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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    I suggest you eliminate dairy from your son's diet next. Cow's milk protein, Casein, can trigger tTg IgA antibody production, the same as gluten, because casein contains segments of proteins that resemble gluten protein segments. Mucosal reactivity to cow's milk protein in coeliac disease https://pmc.ncbi.nlm.nih.gov/articles/PMC1810502/ I...
  2. knitty kitty
    Welcome to the forum, @jamiet06, Yes, it does point in that direction. Your report says "Correlation with clinical findings and results of serological studies is recommended" is saying you should undergo a gluten challenge and be tested for antibodies associated with Celiac Disease. These antibodies are produced in celiac disease in response...
  3. knitty kitty
    @elizabethhousworth, I found that supplementing with Riboflavin Vitamin B2 has helped my migraines immensely. Effect of Vitamin B2 supplementation on migraine prophylaxis: a systematic review and meta-analysis https://pubmed.ncbi.nlm.nih.gov/33779525/ "Conclusions: A pooled analysis of available randomized controlled clinical trials...
  4. knitty kitty
    Interesting reading on Histamine Intolerance (HIT): Histamine Intolerance: The Current State of the Art https://pmc.ncbi.nlm.nih.gov/articles/PMC7463562/ Histamine Intolerance—The More We Know the Less We Know. A Review https://pmc.ncbi.nlm.nih.gov/articles/PMC8308327/ We need the enzyme DAO (Diamond Oxidase) to break down h...
  5. knitty kitty
    Keep us posted on your progress!
  6. knitty kitty
    I prefer not to use Nature's Bounty because they use Thiamine Mononitrate which is not a useable source of Thiamine. Only thirty percent of Thiamine Mononitrate is absorbed, and it must undergo chemical changes to convert thiamine mononitrate into a form the body can utilize more easily. Look for multivitamins that use Thiamine Hydrochloride, or take...
  7. knitty kitty
    Doctors don't usually test the levels of all the B vitamins. B12 is frequently the only one checked. Ask for an Erythrocyte transketolase test to check Thiamine Vitamin B 1 levels. The eight B vitamins all work together, so they should all be supplemented. Additional thiamine in the form Benfotiamine can be taken.
  8. knitty kitty
    No. The damage done to the lining of the intestines is caused by the autoimmune response of Celiac disease. People who have been off of gluten for an extended period may take longer to mount an autoimmune response. Twelve days of gluten after two years off probably wasn't enough time and not sufficient gluten.
  9. knitty kitty
    @LizzieF, The anemia which can be caused by low iron can impede antibody production. NCGS can be a precursor of Celiac Disease, especially in those who already carry Celiac genes. Celiac is the only disease where you have to self harm to get a diagnosis. Do talk to your doctor about the updated gluten challenge requirements and a...
  10. knitty kitty
    Welcome to the forum, @ChrisDun! Has your husband been checked for nutritional deficiencies? Many newly diagnosed are short on the B Complex vitamins (especially Thiamine), Vitamin D and minerals like magnesium and iron. Talk to the doctor and nutritionist about supplementing the eight essential B vitamins while healing. I had episodes...
  11. knitty kitty
    Yes, zinc is very important to immune system and health. @Sanna King, how are you doing? I got really frustrated reading labels! On the Autoimmune Protocol Diet I don't have to. The AIP diet includes meat and veggies and some fruit. No processed foods. No dairy, no nuts, no nightshades (tomatoes, potatoes, peppers and eggplant). The AIP diet...
  12. knitty kitty
    Have you tried adding in additional thiamine in the form called Benfotiamine? Athletes need extra thiamine. We need more thiamine when we're physically ill and also when we're emotionally stressed. A regular B Complex or multivitamin probably doesn't have enough thiamine. Check the label for which type of thiamine is in your vitamins. Thiamine...
  13. knitty kitty
    What were/are you supplementing? What sort of bloodwork? Testing for vitamin and mineral deficiencies?
  14. knitty kitty
    Hello there! @Jordan Carlson , you said "Now the last 3 ish years I have been sick more than I ever have been in my life. Could it be my immune system was so tired/fatigued prior to diagnosis that it just wouldnt turn on anymore? And now that my stress and inflammation is down its functioning stronger?" I think you may have that backwards. Your...
  15. knitty kitty
    Hello, The medication in these inhalers can cause a thiamine deficiency if used by someone already low in thiamine. We don't absorb sufficient amounts of vitamins and minerals due to the inflammation and damage done to our villi in Celiac Disease. Even a long term strict gluten free diet may not provide sufficient amounts of vitamins and minerals...
  16. knitty kitty
    Have you had a DNA test to look for the most commonly occurring Celiac genes? There's some scientific evidence that Non Celiac Gluten Sensitivity is a precursor to Celiac Disease in genetically predisposed people. Which foods do you react to? How do you react?
  17. knitty kitty
    @Sammy Web, Have you had a genetic test which looks for the most commonly known Celiac genes? Not having the Celiac genes is the only way to definitively exclude Celiac Disease.
  18. knitty kitty
    @herminia, Welcome to the forum! Omeprazole is only supposed to be taken for a few weeks! Omeprazole can cause villus damage to the small intestine by itself. Shame on your doctors for letting you be on it for years! Shame on your doctors for not taking an interest in your worsening symptoms! Omeprazole is a temporary fix, a bandaid, not a...
  19. knitty kitty
    @Sammy Web, PPI's like Omeprazole suppresses your ability to produce antibodies to gluten. So if you had the tests done while you were taking Omeprazole, the tests won't be accurate. Omeprazole will cause villus damage. Not all the damage in Celiac is visible to the naked eye, especially in the early stages. Damage to the intestines can be...
  20. knitty kitty
    Hello, @Deborah123, Which blood tests for Celiac did your son have? TTg IgA tests may throw false negatives in children because of immature immune systems. That's why a complete Celiac panel should be done which includes total IgA, tTg IgA, DGP IgA and DGP IgG and tTg IgG. Insufficient gluten consumption in the weeks prior to testing can result...
  21. knitty kitty
    I agree with @cristianacristiana, @Scott Adams, and @trents. You probably weren't eating sufficient gluten for the test to be accurate. Ten grams of gluten for at least two weeks before testing is needed for accurate blood tests. Three gram of gluten is enough to make you feel unwell. Ten grams of gluten is required for the antibodies to leave...
  22. knitty kitty
    At minute 28 and again at minute 45, the man explains that the carbohydrate storage protein In CORN is ZEIN. Zein has segments of the 33-mer polypeptide, alpha gliadin, found in wheat, barley, and rye, which if presented to DQ HLA genes triggers an autoimmune reaction in those with Celiac Disease. Casein in dairy for the same reason can similarly...
  23. knitty kitty
    You're very welcome, @Sarah Grace, You do need a B Complex, but the TTFD is not the same at all. B Complex usually contains Thiamine Hydrochloride (good) or Thiamine Mononitrate (bad) and the other seven essential B vitamins. Don't get vitamins containing Thiamine Mononitrate. This is used because it has a long shelf-life (it won't break down...
  24. knitty kitty
    @glucel, I encourage you to reconsider Benfotiamine. Talk to your doctor! There's many articles that have found a link between thiamine and heart problems. Here are some articles worth further discussion with your doctor: Pyruvate dehydrogenase activity and quantity decreases after coronary artery bypass grafting: a prospective observational...
  25. knitty kitty
    @Sarah Grace, Thanks for answering. I'm sorry you're not bouncing back as quickly as we would like to see. Are you taking a B Complex? Thiamine interacts with each of the other B vitamins somewhere along the line. Taking a B Complex helps boost absorption and ensures there's plenty of the other B's for thiamine to work with. Thiamine needs...
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