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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Have you tried a genetic test to look for Celiac genes? No gluten challenge required.
  2. knitty kitty
    Hello, @ElisaAllergiesgluten, Have you tried going on a low histamine Paleo diet like the Autoimmune Protocol diet? A low histamine AIP diet would help your body rid itself of the extra histamine it's making in response to allergies. Are you Celiac as well? Since we need more thiamine when we're stressed, adding Benfotiamine, a form of Thiamine...
  3. knitty kitty
    Don't skimp on the gluten daily while undergoing the gluten challenge!
  4. knitty kitty
    Welcome to the forum, @Jades Journey, Were you eating a sufficient amount of gluten every day in the weeks prior to testing? Ten grams of gluten per day for a minimum of two weeks is required to get the antibody levels high enough to leave the intestines (where they are made) and get into the blood stream (where they can be measured).
  5. knitty kitty
    Look at the ingredients. Thiamine Mononitrate is in that ingredients list.
  6. knitty kitty
    Peripheral neuropathy (nerve pain iincluding numbness, tingling, buzzing in the feet or hands) can be caused by deficiencies in several vitamins, not just B 12 Cobalamine. Thiamine B 1, Pyridoxine B 6, and Riboflavin B 2, zinc, magnesium and calcium are also needed to work with B12. With Celiac Disease, the absorption of all the micronutrients are...
  7. knitty kitty
    Symptoms that get worse if you don't supplement is a sign of malabsorption, possibly due to Celiac disease. Blood tests for nutritional deficiencies are not very accurate, and should be done when you have been off of supplements for eight to twelve weeks, otherwise the vitamin supplements you've taken will be measured. The blood circulation system is...
  8. knitty kitty
    For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12. The combination of these three vitamins has analgesic effects. I have back pain and this really works. The B vitamins are water soluble and easily excreted. Hope this helps! Keep us posted on your results!
  9. knitty kitty
    Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis. Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food. With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins...
  10. knitty kitty
    Yes, I, too, have osteoporosis from years of malabsorption, too. Thiamine and magnesium are what keep the calcium in place in the bones. If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer. We need more than just calcium and Vitamin D for strong bones. Riboflavin B 2, Folate B 9 and Pyridoxine...
  11. knitty kitty
    Yes, I agree, most doctors miss the subtleties of Celiac disease. The AIP diet was designed by a doctor who has Celiac herself, Dr. Sarah Ballantyne. Her book The Paleo Approach is most helpful. The AIP diet eliminates all grains and other pseudo grains like rice,corn and quinoa because they can be irritating to the digestive track. It eliminates...
  12. knitty kitty
    Welcome to the forum, @petitojou! I lost a lot of weight, too. I found that I was low in the B vitamins and other essential nutrients. Vitamin B 1, Thiamine, is not usually tested, because blood tests are so inaccurate. Doctors are not familiar with vitamin deficiency symptoms any more. Low thiamine can cause fatigue, muscle weakness, nausea...
  13. knitty kitty
    I used Aveeno products for years and had to stop using it because my skin problems got worse. I do have Dermatitis Herpetiformis. Not all people with Celiac react to oats. I use tallow balm. People have been using it for thousands of years. Tallow balm is better absorbed that plant fats. There's also tallow balm soap. My favorite brand...
  14. knitty kitty
    Having a RAVENOUS appetite (or conversely no appetite at all - anorexia) and unintended weight loss are symptoms of early thiamine deficiency. People who are physically active, athletes, physical laborers, those who exercise outside regularly have a higher metabolic need for thiamine. Exercising outside regularly can cause more thiamine loss because...
  15. knitty kitty
    @Celiac50, Most Celiac patients with a Marsh score as high as yours are more likely to suffer from fat malabsorption and deficiency in fat soluble vitamins, Vitamins A, D, E, and K. Vitamin A toxicity does not cause Celiac disease. Your Vitamin A toxicity was probably developed after your diagnosis and subsequent over-supplementation. Fish contains...
  16. knitty kitty
    Neanderthals were pushed out of their hunting and gathering areas by humans clearing the land for growing grains. Since early Celiac disease processes may have few or no overt symptoms, and considering life span was much shorter back then, Celiac disease may not have been so detrimental to their health. Other indigenous peoples who developed...
  17. knitty kitty
    @JForman, Did you know that Celiac disease genes can be traced back to the Neanderthals? At times I have found it amusingly distracting to think that we're eating according to our ancestors who had eaten gluten-free for thousands of years, before those homo sapiens started growing grasses all over the place. (Yes, grains evolved from grasses...
  18. knitty kitty
    @Rejoicephd Getting glutened and gastrointestinal Beriberi have very similar symptoms! Drinking alcohol cleaves thiamine in half making it useless. A twenty percent increase in dietary thiamine produces an eighty percent increase in brain function. Symptoms seem to wax and wane mysteriously, depending on how much thiamine you absorb from...
  19. knitty kitty
    This article explains how thyroid problems and Celiac are connected... Celiac Disease and Autoimmune Thyroid Disease: The Two Peas in a Pod https://pmc.ncbi.nlm.nih.gov/articles/PMC9312543/
  20. knitty kitty
    @lehum, I found great improvement by following the low histamine version of the Autoimmune Protocol Diet (Dr. Sarah Ballantyne, a Celiac herself designed it; her book, the Paleo Approach, is very helpful!) Following the low histamine AIP diet, I cut out all nuts, all dairy, all grains and rice, all processed gluten free foods, Eggs, and all nightshades...
  21. knitty kitty
    There's a study from PubMed NIH that found that thiamine deficiency gets relayed to the DNA inside cells' mitochondria which in turn switches on autoimmune genes. Vaccines or any infection can precipitate a thiamine deficiency in folks who are already low in thiamine (like from poor absorption or a high carbohydrate diet or drinking alcohol). There...
  22. knitty kitty
    @FayeBr, Yes, blood tests for thiamine are notoriously inaccurate. Thiamine works inside cells. The blood stream is a transport system, not an accurate measure of the amount of usable thiamine inside cells. The best way to see if you're in need of thiamine, according to the World Health Organization, is to take thiamine for a while and look for health...
  23. knitty kitty
    @cristiana, Thiamine is found in meats, which you've cut down on recently. Liver is an excellent source of B vitamins, including thiamine and B12, and iron. Benfotiamine is a great thiamine supplement. It helps promote intestinal healing. Take a B Complex also, and magnesium. Thiamine and magnesium work together. Magnesium will also help relax...
  24. knitty kitty
    Oh, @FayeBr, you poort thing! I've had episodes similar to yours, taking something that is supposed to help, but makes symptoms worse. You're not alone. Hold tight, we'll get you through this. Acid reflux can be caused by not enough digestive enzymes, contrary to the assumption that overproduction of digestive acids causes acid reflux. The cells...
  25. knitty kitty
    I tried algae based calcium supplements, but because I have Dermatitis Herpetiformis I broke out with dermatitis herpetiformis blisters. Do be careful. Iodine, whether in iodized salt or seaweed or some types of fish, can stimulate dermatitis herpetiformis. I stick to cruciferous veggies (broccoli, kale and other green leafy veggies), but I avoid spinach...
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