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Conflicting Responses From Doctors

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Hi Everyone,

I recently had labs done to see if I have Celiac Disease.

My labs came back as:

anti-endomysial <1:10

Gliadin IGG, ABS. 61 (Hi)

Gliadin IgA.Abs. 130 (Hi)

My internist told me I had celiac disease from these results and referred me to the GI specialist. The GI specialist, without even reading my medical history or asking questions told me she highly doubts I have Celiac Disease because of my anti-endomysial results being normal. Then she referred me to an infectious disease doctor for my fatigue..... Is it time to get a new GI or could she be correct that I don't have celiac?? So confusing!

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Hi Everyone,

I recently had labs done to see if I have Celiac Disease.

My labs came back as:

anti-endomysial <1:10

Gliadin IGG, ABS. 61 (Hi)

Gliadin IgA.Abs. 130 (Hi)

My internist told me I had celiac disease from these results and referred me to the GI specialist. The GI specialist, without even reading my medical history or asking questions told me she highly doubts I have Celiac Disease because of my anti-endomysial results being normal. Then she referred me to an infectious disease doctor for my fatigue..... Is it time to get a new GI or could she be correct that I don't have celiac?? So confusing!

Uh well im just gonna say if my doctor did that i would definitely give him or her a piece of my mind. It seems that doctor clearly didnt want to deal with you if that is all that was done and she tossed you out the window. No CBC to even look and see if your body is showing the most basic level response to fighting infection? I would definitely go to another doctor who will listen and be thorough and take the time to assure you they are doing their best and not just tossing you to the wind.

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I think your internist is right. It is up to you whether you want or need to have the biopsy or not. Do be sure to tell your internist what happened with the GI ASAP. He may want to refer you to someone different. Positive blood work is positive and you would have a chance of a false negative with the biopsy even with a different doctor so know you need the diet no matter what the results.

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EMA can still show negative- your two positive tests warrant a diagnosis on their own. Get the biopsy. And when it is positive go wave it in that doctors face. Just kidding. Kind of. Maybe not....

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