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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @DMulder47, Many of the symptoms you describe are attributable to vitamin deficiencies. Most people with Celiac Disease develop them because of the malabsorption and inflammation caused by celiac disease. My heart palpitations and high heart rate were caused by a deficiency in Thiamine B1. I had all the tests, too, and the doctors couldn't find...
  2. knitty kitty
    @ArchieK, If you're eating a lot of processed carbohydrates, you may have Small Intestinal Bacterial Overgrowth (SIBO). These bacteria produce lots of gas after helping themselves to your carbohydrates. They can spread from the large intestine (where they are supposed to be) into the small intestine where they can cause gastrointestinal symptoms...
  3. knitty kitty
    @Ginger38, I was diagnosed with Generalized Anxiety Disorder and Complex PTSD. SSRIs did not improve my health. SSRIs made my gastrointestinal symptoms much much worse, worsening my brain health as well. What did work for me was to focus on calming my digestive system and providing essential vitamins and minerals so my body could function properly...
  4. knitty kitty
    Welcome to the forum, @Gini1! You can take a DNA test to see if you have any of the known genes for Celiac Disease. Anemia, diabetes, and thiamine deficiency can cause false negatives on serum tests. Seronegative Celiac Disease does exist, where people with Celiac Disease don't show anti gluten antibodies in their blood. Other blood tests...
  5. knitty kitty
    @Rebecca Clayton, You can click on the links and open and save the studies on your device or print them out.
  6. knitty kitty
    @Rebecca Clayton, I know that doctors frequently overlook nutritional deficiencies as a cause of health problems. It's important to get high doses of Thiamine and the other B vitamins. I've found some research showing several other B vitamins as well as Thiamine help with clotting. High dose Thiamine was used in Covid patients to stop lung...
  7. knitty kitty
    Have you been checked for nutritional deficiencies? Are you currently supplementing with vitamins and minerals? Some cancers and other illnesses occur because of nutritional deficiencies. High dose Thiamine has been shown to be beneficial in fighting cancer. References: Small and Large Intestine (I): Malabsorption of Nutrients https...
  8. knitty kitty
    Pumpkin seeds are high in Lectins. Lectins are carbohydrate-binding proteins found in plant seeds and beans. Lectins can be inflammatory to already damaged intestines as in Celiac Disease. Interesting Reading... Do dietary lectins cause disease? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1115436/
  9. knitty kitty
    @augustmoon, No worries, we talk about poop a lot here. Are you currently eating gluten? Or have you gone gluten free? Do you eat a lot of carbohydrates? Were you eating lots of gluten prior to your Celiac test? What symptoms made you get a Celiac test?
  10. knitty kitty
    Was the H. Pylori test negative? Have you been tested for intestinal parasites? Do you have constipation? Is this with every bowel movement? What have you been eating? Are you eating gluten?
  11. knitty kitty
    Welcome to the forum! Do you have anemia or Diabetes? Thiamine and magnesium deficiencies can cause constipation. Are you keeping a food mood poo'd journal? Do you know which food is causing the peach pit problem? Have you been checked for H. Pylori infection?
  12. knitty kitty
    Welcome to the forum, @Lina0206! Have you been checked for nutritional deficiencies? Many newly diagnosed have low levels of Vitamin D which helps regulate the immune system and being low can cause dizziness, as can being low in some of the B Complex vitamins, like Cobalamine B12 and Thiamine B1. Have you talked to your doctor or nutritionist...
  13. knitty kitty
    @Gilly M, Have you tried taking a whole capsule of B Complex for several days before starting the additional thiamine? We can use personal messaging through the forum.
  14. knitty kitty
    @Jenn D, I wouldn't worry about it because his numbers are coming down. Liver function changes following the introduction of a gluten-free diet in patients with celiac disease https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8977883/ Supplementing with vitamins and minerals to ensure sufficient nutrients can help. The Effect of a High...
  15. knitty kitty
    Hey, lady, Some people, because of their genetics, stop producing LactAse, the enzyme that digests the sugar (LactOse) in dairy, when they become adults. Some people with Celiac Disease have digestive problems after consuming milk and dairy products because the villi in the small intestine have been damaged by the autoimmune response to gluten...
  16. knitty kitty
    @Kara Anne, Yes, I gained weight. Celiac Disease affects the ability to absorb sufficient nutrients due to damage in the small intestine. Nutritional deficiencies are common in celiac disease and need to be corrected as quickly as possible. Supplementing with essential vitamins and minerals boosts our body's ability to absorb these nutrients...
  17. knitty kitty
    @mrsdelore, Your antibody tests may be giving inconclusive results because you are not eating sufficient gluten consistently to get your antibody production up to a level that is measurable in the bloodstream. Diabetes, anemia and Thiamine deficiency can affect antibody production, causing false negatives, too. In an earlier post, you had two positive...
  18. knitty kitty
    Welcome to the forum, @misslemon! You can get a genetic test for any of the genes known to cause Celiac Disease which would not require eating gluten. Having the genes and improvement on a gluten free diet can be a diagnosis of Celiac Disease. You also stated you get a rash when you ate breadsticks. That rash could be Dermatitis Herpetiformis...
  19. knitty kitty
    Welcome to the forum, @Ecann74! @trents is right. You don't have to check every box to Bingo for Celiac Disease. The high IgA, IgG and positive genes are sufficient for a Celiac diagnosis. In fact, this study found that negative Endomysial antibodies might be related to long lasting untreated coeliac disease. Endomysial antibody‐negative c...
  20. knitty kitty
    @Jjk1992, Welcome to the forum! Having a slightly positive test result warrants more investigation. Like @trents said, a slightly positive result can be a reflection of decreased gluten consumption prior to the test. It's like being told you're a little pregnant. Was your Total IgA taken? If you have low Total IgA, your tTg IgA can...
  21. knitty kitty
    Hello, @Gilly M, I'm so sorry you are having such a difficult time. My doctors told me my symptoms were extreme anxiety, but high dose Thiamine actually relieved the anxiety. In my book, anxiety is the body's way of saying something is wrong. We're Thiamine Contingent. If we don't get sufficient Thiamine, our mitochondria and cells cannot function...
  22. knitty kitty
    You're very welcome, @Daisy23. Have you had a genetic test for Celiac Disease done? Since Celiac and dermatitis herpetiformis are genetic, you may want to consider having your daughter (children) checked, too. Keep us posted on your progress!
  23. knitty kitty
    @Daisy23, Yes! Sounds very familiar! Sounds like Dermatitis Herpetiformis, a skin manifestation of Celiac Disease. A biopsy next to, but not on top of, a blister should be taken. With special staining, Celiac Disease antigluten antibodies can be seen. A biopsy positive for Dermatitis Herpetiformis is a diagnosis of Celiac Disease. Unfortunately...
  24. knitty kitty
    @Rhapsody, Welcome to the forum! Geographic tongue has been linked to deficiencies in Pyridoxine Vitamin B6, Folate B9, and Cobalamine B12, as well as deficiencies in zinc, iron, and Vitamin D. Both types of Diabetes have been linked to low Thiamine Vitamin B1 levels. Celiac Disease causes malabsorption of essential nutrients like the...
  25. knitty kitty
    Do you include dairy products in your diet? Do you include gluten free breads and processed products?
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