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New Symptoms


debnak

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debnak Newbie

I was diagnosed with Celiac a few years ago but have not been strict with my diet. My symptoms have been more or less "silent" until yesterday. The area around my mouth is red, cracked and on fire. My lips feel like they are extremely chapped and nothing will relieve the pain. Could this be a new symptom of being a Celiac?

I know I should follow the diet but it's just SO hard and I don't do well with change AT all. Please help!?

Thank you,

Deb


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Metoo Enthusiast

After several weeks its really not that hard. It takes like 4-6 weeks if you are vigilant and watchful about what you are eating, you will learn to do it.

Not all good things in life are easy. If you want to feel better you need to make some effort.

kwylee Apprentice

There's no way around this. You're going to have to follow the diet.

love2travel Mentor

I agree that you absolutely MUST follow the diet. No cheating. Even if you do not feel sick (I didn't feel sick at all from eating gluten) just think of the internal damage this could be causing. You do not want to deal with related illnesses in the future. When I was diagnosed I was shocked but that quickly faded when I realized the gravity of the situation. I am responsible for the health of my body to the best of my ability and want to live a long happy life with my husband. We both need each other. :D

You must take control of the situation - it obviously unfortunately has you under control. It may have to be one meal at a time, then one day at a time, then a week, then a month, until it becomes second nature. You are right - it is not easy but it certainly would be easier to change your diet than to suffer from a dreadful cancer that could possibly have been prevented.

Please, for your own sake and that of your family, stop ingesting the poison that could wreak havoc to your insides! Please also know that we truly are here for you. We may not be able to physically give you a hug, but here is a cyber one for you for this day. :D

sada74 Newbie

I know I should follow the diet but it's just SO hard and I don't do well with change AT all. Please help!?

Deb try to remember that your more important then the food you SHOULDN'T be eating! Respect & love yourself & the ones that love you enough to make kind decisions in the matter of food. STOP hurting yourself!

And have a nice day ;-)

debnak Newbie

After several weeks its really not that hard. It takes like 4-6 weeks if you are vigilant and watchful about what you are eating, you will learn to do it.

Not all good things in life are easy. If you want to feel better you need to make some effort.

Thank you!

debnak Newbie

Thank you ALL so much. I really appreciate the honesty and support! I had a gluten free day today :) I'm going shopping tomorrow so I hope I can find something gluten-free to eat while I'm out.

Thanks again,

Deb


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    • Russ H
      HI Nancy, In your first post, you said that you were diagnosed by biopsy and blood test - this is what I was referring to: the blood test is for antibodies that are made during active disease. After a period on a strictly gluten-free diet, the antibodies return to low level. It is a good way of checking for accidental exposure if symptoms persist. If you are reacting to foods that don't contain gluten, you may be reacting to something else. Alternatively, a condition called SIBO is common in people with coeliac disease, where there is an overgrowth of bacteria in the small intestine. This can be tested for with a simple breath test. The main treatment is with a course of antibiotic. Small Intestinal Bacterial Overgrowth (SIBO)
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      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
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      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
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    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
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