Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Testing Advice Needed Please


melon-uk

Recommended Posts

melon-uk Rookie

I've just come back from my GP who has ordered a blood test for coeliac on friday morning. The problem is i've been gluten free since july, I said to her that I need to be eating gluten for me to have any anti-bodies and she said that they will still show up. What do I do? i'm pretty sure that it will come back negative.

Should i start eating regular bread for breakfast, lunch and dinner? (kind of joking here really). The last time I had any gluten I was quite ill and had stomach probs lasting for weeks.....

Any advice anyone?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

Can you see a doctor who isn't a moron? When the tests come back negative you can take a bunch of literature in with you, but a doctor probably won't respond well to an "I told you so" so I'm not really sure what else to say. I can't imagine any circumstances under which I would eat bread, I certainly wouldn't recommend it to someone else.

shadowicewolf Proficient

Blood tests would show nothing at this point. The only valid one i could think of is the genetic test.

1desperateladysaved Proficient

I had a positive blood test at 6 months grain. I figured out I was getting cross contamination. It turned out my buckwheat was processed on the same equipment as wheat and corn. You could take the test and see if it is positive. You can't trust it if it is negative though. I think there are many more blood tests then the antibody test. Someone else can make the list.

I hope you will get some definative answers, and mostly that you will feel better.

Diana

melon-uk Rookie

Thanx all, there is a small chance it could be positive (if it's celiac of course, though i know it's definitely gluten) as i know i've had some cross-contamination and a serious glutening in october. Last night in my internet meanderings I went to the Coeliac uk website and they have a group local to me who meet at the hospital and they specifically encourage people who are struggling to obtain a diagnosis to go along (they meet with gastroenterologists as well) so i'm going to contact them.

I'm feeling so much better since cutting out gluten but i know my body still has a way to go, though I can drink milk again now :)

I honestly don't know where I would have been if it hadn't been for all the folks on here, i've found out so much and read so many experiences similar to mine. It's been the most amazing help and I'm so grateful.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Russ H replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      8

      Celiac flare years after diagnosis

    2. - trents replied to HectorConvector's topic in Related Issues & Disorders
      356

      Terrible Neurological Symptoms

    3. - Aretaeus Cappadocia replied to HectorConvector's topic in Related Issues & Disorders
      356

      Terrible Neurological Symptoms

    4. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      356

      Terrible Neurological Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,063
    • Most Online (within 30 mins)
      10,442

    Francisco1007
    Newest Member
    Francisco1007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Russ H
      Bread has about 8 g of protein per 100 g, so a piece of bread weighing 125 mg contains 10 mg of gluten. Bread has a density of about 0.25 g/ml, so 0.5 ml of bread contains 10 mg of gluten - i.e. a bread ball 1 cm in diameter. I think it would be unlikely to ingest this much from throwing bread out for the birds.  
    • trents
      Sciatica came to mind for me as well. You might want to get some imaging done on your C-spine.
    • Aretaeus Cappadocia
      Maybe this is sciatica? When mine acts up a little, I switch my wallet from one back pocket to the other. this isn't a substitute for more serious medical help, but for me it's a bandaid.
    • HectorConvector
      OK so I just learned something completely new about this for the first time in years, that is REALLY WEIRD. One of my nerves that likes to "burn" or whatever is doing it every time I bow my head! I mean it is completely repeatable. Literally every time. Once my head goes beyond a certain angle *boom*. Nerve goes mental (lower right leg pain). What the hell. I've never seen a direct trigger such as this before that I can recall. The pain was the usual type I get from this problem - I suspect somehow the head movement was interrupting descending inhibition processes, causing the pain to leak through somehow.
    • Aretaeus Cappadocia
      I've only made this a couple of times but it's really easy and I love the flavor. If you can, use all of the ingredients to get the full palette of flavors. I use fresh or canned tomatoes and I don't worry about peeling them. If you don't have harissa, there are replacement recipes online. If you don't have the greens, I suggest adding a little chopped baby spinach or celery leaves to add a dash of green color to this red dish. Best eaten in first couple days because flavor tends to fade. Leftovers are still good, but not as vibrant. Ingredients 2 medium eggplants, partially peeled and cut into cubes (original recipe says 1 in, but I prefer 1/2 to 3/4 in) 2 tomatoes, peeled and crushed 4 garlic cloves, finely chopped or minced 1 tablespoon fresh flat-leaf parsley, chopped 1 tablespoon fresh cilantro, chopped ¼ cup extra virgin olive oil 2 tablespoons spicy harissa (I use Mina brand) 1 teaspoon cumin 1 teaspoon paprika ½ teaspoon black pepper 1 tablespoon apple cider vinegar or lemon juice 1 tablespoon tomato paste (optional) Salt to taste Preparation     • Heat olive oil in skillet or pot over medium heat. Add all ingredients and cook for 10 minutes, stirring occasionally. Cover and cook on low heat for an additional 20 minutes, stirring occasionally.       • Serve warm or cold as a side or with bread for dipping. Enjoy! Original recipe is here, if you want to see photos: mina.co/blogs/recipes/zaalouk-moroccan-eggplant-salad  
×
×
  • Create New...