Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Is It Normal For Symptoms To Worsen After gluten-free?


Will29

Recommended Posts

Will29 Rookie

Hi all I have now been gluten free for two weeks, whilst I have noticed an improvement in many symptoms, I am now having really bad joint pain and tingling fingers, also getting a rash thing too, is it normal for symptoms to be erratic this early? I would assume they would get no worse? I don't think I have eaten gluten, however share same butter etc could that be a problem?

Also I read about a two week test, give up gluten and then go back on after two weeks and see what happens, is that a safe/wise test to do?

Thanks.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

If you share butter and condiments with people who use gluten bread and stick their knife back in the butter or condiment then you are getting gluten. You have to have your own clean butter, peanut butter, jelly, and comdiments. Things like Mayo are commonly used and the knife is stuck back in the jar so there is gluten there. That is probably why you still feel lousy and are having symptoms. You need your own toaster and colander too. Cross contamination is a huge issue for those of us avoiding gluten.

So you have really been gluten light for 2 weeks.

If you are doing a gluten challenge, you have to get rid of all sources of gluten and then re-introduce it.

You can try to get your diet really gluten free for another two weeks and then do a challenge if you like.

I've seen people recommend staying off of gluten for anywhere from 2 weeks to 3 months for a gluten challenge, but basically it is up to you. It takes longer than 2 weeks to figure out how and where gluten is hiding, for example, in the butter you share with others. So for that reason I think some recommend being gluten free longer.

Yes, to your question about recovery being erratic for some people. For example you got great improvement from going gluten light, but your body is still telling you that you are getting gluten what with the joint pain etc. Also, some people experience increased sensitivity once they go gluten free...meaning smaller and smaller amounts of gluten will cause reactions and symptoms. Some people notice shockingly severe symptoms on getting cross contamination once the system is clean of gluten. That's when they know they will stay gluten free for life and they become more vigilant about cross contamination.

Do some reading about cross contamination...it will make all the difference if you are trying to be gluten free.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,177
    • Most Online (within 30 mins)
      7,748

    a-ball
    Newest Member
    a-ball
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      That's a good idea. It can at least establish the potential for developing celiac disease and can help people decided between a celiac diagnosis and NCGS (Non Celiac Gluten Sensitivity). And it doesn't require a gluten challenge and can be had without a doctor's prescription.
    • awright24
      I have my endoscopy on Thursday, has anyone had the procedure done with a cough? I don't have a continuous cough, but every now and then throughout the day I have sort of coughing episodes. They are a lot better than they were but I called endoscopy and they said to speak to my gp and my gp got back to me and said I need to ask endoscopy if its ok if I have it done still.  Help!
    • MMH13
      Thank you so much, everyone. For the moment my doctor just has me taking iron but hopefully we can reconnect soon. I'm going to look into genetic testing, too. Great advice all around and I appreciate it--and you can bet I'm going off the PPIs!
    • Eldene
      I walk fast for fitness, 4 to 6 km per day. I am also 74 years old. Apart from the Celiac challenge, my lifestyle is healthy. I had a sciatiac nerve pinching under my one foot, with inflamation in my whole shin. It was almost cured, when the other shin started paining and burning. I do stretches, use a natural cooling gel and rest my feet. Can Celiac cause muscle pains/inflamation, or is it just over-excercising?
    • LovintheGFlife
      I recently started shopping at a nearby Trader Joe's store. I was surprised at the number and variety of (healthy) gluten-free options sold there. I must admit their low prices are also quite tempting. However, I am curious as to the labeling on all their packages. While none of their products are certified as gluten-free, many are identified as 'GLUTEN FREE' on the packaging. Are these items safe for celiacs? Has anyone tried Trader Joe's products and have there been any adverse reactions?
×
×
  • Create New...