Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Day 1


amcam17

Recommended Posts

amcam17 Rookie

Hello Everyone,

I'm new to all of this so I have no idea what to do. Yesterday I had an endo procedure done to confirm Celiac. Well,it turned out that I have Celiac. I have no idea where to go from here. All I know is I'm beyond fed up with feeling crummy all of the time. I have nothing really to go off of on what I can and can't eat all I know is my diet has to change today. Someone please help guide me, I'm scared and all I know is it is a huge life change.....

~Amie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ninja Contributor

Hi Amie – Welcome to the board!

Here's an awesome thread that may help you: "Newbie Info 101"

Ask as many questions as you need/want to, we're all here to help! It will get easier, especially once you start to feel better. :)

GFinDC Veteran

Welcome Amy,

It can be kind of scary at first. After while you will find there are lots of foods to eat though. Staying away from dairy and soy may help you adjust. Cooking your food at home from whole ingredients is also very helpful. Limiting sugar and starch can help too. Many people end up with a lot of bloating at first due to the bacterial changes in the gut. Different food for you equals different food for them too. So limiting sugars and starches can help by discouraging overgrowth of gas making bacteria. Taking probotics and digestive enzymes may help too.

Think about eatting a simple diet of whole foods, rather than lots of processed foods. If you can find foods with 3 or fewer ingredients that is usually a good thing. As long as though ingredients aren't wheat, ray, barley or oats. Not all of us react to oats and soy but some do.

Dairy is often a problem but you may be able to eat it after you have healed a while.

Remember to bring your towel and don't panic. (Hitchhikers)

More threads to consume: :)

FAQ Celiac com

https://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Celiac Newbie Info 101

What's For Breakfast Today?

What Did You Have For Lunch Today?

What Are You Cooking Tonight?

Mateto Enthusiast

Hi!

You are SO fortunate to have had an endoscopy to find this out. Welcome on the board, and watch out for triticale too. It's a cross of wheat and something else that I can't remember right now, but it's 100000% pure sickening gluten.

jigsawfallingintoplace Newbie

Welcome to the forum:P

...and welcome to the start of your brand new life.

Iam nearly 4 months in and apart from the odd crash and mistake, my life is better than I couldever imagine when I was feeling as you put it 'crummy all the time'.

Everyone on here is lovely and some are very wise and experienced at all this gluten-free stuff so read, read and some more.

I have found that sticking to food as nature intended has been the best start for me. So I am eating roast chicken, potatoes - jacket, boiled, mashed or chipped, veggies galore (although I am a fan of frozen pease lol) . I eat salmon, beef, all the meats really. I eat crisps (read the ingredients as many are naturally gluten-free) and I have the odd treat like a choc bar which i check is gluten-free (many are).

On the whole, I find I have to be more organised - can't just say sod it I will have a take away and not cook tonight lol but its not that difficult.Once this option for pizzas and chinese etc was gone I kinda just accepted it really - it's easier than trying to lose weight and being tortured with the should I or shouldnt I school of thought. The answer is well if it makes me sick then I cant have it and that is that.Infact I really dont want it as I remember how bad I feel if I eat gluten stuff.

A word on the dairy - yes, stay of it for at least a month. goats cheese and sheep cheese feta were fine for me but other stuff including yoghurt of all things made me feel rotten. Your tummy just can't handle dairy until it hashad a chance to heal and the syptoms can be very similar to gluten so it is confusing. I am just starting to have cheese and milk now and I seem to be okay.

Eat loads of fresh veg and salad and fruit if you can. I love olives and herby salads so I am really enjoying salads again.

I suggest you don't eat out for a bit until you have built up some confidence - it just isnt worth it. I ate out in the early days and guessed or was given poor info. I was ill as a result. Now I know what to ask and I double check. I dont care about being a pain in the butt because I do not want to be ill its as simple as that.

Bit by bit you will get used to it and the change in your health will be marked - I can virtually guarantee it.

wishing you lots of luck (((hugs)))

Jigsaw xx

Cara in Boston Enthusiast

Welcome -

We have been gluten free for 1 year and three months. It was hard and overwhelming at first, but once you start feeling better, you get really motivated to get it right. Now it is a piece of cake and I really don't miss out on much.

Here's what NOT to do: Don't just go to the store and buy all the Gluten Free food you see - you don't really need it and it is mostly just empty, starchy calories. We bought it all - bagels, waffles, bread, crackers, pizza crusts, etc. etc. and I quickly put on 20 pounds.

After a while, I stopped craving these food (and for the most part, they really were not as good as the original, so why bother?) are started concentrating on cooking really delicious, fresh, naturally gluten free food. Since we no longer go out to eat as much, it sort of balanced out in our budget. Now I buy really good oils, cheeses, etc. and really enjoy my food. The whole family is eating better and we all feel better because of it.

Hang in there - it gets easier with time and practice.

Cara

sharilee Rookie

Welcome! I was diagnosed with celiac late February 2012. It is very overwhelming at first. But it does get easier with time. When I was first diagnosed I took my list of ingredients to watch for and checked everything. Would spend a long time shopping. Now I have learned the ingredients to watch for and it is easier and quicker to read the labels. At first (as others have said) it is best to avoid dairy and try to eat natural foods not processed foods while your body heals.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



txgal748 Apprentice

Hi! Amie,

My neurologist told me I have Celiac disease May 21st because my IgA was 101. The gastroenterologist decided on a celiac panel to check for the celiac genes.

Anyhow, fortunately I am a Mexican. Traditional Mexican food uses very little flour. Flour tortillas are more of a modern Mexican food. As previous people have posted cooking meals from all natural ingredients is great. One thing to be mindful of in the beginning is condiments. You have to read labels. Worstesire sauce, Heinz 57, soy sauce, BBQ,sauce, and other marinades have gluten. Fortunately you can find substitutes for these such as gluten free soy sauce and BBQ sauce.

Chin up, at least with celiac you don't have to take any medications with terrible side effects.

Txgal

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to alimb's topic in Coping with Celiac Disease
      1

      How to keep water down?

    2. - alimb posted a topic in Coping with Celiac Disease
      1

      How to keep water down?

    3. - PixieSticks replied to PixieSticks's topic in Super Sensitive People
      2

      Working in a kitchen with gluten?

    4. - BoiseNic replied to BoiseNic's topic in Dermatitis Herpetiformis
      11

      Skinesa


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,548
    • Most Online (within 30 mins)
      7,748

    Bissy
    Newest Member
    Bissy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Get someone to take you to the local ER and get some IV fluids on board. You already are or are at risk for serious dehydration. If you have no one who can transport you or you are too weak to make the trip in a car, call 911.
    • alimb
      Hi, I don't know if this is the right topic, but I've been glutened and I'm having a horrible time trying to keep even a sip of water -or any liquid- down. I've gotten to the point of which I'm having dry-heaving episodes because there's nothing left to vomit, and it's incredibly painful and I'm so weak and lightheaded as a result. If I try even taking the tiniest sip of water, doesn't matter how long after I vomit, I start feeling nauseous and I no longer have the energy to try fighting keeping it down. Is there anything I can do to try keeping it down? I've taken prescribed zofran and dicyclomine already.
    • PixieSticks
      Hi yes! I was diagnosed 10 years ago through a biopsy. I’ve been gluten free ever since but no one I’m around is gluten free. I sometimes wore a surgical mask in the kitchen. but I believe particles were still getting through. I’ll definitely look into n95 instead. thanks for the reply. 
    • BoiseNic
      Ya I used to react to iodine, but it doesn't bother me anymore after strict adherence to a gluten-free diet for many years now. I am happy to report that for the first time ever in my life, a probiotic formula is not making me break out, but actually seems to be helping. The strains in this formula have been specifically tested to help with skin issues. It is gluten and dairy free also. 
    • knitty kitty
      @Whyz, I take a combination of Thiamin (Benfotiamin), B12 Cobalamine and Pyridoxine B6 for my pain and headaches.  Really works well without hurting the digestive tract.  Riboflavin B2 also helps with migraines.  Most newly diagnosed people have vitamin and mineral deficiencies.  Check with your doctor and nutritionist.   If you follow the updated gluten challenge guidelines, you can wait until two weeks (minimum) before your appointment, then eat lots of gluten, like six slices of gluten containing bread or "name your poison".   Here's the Updated Gluten Challenge Guidelines: Recommended intake of gluten should be increased to 10 grams of gluten per day for at least two weeks. Or longer. While three grams of gluten will begin the immune response, ten grams of gluten is needed to get antibody levels up to where they can be measured in antibody tests and changes can be seen in the small intestine.   Keep in mind that there are different amounts of gluten in different kinds of bread and gluten containing foods.  Pizza crust and breads that are thick and chewy contain more gluten than things like cake and cookies.   References: https://www.beyondceliac.org/celiac-disease/the-gluten-challenge/ And... Evaluating Responses to Gluten Challenge: A Randomized, Double-Blind, 2-Dose Gluten Challenge Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7878429/?report=reader  "In our study, limited changes in Vh:celiac disease (villi height vs crypt depth - aka damage to the small intestine)  following 14-day challenge with 3 g of gluten were observed, in accordance with Sarna et al.  While the 3 g dose was sufficient to initiate an immune response, as detected by several biomarkers such as IL-2, the 10 g dose was required for enteropathy within the study time frame. Based on our data, we would suggest that gluten challenge should be conducted over longer durations and/or using doses of gluten of ≥ 3 g/day to ensure sufficient histological change can be induced." Keep us posted on your progress!
×
×
  • Create New...