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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. I agree, low carb/no carb is the best way to go. I follow the Autoimmune Protocol Diet, a ketogenic Paleo diet, for my diabetes and celiac disease. I keep carbs low. The AIP diet helps immensely to keep my blood glucose levels in range. I supplement with Benfotiamine, a form of thiamine, because the pancreas uses lots of thiamine to make insulin and...
  2. Hair loss is also a symptom of thiamine insufficiency. Peripheral neuropathy, another thiamine insufficiency symptom, can cause a feeling of itchiness on the skin without a rash.
  3. @mytype1diabetes, Do keep in mind that Celiac Disease is genetic, so all first degree relatives (parents, siblings) should be checked for celiac disease as well. Thiamine deficiency is common in breastfeeding mothers and their babies, even in countries where people are well fed and eat healthy. A high carbohydrate diet requires more thiamine...
  4. Welcome to the forum, @mytype1diabetes, Your statement that your daughter has become itchy and has hair loss made me think of iron deficiency. Those were the same symptoms i had when I was iron deficient. Was she tested for iron deficiency anemia at the time of her diabetes diagnosis? Seems in the early stages of iron deficiency anemia, blood...
  5. @MagsM and @leenora, Thiamine improves Alzheimer's. Thiamine has anticancer effects in high doses. Thiamine helps improve Hashimoto's. I'm linking information you may find helpful. Evaluation of neuroprotective role of benfotiamine in Alzheimer's disease model: A randomized control study https://pubmed.ncbi.nlm.nih.gov/40176579/ Supplemental...
  6. Welcome to the forum, @Pamp8, I stopped foods high in iodine, like dairy and eggs, kelp and iodized salt. I take Niacinamide also called Nicotinamide or Vitamin B3. I haven't taken the tetracycline with it. It seems to make the blisters disappear quicker. I also use tallow balm, a cream made from beef fat, which has been used for thousands...
  7. @Ginger38, Have you been checked for nutritional deficiencies, besides iron? Celiac disease causes inflammation which results in nutritional deficiencies. Iron needs Thiamine and the other B vitamins to make new red blood cells. Iodine and thiamine deficiencies affect the thyroid. The thyroid is one organ that uses lots of thiamine....
  8. @Alibu, Start with this study... High-dose thiamine supplementation improves glucose tolerance in hyperglycemic individuals: a randomized, double-blind cross-over trial https://pubmed.ncbi.nlm.nih.gov/23715873/ "Conclusion/interpretation: Supplementation with high-dose thiamine may prevent deterioration in fasting glucose and insulin,...
  9. @Alibu, It's the thiamine (in the forms TTFD or Benfotiamine) that can get into the brain easily and improve migraines. The magnesium Threonate won't help by itself. Taking the thiamine regularly will keep them away. Sounds to me like your doctor is looking for the Marsh 3C or 4 Stage (total villus damage) to make his diagnosis. Those studies...
  10. @Alibu, Migraines ran in my family as well. Correcting my Thiamine insufficiency made a dramatic improvement in frequency and duration. If you take Thiamine, B12 and B6 together, they have analgesic (pain relieving) properties. Taking thiamine every day has cut down on their occurrence and severity for me. Take Thiamine in the form Benfotiamine...
  11. @ehb Great you're going to start the AIP diet! I know it's scary and stressful, but you'll soon start feeling better. It's a challenge, but you can make it. Do ask for a Erythrocyte Transketolace test which tests for Thiamine level. I hope your Vitamin D level is between 70 and 100 nmol/L. In this optimal range, Vitamin D can act like a...
  12. Welcome to the forum, @wellthatsfun! Count your blessings that you were diagnosed so young. Your boyfriend sounds like a keeper! Some of us old farts went undiagnosed for a long time and we're a bit more life worn, but there's a wealth of wisdom here. Do know that many people go through a period of grief after diagnosis that's normal. ...
  13. It's on this site. Click in my name. Look for the pull down menu that says "Activities" and chose "blog". Oh, there's the link! You can send personal messages through this site, too, if you like.
  14. It's part of the malabsorption that occurs with Celiac Disease. Yes, I lost weight, too. We can use up our B vitamins quickly when we're ill. The B vitamins are water soluble and easily lost. Supplementing can help ensure we're getting the essential vitamins and minerals our body needs to function well. Many vitamins can be low in the newly diagnosed...
  15. @Shining My Light, Yes, celiac is spelled differently in Great Britain. Yes, please do consider us as part of your support circle. I had a serious Vitamin D deficiency, too. I learned Vitamin D acts as a hormone when at levels between 78-100 nmol/L. Mine was in the single digits. I had been in declining health for years without answers. I...
  16. @Alibu, Just wanted to add... Migraines can be caused by thiamine insufficiency. I used to have them, regularly, but haven't since supplementing with thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and Magnesium Threonate. These forms get into the brain easily and really improve migraines. I do still get Ophthalmic migraines...
  17. @HilaryM, Are you eating a diet high in carbohydrates? You might find a Paleo diet easier on your digestive system. A Paleo diet can promote changes in intestinal flora, effectively starving out SIBO bacteria. Be wary of gluten free processed foods. Many are not enriched or fortified with vitamins and minerals lost in processing like gluten...
  18. @MelissaClinPsyD, I hope you investigate whether your participants take nutritional supplements. The group of eight B vitamins, Vitamin D and magnesium have a big impact on mental health, especially depression. I know correcting nutritional deficiencies were most important in my physical and mental health recovery! There's more information and...
  19. @Jmartes71, Please do get checked for nutritional deficiencies. A good B Complex, Vitamin D, Benfotiamine (a form of Thiamine Vitamin B1 that promotes intestinal healing), Vitamin D and magnesium are a good way to start. Correcting nutritional deficiencies with Thiamine supplements (like Benfotiamine), B Complex, and Vitamin D were my miracles...
  20. @Alibu, I think you should send the National Institute of Health peer reviewed studies I linked to your doctors. Some doctors don't keep abreast of the recent updates to Celiac diagnosis. They may still be operating under the old idea of waiting until intestinal damage is at a Marsh score of 3C or 4 (complete villus atrophy) before diagnosis of Celiac...
  21. Welcome to the forum, @Gary Libby! Have you talked to your doctors and nutritionist about checking for nutritional deficiencies and supplementing with vitamins and minerals while you're healing? Malabsorption caused by the inflammation and damage of celiac disease can deplete our stored vitamins, making us feel poorly the majority of the time...
  22. @terrymouse, I agree that you may be suffering from nutritional deficiencies already. Get tested for nutritional deficiencies before supplementing, otherwise the vitamins you're taking can mask a deficiency. Symptoms that you have are similar to what I experienced with malabsorption of Celiac Disease. I would lose my appetite; if I did eat,...
  23. @Alibu, There may not be textbook intestinal damage in the early stage of Celiac Disease!!! Keep in mind that the endoscope used can only reach about a foot past the stomach, while the small intestines are twenty-two feet long! Damage can be patchy or out of reach of the scope. Early celiac disease may not show damage at all. Don't compare...
  24. @Shining My Light, While you're trying to decide on your next steps on your journey, I suggest you have a DNA test to look for Celiac genes. Your genes don't change, so you do not have to be eating gluten for it. If you have even one Celiac gene, it's more likely to be celiac disease, than NCGS. TTg antibodies do not occur in NCGS. There are...
  25. Being low in B12, Folate B9, ferritin, zinc and copper sounds consistent with anemia which can often occur with Celiac. What did your doctor recommend? What about your Vitamin D? It helps regulate the immune system.
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