Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

I'm Having And Endoscopy Pretty Soon To Check For Barret's Esophagus

MoMof2Boyz

Recommended Posts

MoMof2Boyz Enthusiast
MoMof2Boyz
Posted

Hi, I am getting the endoscopy done because of really bad reflux and see on my info sheet that it will go through the esophagus, stomach and duodenum(first portion of the small intestine) is the duodenum the part of the intestine that is biopsied for celiac?

should I ask for a celiac biopsy at the same time? does anyone know if it would be a separate charge? my blood test was negative but I know from reading here that a lot of people have a negative blood test with a positive biopsy. I have Hashimoto's(autoimmune disease)which can increase the likelyhood of having it. for the record, the only things that have been helped with the gluten-free diet have been heartburn and some gas. I have been eating gluten for a few months now..mostly lunch and dinner, breakfast is gluten-free. Any advice is appreciated.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ChrisMathis Newbie
ChrisMathis
Posted

Hi, I am getting the endoscopy done because of really bad reflux and see on my info sheet that it will go through the esophagus, stomach and duodenum(first portion of the small intestine) is the duodenum the part of the intestine that is biopsied for celiac?

should I ask for a celiac biopsy at the same time? does anyone know if it would be a separate charge? my blood test was negative but I know from reading here that a lot of people have a negative blood test with a positive biopsy. I have Hashimoto's(autoimmune disease)which can increase the likelyhood of having it. for the record, the only things that have been helped with the gluten-free diet have been heartburn and some gas. I have been eating gluten for a few months now..mostly lunch and dinner, breakfast is gluten-free. Any advice is appreciated.

I was diagnosed with Barrett's four years ago and Hashimoto's 11 years ago. I don't know if there will be a separate charge or not but like you I'm due for an endoscopy for my Barrett's and I've just had negative blood test for Celiac but I intend to ask them to biopsy for Celiac just to either rule out or confirm. From what I've read I think you need to be eating gluten before you have the biopsy but probably somebody on the boards will be better able to advise you on that as I'm just learning about this disease. Hope you get the answers you're looking for and feel better soon.

MoMof2Boyz Enthusiast
MoMof2Boyz
Posted
  • Author

I was diagnosed with Barrett's four years ago and Hashimoto's 11 years ago. I don't know if there will be a separate charge or not but like you I'm due for an endoscopy for my Barrett's and I've just had negative blood test for Celiac but I intend to ask them to biopsy for Celiac just to either rule out or confirm. From what I've read I think you need to be eating gluten before you have the biopsy but probably somebody on the boards will be better able to advise you on that as I'm just learning about this disease. Hope you get the answers you're looking for and feel better soon.

Thank you, I think I will go ahead and ask the GI to do it, gonna be in that area anyway right? :)and I have been eating gluten 2 out of 3 meals(oh and snacks too) for awhile now but hopefully someone else can chime in.

How was your endoscopy and how did you feel after? I"ve never had one done or been "put out" Apparantly I have reaaaaaaaaally bad reflux and have to take nexium for the rest of my life. :'(

ChrisMathis Newbie
ChrisMathis
Posted

Thank you, I think I will go ahead and ask the GI to do it, gonna be in that area anyway right? :)and I have been eating gluten 2 out of 3 meals(oh and snacks too) for awhile now but hopefully someone else can chime in.

How was your endoscopy and how did you feel after? I"ve never had one done or been "put out" Apparantly I have reaaaaaaaaally bad reflux and have to take nexium for the rest of my life. :'(

I was really nauseated after my first endoscopy and throwing up a lot because of an adverse reaction to the sedative that they used but other than that I was fine. You don't feel anything from the biopsies. I had to have my esophagus dilated due to strictures. Yes I too have terrible reflux and like you will have to take Nexium for life :( According to my husband who was with me in recovery after my first endoscopy I would wake up briefly ask how it all went then be sick and immediately fall asleep for a few minutes then wake up and ask the same question all over again..ha..ha..he said this went on for about twenty mins. For each subsequent endoscopy they used a different sedative and I've never had the same reaction thank goodness.

I'm not sure how much gluten you should be eating but I think as long as you've been eating some daily and not been completely gluten free you should be fine. Maybe someone else can answer that for sure.

shadowicewolf Proficient
shadowicewolf
Posted

<.< you don't have to take nexium ya know. After a while, it does NOTHING. I was on it for 6 months or so and as time progressed it stopped working. I went off of it and now can control my GERD through my diet(no grease, no fatty foods, no spicy). Do i still get acid reflux? sure, but i can maintain it better than when i was on those meds. At any rate, it isn't good to stay on the same medication for long periods of time, your body gets used to it and stops working. /end nexium induced rant.

At any rate, I dispised the seditive they used one me. It made me feel like the room was spinning. I also don't wake up very well from them, so generally i have to stay longer than a normal person does.

MoMof2Boyz Enthusiast
MoMof2Boyz
Posted
  • Author

<.< you don't have to take nexium ya know. After a while, it does NOTHING. I was on it for 6 months or so and as time progressed it stopped working. I went off of it and now can control my GERD through my diet(no grease, no fatty foods, no spicy). Do i still get acid reflux? sure, but i can maintain it better than when i was on those meds. At any rate, it isn't good to stay on the same medication for long periods of time, your body gets used to it and stops working. /end nexium induced rant.

At any rate, I dispised the seditive they used one me. It made me feel like the room was spinning. I also don't wake up very well from them, so generally i have to stay longer than a normal person does.

Yes I do need to clean up my diet, I find it hard to give up my one cup of coffee. :) I must have silent reflux cause I don't feel the "backsplash" very often...so in that case how would I know whatever I'm trying is working??

shadowicewolf Proficient
shadowicewolf
Posted

If it isn't a constant and if you still only have it occasionally, its probably doing its job.

Don't mind me, i was on a several meds that never worked over that time peroid so i had it nonstop.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ChrisMathis Newbie
ChrisMathis
Posted

If it isn't a constant and if you still only have it occasionally, its probably doing its job.

Don't mind me, i was on a several meds that never worked over that time peroid so i had it nonstop.

My diet is very restricted because of the Barrett's and I've tried coming off of the Nexium and have tried a few different PPI's and natural remedies but nothing works for me unfortunately. My GE is talking surgery for the large hernia but I'm not at all keen on that because the success rate is not that high and like you I don't tolerate sedation well at all. I'd rather stay on a PPI than risk my Barrett's progressing to cancer :(

shadowicewolf Proficient
shadowicewolf
Posted

My diet is very restricted because of the Barrett's and I've tried coming off of the Nexium and have tried a few different PPI's and natural remedies but nothing works for me unfortunately. My GE is talking surgery for the large hernia but I'm not at all keen on that because the success rate is not that high and like you I don't tolerate sedation well at all. I'd rather stay on a PPI than risk my Barrett's progressing to cancer :(

Well then, by all means, continue :)

Hernias aren't fun though :/

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,084
    • Most Online (within 30 mins)
      10,442
    Melvac
    Newest Member
    Melvac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...