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MADMOM

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by MADMOM

  1. MADMOM
    is Gliadin safe to take regularly? why can’t they make something like that to help us heal ?
  2. MADMOM
    i’ve felt that as well prior to my celiac dx and in the beginning stages of going gluten free - although it has gone away almost completely but on occasion i still feel it -
  3. MADMOM
    so good to hear that - i’m gonna go for my 6 month followup since dx to get blood work and check my ferritin levels as well - last checked i believe it was 8.0 so i’m hoping it’s come up and my celiac levels down 🙏🏻❤️ how soon after was this followup endoscopy you had since your last?
  4. MADMOM
    i eat it all the time and never issues - Ronzoni also makes gluten free pasta which tastes so much like regular - try it - maybe you reacted to something in the sauce or topping on ur pasta?
  5. MADMOM
    i suggest you see a dr and get a full panel of blood work - i was also low in iron ferritin levels low and always tired all my life - got dx in jan - endoscopy and blood test and following gluten free diet since - i take probiotics vitamin d and iron and sometimes magnesium - i feel so much better since
  6. MADMOM
    i had pain just like Scott before i got diagnosed 5 months ago - it was a pinchy stabbing pain in my right mid abdomen by my belly then i began feeling it under my right rib area thinking gall bladder issue but had ultrasound and all normal including liver and kidney - i too had a noisy tummy as well - i saw a GI dr and he recommended an endoscopy and celiac...
  7. MADMOM
    so i’m not alone thank god!!! i thought i was overeating but it’s not the case - occasionally i do over snack but never had an issue with being overweight. My body does feel so much better and my eyes never looked so healthy and white so i’m glad i’m in the right direction - now it’s time to balance it all out - ty and ty to Scott for your feedback on this ...
  8. MADMOM
    trying to fit in that bikini again 😬
  9. MADMOM
    i agree i’m on my weight watchers diet eliminating carbs and sweets - hopefully i can lose the extra weight and maintain
  10. MADMOM
    yikes i hadn’t lost weight at all because i didn’t have many GI symptoms and i kinda liked myself at that weight - i feel like i just woke up 10 pounds heavier and i’m sad about it - glad to be healthy ofc but now it’s diet time
  11. MADMOM
    hi i’ve been on my gluten free journey now for about 5 months dx in january of 2021 - i’ve noticed initially on this diet my weight was pretty balanced no major weight gain but in the last month or so i’ve gained roughly 10 pounds!! i’ve been feeling much better as well so i’m wondering if antibody else has had this happen and if it’s from healing or just eat...
  12. MADMOM
    i had lost weight at i initial dx but because of the fear of the unknown - and that was in jan 2021 - it took me 3-4 months to begin to see my body gaining weight and feeling better -
  13. MADMOM
    try garden of life - soy dairy and gluten free - it’s helped me immensely - you can buy on Amazon
  14. MADMOM
    that’s what i meant sorry
  15. MADMOM
    add the iron as well? did ur endoscopy show healing of your villi? if yes it can’t be refractory - i’ve had anemia all my life but so does my mom and one sister so it doesn’t necessarily mean it’s refractory unless ur villi hasn’t healed - please let me know
  16. MADMOM
    have your celiac levels gone down? if yes then it’s not refractory celiac i suggest u do take iron supplements - there are many out there that are coated and easy in the stomach i take them as well - if you are still menstruating then obv u will be more anemic - i was until i went through menopause and my levels have gone up just about normal although m...
  17. MADMOM
    garden of life - 50 billion cfu they are gluten casein dairy and soy free and have helped me so much - i don’t feel bloated or gassy and have no had any gi issues although mine were mild prior to my dx -i also take iron and vitamin d every day you can order on amazon
  18. MADMOM
    ive been gluten free since my dx on 1/11/21 - new like you - my symptoms have just started to feel like they are disappearing although i still on occasion feel a little pinch here and there - you will feel symptoms for awhile - as long as you are eating clean taking your vitamins and probiotics you will see a difference soon - stay positive
  19. MADMOM
    sorry this is the subject but just curious - i know ppl with celiac like myself tend to have orangey colored poop - but does that mean celiacs will always generally have orange poop? mine is usually mid brown and sometimes orangey colored and becoming more normal looking but it’s only dark brown sometimes ... so i wonder if there’s something wrong or is ...
  20. MADMOM
    ty sir you’re very positive and i just go into panic mode - it just boggles my mind to read about all these other issues we can have when anyone can - celiac or not 👍🏼
  21. MADMOM
    i have read several articles about celiacs getting other autoimmunr diseases including autoimmune hepatitis etc and just wondering how much of a percentage do we have of getting any of these because of celiac? if we are removing gluten and following a gluten free diet and staying healthy - why would we have liver issues etc / it scares me to death
  22. MADMOM
    ty for your advice and for sharing your experience - my hope is to continue this new lifestyle and to try and get healthier - reading all the tile about other issues that can occur occasionally give me anxiety - i started this journey pretty much very healthy - i hope to heal my gut and enjoy my life without fear
  23. MADMOM
    wow! i’m feeling more hopeful now that i will be ok - i am 48 just got diagnosed this past jan
  24. MADMOM
    so glad you are so healthy and have very few medical issues. keeps me hopeful that we can all have a long life as long as we stay on this gluten free path - how old were you at time of diagnosis?
  25. MADMOM
    you are right - my logic is that things were pretty normal prior to dx and now that ive started on this gluten free journey i should only be getting healthier 🙏🏻❤️
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