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knitty kitty

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Everything posted by knitty kitty

  1. knitty kitty
    In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed. Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
  2. knitty kitty
    Hello, @Jordan Carlson, So glad you're feeling better. Tecta is a proton pump inhibitor. PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12. Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the...
  3. knitty kitty
    @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body...
  4. knitty kitty
    That test is saying that your daughter is not making normal amounts of any IGA antibodies. She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses. She is deficient in total IGA, so the test for antigliadin antibodies is not valid. The test was a failure. The test only works if all different kinds of antibodies...
  5. knitty kitty
    I like Life Extension Bioactive Complete B Complex. It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease. Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible. (Read the ingredients listing.) Thiamine Mononitrate is the "shelf-stable" form of B...
  6. knitty kitty
    @hjayne19, So glad you found the information helpful. I know how difficult my struggle with anxiety has been. I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex. It contains the easily activated forms of B vitamins needed by people with the MTHFR...
  7. knitty kitty
    Effect of physical activity on thiamine, riboflavin, and vitamin B-6 requirements https://pubmed.ncbi.nlm.nih.gov/10919966/ The effects of endurance training and thiamine supplementation on anti-fatigue during exercise https://pmc.ncbi.nlm.nih.gov/articles/PMC4241913/ Effects of thiamine supplementation on exercise-induced fatigue https...
  8. knitty kitty
    @hjayne19, welcome to the forum. Sorry to hear you're having a bumpy start in your journey. Let's see if we can smooth the way a bit for you. To correct anemia, more than just iron and B12 supplements are needed. Other B vitamins including Folate B 9, Riboflavin B2, Pyridoxine B 6 and Thiamine B 1 are needed. Wheat flour (and other products...
  9. knitty kitty
    Which supplement says take 3 four times a day? Take the B Complex, one Benfotiamine, one Thiamax and one Neuromag at breakfast. You can take more Thiamax and Benfotiamine at lunch with another Neuromag. P.S. If you're referring to the NeuroMag, one serving consists of three capsules. You can take three capsules all together or you...
  10. knitty kitty
    @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues. The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves...
  11. knitty kitty
    Oh, my dear! Get off that Fairlife chocolate protein shake! That's got milk in it! Egads! Some people with Celiac disease react to the protein Casein in dairy the same as to gluten with the inflammation and antibodies and all. Reacting to Casein is not the same as lactose intolerance. Damaged villi are incapable of producing lactAse, the enzyme...
  12. knitty kitty
    The Benfotiamine and thiamax need magnesium to make life sustaining enzymes. Yes, go ahead and take the Benfotiamine and Thiamax now and include the magnesium as soon as possible. Yes, take the magnesium at breakfast, too. I take my Benfotiamine and TTFD Thiamax and B Complex at the beginning of breakfast. I take the magnesium after I finish...
  13. knitty kitty
    What have you taken so far? and when?
  14. knitty kitty
    Welcome to the forum, @Charlie1946, How long have you been diagnosed with Celiac disease? Do you take any nutritional supplements? Vitamins? Herbal medicine? Do you eat processed gluten free facsimile foods? Is your diet high in carbohydrates? Many vitamin deficiencies can contribute to poor oral health. Vitamin C, Cobalamine B...
  15. knitty kitty
    Yes, @trents is right, ascorbic acid can be irritating. Do you take it with food? Do you take other supplements or vitamins? Do you eat processed meats? Is your diet high in carbohydrates?
  16. knitty kitty
    Do you get any Vitamin C?
  17. knitty kitty
    Thanks, @trents, lactose intolerance is different than a reaction to casein. Consuming casein could be causing that continuing antibody reaction causing localized inflammation. Still worth trying a diet without it. Since you mentioned your father passing, you may want to add Benfotiamine. Benfotiamine is a form of thiamine Vitamin B 1 that has been...
  18. knitty kitty
    You should be fine. You may start feeling better within a few days. Someone who is very low in thiamine may notice improvement within hours. Did you get the NeuroMag or another magnesium supplement?
  19. knitty kitty
    Hello, @pilber309, welcome to the forum! Are you currently consuming dairy? You mentioned something about lots of yogurt and cheese, but did you cut it out or are you eating lots of it? Could you clarify please? Some people with Celiac react to casein, the protein in dairy the same as to gluten with antibodies and villi damage.
  20. knitty kitty
    You may want to skip the oatmeal. I believe you're trialing a gluten free diet while waiting for an appointment with your doctor in the new year and doing a gluten challenge then. Some people with Celiac disease react to the protein in oats called avenin the same as to gluten. Cross contamination between oats and gluten containing grains is possible. ...
  21. knitty kitty
    Blood tests for thiamine are unreliable. The nutrients from your food get absorbed into the bloodstream and travel around the body. So, a steak dinner can falsely raise thiamine blood levels in the following days. Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte...
  22. knitty kitty
    Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine. Legumes (beans) do contain thiamine. Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and Cobalamine B12 are mostly found in meats. Meat, especially organ...
  23. knitty kitty
    @lizzie42, You're being a good mom, seeking answers for your son. Cheers! Subclinical thiamine deficiency commonly occurs with anemia. An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal. Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps...
  24. knitty kitty
    @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease. Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease. Though having the genes for Celiac...
  25. knitty kitty
    Thiamine deficiency has been found in the brains of people with amyloid-beta plaques. Benfotiamine, a form of Thiamine, has been shown to prevent the formation of and remove those amyloid-beta peptides and plaques! Benfotiamine improves cognitive impairment and reduces inflammation. Benfotiamine helps improve blood glucose utilization. Malabsorption...
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