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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. @Ginger38, Have you checked your blood glucose levels during one of these episodes?
  2. @Liquid lunch, It can be if you take too much. If your stools do start getting loose, cut back on the magnesium citrate. The label should tell you how many to take daily. You do NOT need high doses of magnesium if taking high dose Thiamine. Milk of Magnesia has been used as a laxative for ages. It's magnesium oxide which the body doesn't really...
  3. @Ginger38, When recuperating, I would buy a Chuck roast, cut it into small chunks, and freeze it. I would throw a chunk in my small crock pot with carrots or frozen vegetables like okra and let it cook on low all night. By morning, it's very tender and mushy. (Don't use potatoes or corn.) I would eat small amounts throughout the day....
  4. @Katie255, Welcome to the forum! Since Celiac Disease is inherited, you could get genetic tests for your family. The level of antibodies does not correlate with the amount of damage in the intestines. High levels are indicative of a strong immune response early on in the development of Celiac. Antibody levels can become lower as the body...
  5. Free published peer reviewed papers are here... https://pubmed.ncbi.nlm.nih.gov
  6. @Liquid lunch, I take Benfotiamine (or Allithiamine) first thing in the morning. It's better than coffee to get my brain going in the morning. Spread the Thiamine HCL three hours apart afterwards throughout the day. Our bodies can absorb about 300 mg in about three hours. Caffeine, coffee, chocolate and black tea can inactivate thiamine...
  7. Thiamine Hydrochloride (HCL) can be used in large doses from 500 to 2000 mg per day. Be sure to increase the dose slowly. Spread smaller doses throughout the day, about every three hours, take with food. Don't take after 5pm or so if insomnia occurs. Sometimes while increasing the dose of Thiamine, a person can experience flu like symptoms, but these...
  8. @Marianne82, I would get too sick to complete a gluten challenge, so I asked my doctor for a genetic test. It was a simple blood test. Genetic testing for Celiac Disease does NOT require gluten consumption. Celiac Disease is inherited. You have to have the Celiac genes in order to develop Celiac Disease. The most common Celiac genes...
  9. @SargeMaximus, Have you tried wild rice "manoomin" raised by Native Americans according to traditional methods? Manoomin is NOT related to Asian rice. Manoomin is native to North America. This has been one of the best things I've found to eat. It's gluten free with NO risk of cross contamination if traditional methods are used. https...
  10. @Ramncats, Metronidazole is a type of antibiotic that destroys Thiamine Vitamin B 1 in the body. Undiagnosed thiamine deficiency and the toxicity of Metronidazole effect ones health. Replacing thiamine improves health even years after being treated. Learn more here.... https://www.hormonesmatter.com/metronidazole-mitochondrial...
  11. Have you had your Vitamin D level checked? Supplementing Vitamin D until the level is in the eighties nmol/l is important. Vitamin D can act like a hormone and regulate inflammation at that level. Including healthy fats, Omega Threes, is important to joint health. Extra Virgin Olive oil, coconut oil, avocado oil are healthy fat options. Omega Threes...
  12. Removing dairy will help reduce inflammation and digestive issues. Mucosal reactivity to cow's milk protein in coeliac disease https://pubmed.ncbi.nlm.nih.gov/17302893/ "A mucosal inflammatory response similar to that elicited by gluten was produced by CM protein in about 50% of the patients with coeliac disease. Casein, in particular, seems...
  13. @Ericaagl, I've been in the situation where seemingly everything caused some sort of reaction. I followed the Autoimmune Protocol Diet. I ate small grass fed ground beef patties and a steamed vegetable like carrots, okra, or green beans. I ate very small portions, every two to three hours if hungry. I did not eat sweet potatoes because...
  14. @LeighENC, This article discusses Hashimoto's and thiamine ... https://thyroidpharmacist.com/articles/thiamine-and-thyroid-fatigue/ This article explains how a high carbohydrate diet can deplete thiamine...removing gluten containing carbs would leave more thiamine available for improvement in health conditions like shortness of breath... https...
  15. @Marianne82, I've been in the situation where seemingly everything caused some sort of reaction. I followed the Autoimmune Protocol Diet. I ate small grass fed ground beef patties and a steamed vegetable like carrots, okra, or green beans. I ate very small portions, every two to three hours if hungry. I did not eat sweet potatoes because...
  16. @Megawisdumb, What have you been eating? Do you keep a food diary? Do you eat processed gluten free foods? Have you tried the Autoimmune Protocol Diet? Do you eat a lot of high histamine foods? Have you been checked for vitamin and mineral deficiencies?
  17. @Ginger38, I follow the Autoimmune Protocol Diet (AIP diet). Meats and veggies mostly. The artificial construct of "breakfast foods" can go out the window. Just focus on choosing healthy foods that are nutrient dense. "Eat to live, don't live to eat." Personally, I like liver and onions for breakfast. 😸
  18. @Ericaagl, Do look into the Autoimmune Protocol Diet... Choose low histamine foods from the allowed foods. Bone broth and fermented foods are high histamine foods, so I skipped those. Histamine naturally occurs in food. Our bodies make histamine as part of the inflammation process of Celiac Disease. We want to eat low histamine foods to keep...
  19. @Marianne82, Our bodies can absorb about 300 mg of Thiamine in about three hours, so spread your doses out over the course of the day. I usually take mine at the beginning of meals. Yeah, I took a very high dose of Thiamine Hydrochloride (1500 mg) once and got a tummy ache. Taking thiamine with food helps. Sorry that happened to you. Do...
  20. Allithiamine and Thiamax can get across the blood brain barrier without help. Do try to get your Thiamine up to 500 mg at a minimum. Amazing things happen with higher doses. I read an article the other day that found the SPIKE of Covid actually binds to the Thiamine Transporters blocking Thiamine from entering cells, and causing a functional...
  21. If iceberg lettuce is causing a problem, switch to Romaine lettuce. Iceberg lettuce is mostly cellulose which can be difficult to break down. Romaine lettuce is a good source of Thiamine. Thiamine supplements will help. Thiamine works with the other seven B vitamins, so a B Complex supplement, magnesium (also works with Thiamine) and Vitamin D ...
  22. @Beverage, Our bodies can absorb about 300 mg of Thiamine in about three hours, so I try to take my Thiamine with meals or a snack. I take higher doses earlier in the day. Thiamine close to bedtime can make sleep elusive as I've so much energy and mental acuity. Sometimes in the morning, I will take more Allithiamine (200 mg) and less...
  23. @Ericaagl, Hello. I'm sorry you're having difficulties. Your symptoms are similar to what I experienced with Thiamine deficiency. In Thiamine deficiency, anorexia and loss of appetite are common. I know I would lose my appetite. If I ate carbohydrates, I gained lots of weight quickly. If I did not eat gluten and carbohydrates, I would lose...
  24. @Marianne82, Not a doctor, not diagnosing. I base this on personal experience. I had severe Thiamine deficiency that was not recognized by my doctors. Doctors see Thiamine deficiency as a result of alcoholism. Because I insisted I did not drink alcohol, they wrote me off as crazy. Thiamine deficiency can be caused by prescription medications...
  25. @Voltage, No, it's not a stupid question. It's doubtful that people walking by would contaminate your food. What sort of situation is it? Shared break room at work? Shared household?
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