Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Where Your Contribution Counts!
    eNewsletter
    Support Us!

Help On How To Deal With A New Shrink For My Teenager


Kurzemiete

Recommended Posts

Kurzemiete Explorer

Hi everyone. Both my daughter and I have tested negatve for celiac on the blood panel however I am as sure as is possible that we have it (perhpas in very mind form) or more likely, gluten sensitivity. There is a long history for me with neuro symptoms, i have firbro and epbsein barr, lyme came back indefinite 2x.

On now to my daughter, and I am sorry there may not be a lot of details as I am very short on time. Any suggestions would be GREATLY appreciated.

She has had GI issues for years. terrible pains, sweats and D following it.

The pediatric gatroentestinologist after SPEAKING to us said she probably has IB. Oh boy, did we feel 'enlightened'. How typical of a regular dorctor to be so general, although this one was a specialist. Anyhow, this was several months ago.

My daughter is NOT gluten free, when she is out of the house she gets it. The thing is because I have almost (but not entirely) eliminated it at home her terrible GI Symptoms have for the most part vanished, she just goes back to the old habits.

Our family DR xwrote on the referral papar schitsofrenia(sp), oh gosh! I have a friend who is a neurologist and he said she DOES NOT have it. I have read that gluten DOES cause it and therefore it makes very logical sense that my daughter is expereincing hearing whispers as a glutening reaction. She is almost 16.

Some one heard of this and we are in essence made to go to this doctor not of our volition...

I will come armed with books and articles which link gluten to neurological disturbances.

I hope very much she has an open mind and will not force any pill on my child.

(even if this is the case I will very doubtfully allow her to take them...)

It makes no sense that unless ALL GLUTEN which if i am not mistaken takes many months to leave the body, is GONE FROM THE BODY, to discount this, in light of her symptoms and my history.

PLEASE if you have ANY AT ALL SUGGESTIONS I am very much grateful

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tom Contributor

A 16yo will get gluten if she wants it. Does she not credit gluten-free w/ fewer GI issues?

About a decade ago, I was 99% gluten-free & had auditory hallucinations every day. More like overhearing pointless things when no one around than thinking God told me to be President or some insidious Son of Sam type of commands from the neighbor's dog.

It went away pretty quickly once I was 100% gluten-free.

So it's her choice.

(Not that I'm certain it'll work on the aud hallu, but w/out 100% gluten-free the GI probs likely return)

Link to comment
Share on other sites
MitziG Enthusiast

You need to sit down and have a serious talk with your daughter about the kind of life she wants to have. It can be one full of drug change after drug change, electric shock therapy, even institutions if she does not make a commitment to the diet. Don't expect her dr or therapist to think you are anything but a controlling mother who won't face reality. The reality is, if she goes gluten-free, she will PROBABLY not need any of the above. If she does not, she probably will. 16 is mature enough to hear the hard facts. The schizo/gluten connection is very well documented- bost many drs don't care to read the documents!

Link to comment
Share on other sites
nora-n Rookie

also, .yme is known to cause auditory halluzinations. And, people with lyme probably must stay gluten free until they are treated and well (that is if the gluten sensitivity is from lyme) maybe she inherited lyme disease.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Help Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Braver101's topic in Coping with Celiac Disease
      2

      Constant sweating with celiac disease

    2. - Scott Adams replied to Julie Riordan's topic in Traveling with Celiac Disease
      2

      Any ideas for travelling

    3. - trents replied to Julie Riordan's topic in Traveling with Celiac Disease
      2

      Any ideas for travelling

    4. - trents replied to Braver101's topic in Coping with Celiac Disease
      2

      Constant sweating with celiac disease

    5. - Julie Riordan posted a topic in Traveling with Celiac Disease
      2

      Any ideas for travelling


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,489
    • Most Online (within 30 mins)
      7,748

    Ronnieb8675
    Newest Member
    Ronnieb8675
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'm sorry to hear about what you're going through. It must be really frustrating and uncomfortable. Have you talked to your healthcare provider about these sudden sweating episodes? It might be helpful to discuss this with them to rule out any other underlying issues or to see if there are specific strategies or treatments that can help manage this symptom. Additionally, staying hydrated and wearing breathable clothing may provide some relief. 
    • Scott Adams
      I am not sure where you are going, but we have articles in this section which may be helpful: https://www.celiac.com/celiac-disease/gluten-free-travel/ 
    • trents
      There are supplements available that can help breakdown minor amounts of gluten such as you might experience with cross contamination when dining out and you order gluten free items from a menu. But they will not help when larger amounts of gluten are consumed. One such product that many on this forum attest to as having helped them in this regard is GliadinX. The inventor of GlidinX is one our forum sponsors so you should know that.
    • trents
      There is such a thing, believe it or not, called gluten withdrawal. Gluten has addictive properties similar to opiates. I know it sounds bizarre but research it. Also, are you compensating for the loss of vitamins and minerals you were getting from the FDA mandated fortified wheat flour products you were formerly consuming?
    • Julie Riordan
      Just wondering can anyone help me out.heading on holidays and don’t really know what expect.if I get glutened are there tablets that you can take
×
×
  • Create New...