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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @Healthforme, No prescription needed for thiamine hydrochloride, Benfotiamine, and TTFD (Tetrahydrofurfuryl Disulfide). They are available over the counter. Thiamine Mononitrate is not recommended because the body doesn't absorb or utilize it well.
  2. knitty kitty
    @Zuma888, I'm so happy you're feeling better! Thanks for letting us know of your improvement!
  3. knitty kitty
    @Grahamsnaturalworld, It's never too late. Have you been checked for Small Intestinal Bacterial Overgrowth? SIBO can cause ongoing symptoms. Mast Cell Activation Syndrome (MCAS) and Histamine Intolerance (HIT) can also be the cause of ongoing symptoms. The AIP diet can help with these by starving out SIBO bacteria and calming the immune system...
  4. knitty kitty
    Welcome to the forum, @Grahamsnaturalworld What exactly do you include in your diet? Do you keep a food journal to track symptoms? Have you tried an elimination diet like the Autoimmune Protocol Diet? It's very strict, but I found it excellent for reducing inflammation, calming the immune system, and promoting healing in the gastrointestinal tract...
  5. knitty kitty
    @junell, Can you get a DNA test to look for genes for Celiac Disease? Have you had your thyroid checked? Have you been checked for nutritional deficiencies? Being on a restricted diet for so long and especially now since you are having symptoms can cause malabsorption resulting in vitamin deficiencies. Talk to your doctor and dietician...
  6. knitty kitty
    Please be sure to try Benfotiamine or Thiamine Hydrochloride. The form Thiamine Mononitrate is not absorbed nor utilized well. Benfotiamine is much more bioavailable. Perhaps Thiamine Mononitrate was in your previous B Complex supplements, explaining why they didn't work for you. All the B vitamins work together. Thiamine needs the other B vitamins...
  7. knitty kitty
    Hi, @Zuma888, Hashimoto's commonly occurs with Celiac Disease. Those HLA genes code for other autoimmune diseases along with Celiac. Hashimoto's and Celiac overlap. People with Hashimoto's produce anti gluten antibodies, so a gluten free diet is definitely a must. It may be safe to assume you've got Celiac Disease as well. People with Hashimoto...
  8. knitty kitty
    @Rejoicephd, So glad you checked your multivitamin! I like Life Extension brand. Their BioActive Complete B Complex has active forms of the B vitamins. Note that one serving is two capsules, so you can take one capsule at each of two meals, boosting opportunity for absorption. Life Extension also makes Benfotiamine (100 mg). Take one at...
  9. knitty kitty
    Welcome to the forum, @AnneBSunflower, I have Hashimoto's, too. I've learned some things that have helped with mine. This study says it's common to find anti gluten antibodies in Hashimoto's. So antibodies aren't necessarily due to gluten ingestion. https://pubmed.ncbi.nlm.nih.gov/31149170/ Take a B Complex supplement and Benfotiamine...
  10. knitty kitty
    @Rejoicephd, Would you consider adding a B Complex to your supplements? I was taking a multivitamin and still became deficient. There's a question as to how well multivitamins dissolve in the digestive system. I found taking a B Complex and Benfotiamine, a form of thiamine shown to promote intestinal healing, very beneficial in my recovery...
  11. knitty kitty
    @kopiq, Your case is not hopeless. Doctors are not required to learn much about nutrition. Celiac Disease causes damage to the lining of the small intestines resulting in malabsorption of essential vitamins and minerals. The eight essential B vitamins and the four fat soluble vitamins (A, D, E, and K) are chemical compounds that our bodies...
  12. knitty kitty
    You're welcome! Be sure the patient eats at least ten grams of gluten per day for a minimum of two weeks prior to repeating antibody testing. Some people unconsciously reduce the amount of gluten in their diet because the feel unwell. Three grams of gluten per day is sufficient to produce symptoms. Only at ten grams or more is the immune system...
  13. knitty kitty
    Welcome to the forum, @Wamedh Taj-Aldeen, How is the patient's thyroid? You could check for thiamine deficiency which can cause the thyroid to either become hyper or hypo. TTg IgA can be high in both hyperthyroidism and hypothyroidism. tTg IgA can also be high if patient is taking medications to stimulate the thyroid as in hypothyroidism...
  14. knitty kitty
    Welcome to the forum, @Rejoicephd, I found the Autoimmune Protocol diet (Dr. Sarah Ballantyne) extremely helpful in getting my health back. The AIP diet is very strict, removing any possibly irritating foods and allowing time for the digestive tract to heal, then other foods are added back in with less risk of reaction. Keep us posted on your...
  15. knitty kitty
    Hello, @Cat M, welcome to the forum! I noticed you are low in ferritin and thiamine as well as other nutritional deficiencies already. Deficiencies in iron and thiamine affect your body's ability to make antibodies. Since you do have symptoms, nutritional deficiencies evidence of malabsorption, MTHFR and one celiac gene, I'm suspecting you do have...
  16. knitty kitty
    Welcome to the forum, @kopiq, Have you been checked for nutritional deficiencies? Nutritional deficiencies may account for many of your symptoms. Celiac damages the intestines which lowers our ability to absorb essential vitamins and minerals. Have you been referred to a dietician to discuss a nutritionally dense gluten free diet? You are eating...
  17. knitty kitty
    @DebJ14, Yes, Celiac Disease causes malabsorption of all the essential vitamins and minerals, not just thiamine. All the B vitamins work together and many minerals are needed as well. If one is missing, the rest can't work well without it. Thiamine is used at the beginning of the energy production cycle and interacts with each of the other B...
  18. knitty kitty
    @MagsM Did your doctor do the DGP IgG and DGP IgA tests or the tTg IgG test. It looks like he just tested total IgG. Were you taking any medications or over the counter stuff before the test? Some can suppress the immune system and cause false negatives.
  19. knitty kitty
    Migraines can be caused by Thiamine deficiency. Thiamine is a B vitamin that becomes depleted quickly because it can't be stored long. All the B vitamins work together to make energy, ATP, which is used to fuel all the cell activity. Without Thiamine, the energy production cycle doesn't even get started. There's studies done on mice showing thiamine...
  20. knitty kitty
    Thiamine can help protect the brain from damage. White spots in the brain can be caused by Thiamine deficiency. Correcting nutrient deficiencies in Celiac Disease and boosting our absorption of vitamins and minerals by taking supplements can help repair and improve our health.
  21. knitty kitty
    Thank you, @Oldturdle, I greatly appreciate that. I've always been a curious kitty. I wanted to figure out why I didn't feel well because I knew it wasn't all in my head like they told me. It pleases me to be able to help others in the same boat. Yes, alcohol prevents the absorption of thiamine and stops thiamine from working properly. This...
  22. knitty kitty
    @Rebeccaj, You may choose to get tested to see if you have an allergy to wheat. That's a different type of immune response to wheat than Celiac Disease. It's possible to have both. You may need an Epipen. A histamine release in the sinuses upon being exposed to wheat in wheat allergy can cause a headache. Talk to your doctor about wheat...
  23. knitty kitty
    Yes, except for the most sensitive, cross contamination from airborne gluten should be minimal. Highly sensitive people may have nutritional deficiencies. Many times their bodies are in a highly inflamed state from Celiac, with high levels of histamine and homocysteine. Vitamins are needed to break down histamine released from immune cells like mast...
  24. knitty kitty
    Hello, @NCalvo822, Blood tests for Celiac Disease test for antibodies our bodies make in response to gluten exposure. These Tg IgA 2 antibodies mistakenly attack our own bodies, causing problems in organs and tissues other than just the digestive tract. Joints can ache, thyroid problems or the pancreas can develop. Ataxia is just one of over two hundred...
  25. knitty kitty
    @Rebeccaj, When you smell toast or pasta cooking, that means that particles of that food are floating around in the air. Airborne gluten can then be inhaled and swallowed, meaning the food particles get into your digestive tract. If you're careful to avoid gluten and are still having symptoms, those symptoms could be caused by vitamin deficiencies...
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