Jump to content
  • Sign Up

Miscellaneous Labs For My 4Yo

Rate this topic

Recommended Posts

I'm feeling a bit blue this morning for myself and my little boy. I can't seem to focus on my work at all. This is part rant and pity party and part a question about his labs over the years and seeking any input. To give a summary of our situation, I'm sure my 4yo has celiac (small stature, attention and motor problems, lethargy, anemia, and now horrendous daily diarrhea directly related to eating gluten-one more week until biopsy). I have celiac which just got diagnosed.

My son hasn't had a positive celiac blood test. Some people on the board said the test recently given wasn't complete but he's going to be gluten-free either way and I'm 95% sure that will help. He's getting the endo in a week. But I wanted to go back over some of his labs just to see about his other celiac tests. Realized the first round at age 1.5 was actually just a stool test for fats (grrr).

Anyway, some things have shown up over the years:

-Extra protein in the urine

-Anemia (I know that can be a celiac related issue)

-High esinophils

-Low neutrophils

-Low creatinine

-High BUN/Creatinine ratio

I just feel like the multiple doctors we've seen have looked at this and sort of thought, well he's not in distress or maybe he just had a cold. But my son is so tiny and I just feel like someone should have cared. For example low neutrophils can mean a severe autoimmune issue like leukemia, it can also be related to having the flu. Why didn't his doctor test again to make sure levels evened out? I just feel so sad and angry for my little boy, like it would take both of us being passed out on a gurney to get any doctor to think twice.

Any input would be appreciated.



Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now