Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Wondering...

jess1

Recommended Posts

jess1 Newbie
jess1
Posted

Hi everyone! I am new here, and I was just wondering if I could have Celiac disease...I understand none of you could actually tell me this for sure, but I have a lot of the symptoms, such as constipation, fatigue, headaches, I occasionally have stomach aches or bloating...My reason for asking is I have Hashimoto's hypothyroidism, and I've been reading a lot about how the 2 can be connected, although my doctor has never mentioned this. I am still tired despite my thyroid levels being in a good place (last time my TSH was 1.9, and my TPO antibodies are pretty high, over 2000 last time they were checked) I am going to see an MD on Thursday the 22nd who tries to use natural healing before giving meds and the lady that recommended him to me told me he would probably tell me to give up gluten and dairy...ahhh! what will I eat?? But I will try if it might make me feel better...The funny thing is I am reading a book about gluten intolerance/Celiac disease and it says one of the symptoms for babies is chronic ear infections. I had those, and I was pretty tired as an adolescent and I have had headaches for as long as I can remember. I had really bad acne, so bad a dermatologist put me on Accutane and I've had white spots on a few of my teeth since I was young...I'm just wondering if eating gluten could be the culprit. Any advice or feedback or similar stories would be greatly appreciated!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Hi everyone! I am new here, and I was just wondering if I could have Celiac disease...I understand none of you could actually tell me this for sure, but I have a lot of the symptoms, such as constipation, fatigue, headaches, I occasionally have stomach aches or bloating...My reason for asking is I have Hashimoto's hypothyroidism, and I've been reading a lot about how the 2 can be connected, although my doctor has never mentioned this. I am still tired despite my thyroid levels being in a good place (last time my TSH was 1.9, and my TPO antibodies are pretty high, over 2000 last time they were checked) I am going to see an MD on Thursday the 22nd who tries to use natural healing before giving meds and the lady that recommended him to me told me he would probably tell me to give up gluten and dairy...ahhh! what will I eat?? But I will try if it might make me feel better...The funny thing is I am reading a book about gluten intolerance/Celiac disease and it says one of the symptoms for babies is chronic ear infections. I had those, and I was pretty tired as an adolescent and I have had headaches for as long as I can remember. I had really bad acne, so bad a dermatologist put me on Accutane and I've had white spots on a few of my teeth since I was young...I'm just wondering if eating gluten could be the culprit. Any advice or feedback or similar stories would be greatly appreciated!

Although there is much I would reply about, but one point you made jumps out at me. Accutane has been attributed to Crohn's Disease. Have you looked into that arena?

Open Original Shared Link

Open Original Shared Link

Request from your primary doctors a Celiac Panel (blood test). But continue to eat gluten until you have exausted all forms of testing...if you feel that's you direction.

AND Welcome! :D

jess1 Newbie
jess1
Posted
  • Author

I have heard that (tv commercials mostly) but when I look up symptoms the only ones I have are Constipation and fatigue (both of which are hypothyroid symptoms also) I thought gluten could be the culprit because I have bad headaches/sinus issues, hypothyroid (no one else in my family has this and they say its hereditary) and the fatigue and constipation. And I've heard that gluten can lead to autoimmune diseases such as Hashimoto's.

Lisa Mentor
Lisa
Posted

I have heard that (tv commercials mostly) but when I look up symptoms the only ones I have are Constipation and fatigue (both of which are hypothyroid symptoms also) I thought gluten could be the culprit because I have bad headaches/sinus issues, hypothyroid (no one else in my family has this and they say its hereditary) and the fatigue and constipation. And I've heard that gluten can lead to autoimmune diseases such as Hashimoto's.

The current research is leaning toward Celiac as being part of a spectrum disease/disorder, ranging from a gluten allergy, sensitivity, Celiac and Refractory Sprue at it's most severe condition.

Although your family members may not have been diagnosed with Celiac, they might have had other associated disorders, and the Celiac was not recognized at the time. Awareness is very new and to the medical field as well.

Many members here fall within that spectrum. I would suggest you get tested if you feel gluten could be your issue.

Here is some information that might be helpful:

Open Original Shared Link

jess1 Newbie
jess1
Posted
  • Author

Thanks for the info. Just something I've been wondering about since my thyroid levels are ok, but I still have symptoms, and I've read a lot of info on people with thyroid disease feeling much better after starting a gluten free diet.

jess1 Newbie
jess1
Posted
  • Author

And my grandma on my mom's side is a type 2 diabetic, my mom has some arthritic and weight issues and headaches, and I think she takes a anti-depressant, my grandma's dad had colon cancer.

beachbirdie Contributor
beachbirdie
Posted

Hi everyone! I am new here, and I was just wondering if I could have Celiac disease...I understand none of you could actually tell me this for sure, but I have a lot of the symptoms, such as constipation, fatigue, headaches, I occasionally have stomach aches or bloating...My reason for asking is I have Hashimoto's hypothyroidism, and I've been reading a lot about how the 2 can be connected, although my doctor has never mentioned this. I am still tired despite my thyroid levels being in a good place (last time my TSH was 1.9, and my TPO antibodies are pretty high, over 2000 last time they were checked) I am going to see an MD on Thursday the 22nd who tries to use natural healing before giving meds and the lady that recommended him to me told me he would probably tell me to give up gluten and dairy...ahhh! what will I eat?? But I will try if it might make me feel better...The funny thing is I am reading a book about gluten intolerance/Celiac disease and it says one of the symptoms for babies is chronic ear infections. I had those, and I was pretty tired as an adolescent and I have had headaches for as long as I can remember. I had really bad acne, so bad a dermatologist put me on Accutane and I've had white spots on a few of my teeth since I was young...I'm just wondering if eating gluten could be the culprit. Any advice or feedback or similar stories would be greatly appreciated!

What jumps out to me is the white spots on your teeth. You need to find out if you live in an area served by fluoridated water. Call your water company. Most people, because of widespread fluoridation, are now suffering from overdosing and kids raised in fluoridated areas are incurring what is known as dental fluorosis. It can be mild (white spots) to severe (brown staining or crumbling teeth).

With such high TPO antibodies, you could be experiencing discomforts related to inflammation. Did they test your TgAb (anti-thyroglobulin antibodies)? They really shouldn't give a Open Original Shared Link on TPO alone.

You mention your TSH, have they tested your free thyroid hormone (FT4 and FT3)? Many people have low hormone levels even with good TSH. If your FT3 is too low, you might still feel hypothyroid because that is the active form of hormone. T4 is only the "storage" form of thyroid hormone from which T3 is made (using the thyroid peroxidase enzyme); you may be one of those who do not convert T4 to T3 well, and it would help to know your levels of each.

Lots to look at, and it can sure be confusing! There are lots of people here with varied experiences who can help a lot. I recommend getting copies of all lab work that is done, and share your results. Folks can then give you ideas of things to think about and questions to ask your doc.

Welcome, by the way!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jess1 Newbie
jess1
Posted
  • Author

My TgAb were in the normal range ...43 0-60 is negative...I am taking 90mg of Armour thyroid which has both thyroid hormones. My Frees are both in the mid-higher range. I feel like my thyroid levels are as good as they are going to get...Getting more T3 was my 1st attempt at still being tired. Now I have been finding some correlations between Celiac and Accutane...something I will bring up to this new dr on Thurs.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,084
    • Most Online (within 30 mins)
      10,442
    Melvac
    Newest Member
    Melvac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...