I've been gluten free for 3 years so it seems kind of odd. I had radioactive iodine in grade 12 after they gave up trying to regulate it when I was a kid and it balanced out for quite a while. My specialist figures I had celiac as a kid and that was why it was soo bad.. go figure lol

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I can't do the celiac test.. last time I accidentally ate some chocolate that had gluten in, I had to run to the store to buy benedryll.. my throat was swelling up.. I am meeting with a GI soon to discuss options and a celiac specialist nutritionalist.

If you have Celiac and been diagnosed and gluten-free for a year or more, they may want to do an endoscopy to check and see if the gluten-free diet has helped or if there is still damage. You wouldn't have to go off your diet as they want to see if the diet has helped.

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If you have Celiac and been diagnosed and gluten-free for a year or more, they may want to do an endoscopy to check and see if the gluten-free diet has helped or if there is still damage. You wouldn't have to go off your diet as they want to see if the diet has helped.

darn.. I was hoping to avoid it... my friend just had it and I've heard horror stories!!

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If you have Celiac and been diagnosed and gluten-free for a year or more, they may want to do an endoscopy to check and see if the gluten-free diet has helped or if there is still damage. You wouldn't have to go off your diet as they want to see if the diet has helped.

Exactly.

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