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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Hello, @Whyz, You're in the "hurry up and wait" part of diagnosis. The anxiety can be hard to deal with. Do you have a hobby? I like knitting. Watching suspense movies (Alfred Hitchcock movies are a favorite) helps focus that anxiety which gets resolved by the end of the movie, a temporary relief, but helpful. I have a small hernia, which won...
  2. knitty kitty
    @ShariW, Some of us react to corn the same as we react to gluten because maize and gluten share some similar segments which trigger the Celiac autoimmune response. Maize Prolamins Could Induce a Gluten-Like Cellular Immune Response in Some Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC3820067/#:~:text=The current treatment...
  3. knitty kitty
    Have you tried Niacin? The form of niacin that causes flushing, nicotinic acid (not the same as nicotine in cigarettes) helps clear the tTg 3 IgA deposits out of the skin which causes the dermatitis herpetiformis blisters. (tTg 2 IgA is what blood tests for Celiac Disease measure). Niacin really helps heal and improve skin health. Niacin along with Benfotiamine...
  4. knitty kitty
    @TerryinCO, Pantoprazole is an acid suppressor, but Gerd is often caused by too little stomach acid, (hypochlorhydria), not too much. PPIs like yours suppress stomach acid production further, causing nutritional deficiencies. PPIs cause additional damage to the intestinal lining and can inhibit antibody production in the intestines resulting in low...
  5. knitty kitty
    Because of your anemia, you may not be making sufficient antibodies. I hope they did a total IgA as well as the tTg IgA, and DGP IgG. I hope you will share the results with us. If your body isn't making a large amount of antibodies, then the intestinal damage would be less as well. The antibodies attacking our own cells is what causes the damage...
  6. knitty kitty
    Welcome to the forum, @ellyelly! How much gluten were you eating in the weeks prior to the endoscopy? Many people with indeterminate results had cut down or eliminated gluten from their diet beforehand. This can lower the autoimmune response and decrease the symptoms (lower antibody levels, reduced inflammation and intestinal damage may heal). ...
  7. knitty kitty
    @TerryinCO, Are you taking a B Complex in addition to your B12? B 12 needs the other B vitamins to function correctly. Celiac disease and the damage to the intestines makes absorbing vitamins and minerals difficult. Talk to your doctor and nutritionist about supplementing while you're healing. Are you on any medication for your Gerd? Here...
  8. knitty kitty
    Bless your heart! That does make for a bumpy journey! The Takeda ALINAMIN EX Plus really works well for pain relief. I was surprised at how well it works. I can't recommend it enough. I can't tolerate aspirin nor nsaids. Are you getting enough Omega Threes in your diet? Healthy fats like olive oil help keep our discs and joints healthy and...
  9. knitty kitty
    Welcome to the forum, @trsprecker, I needed daily pain relief for three crushed vertebrae and found out that Thiamine, Pyridoxine, and Cobalamin (Vitamins B 1, B 6, and B12) have an analgesic effect. Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih...
  10. knitty kitty
    Welcome to the forum, @TerryinCO, Have you been checked for nutritional deficiencies? Damage to the intestines like your doctor found affects the absorption of essential nutrients. Supplementing with B Complex, Vitamin D, and minerals like magnesium help ensure you are absorbing vitamins your body needs to heal. Weight loss is often seen in the malnutrition...
  11. knitty kitty
    Pancreatic elastase is a digestive enzyme that requires Thiamine Vitamin B 1 to be produced. Thiamine is needed to make insulin, too. Thiamine, Niacin B 3, and Pyridoxine B6 are needed to make digestive enzymes and turn carbohydrates, fats and proteins into energy for the body, and for repair and healing of the body. The Gluten free diet can be low in...
  12. knitty kitty
    @Sharke, The updated guidelines for a gluten challenge are to eat ten grams of gluten per day for two weeks minimum. Lesser amounts of gluten (3 grams) don't provoke an immune response strong enough that the antibodies leave the gastrointestinal tract and get into the blood where they can be measured in tTg blood tests. Have no doubt that the...
  13. knitty kitty
    @sillyyak52, Count another one in the same boat! My family has always been in denial. They said my tummy aches were a ploy to miss school. My parents passed from health problems associated with uncontrolled Celiac Disease (Abdominal Aortic Aneurysm and Glioblastoma brain tumor). My sister still has her head buried in the sand. I agree with...
  14. knitty kitty
    I take Life Extension brand Mega Benfotiamine, (250 mg with each of two meals) and Maxlife Natural TTFD-B1 Max Thiamine (100 mg). I try to take my Benfotiamine and TTFD before four pm, otherwise I have so much energy, it can be hard to fall asleep.
  15. knitty kitty
    Some people react to the Casein in dairy the same as to gluten, like me. I avoid dairy avidly because I get ataxia so bad. Some Celiac people produce tTg 6 antibodies in response to gluten or casein. tTg 2 antibodies are what blood tests for Celiac measure. tTg 6 antibodies are also found in Alzheimer's and Parkinson's diseases, contributing to ataxia...
  16. knitty kitty
    I agree that you were not eating sufficient gluten prior to your endoscopy.
  17. knitty kitty
    @Soleihey, Do get checked for thiamine deficiency. Blood tests for thiamine deficiency are not accurate. You can have "normal" levels in the blood, but still be deficient because thiamine stores inside cells are depleted. Thiamine deficiency can cause ataxia, tremor, muscle twitching, leg weakness, constipation, and slurred speech. I had these...
  18. knitty kitty
    Hi, how are you doing? Have you been checked for nutritional deficiencies? The pancreas uses lots of Thiamine to make digestive enzymes and insulin. Deficiencies in Thiamine, or Vitamin D can affect the balance. P. S. Interesting articles: Proinflammatory cytokines inhibit thiamin uptake by human and mouse pancreatic acinar cells: involvement...
  19. knitty kitty
    Hi, how are you doing? Have you tried a low histamine diet? I was wondering because you said you had refractory celiac. Steroids will lower histamine, but I wondered if you were following a low histamine diet in addition. Have you been checked for nutritional deficiencies?
  20. knitty kitty
    @SaiP, I noticed that you are eating foods that are high in histamine. Bananas, avocados, spinach, gluten, and tuna are high histamine foods or are histamine liberators. Histamine is released by mast cells in the body as part of the autoimmune reaction to gluten. High histamine foods add to that histamine burden, making clearing histamine difficult...
  21. knitty kitty
    How are you doing, @sadiec123? Did you get through the holidays alright? Have you been checked for nutritional deficiencies? Many newly diagnosed Celiacs are low in Vitamin D and many of the B vitamins like thiamine. Thiamin insufficiency can cause weight loss and loss of appetite (anorexia) as well as affect mood. Benfotiamine has been shown...
  22. knitty kitty
    I agree, @Sarah Marie, it's best to keep eating gluten and get on the doctor's cancellation list. Some people have extreme symptoms when reintroducing gluten after a brief abstinence. Be sure she consumes six slices of bread or gluten-y equivalent a day in the two weeks prior to the endoscopy. There are different amounts of gluten in different products...
  23. knitty kitty
    Those are links to articles on this site. I don't do Instagram either. https://www.celiac.com/celiac-disease/cross-reactivity-between-anti-gliadin-antibodies-and-proteins-in-spices-may-trigger-symptoms-in-some-people-with-celiac-disease-r5900/ And https://www.celiac.com/celiac-disease/beyond-gluten-exploring-lesser-known-triggers-and-cross...
  24. knitty kitty
    Canker sores can be more frequent if deficient in zinc, Thiamin B1, Riboflavin B2, Pyridoxine B6, Cobalamine B12, Folate B9, iron and Vitamin D. Following a low histamine paleo diet helps heal. Mast cells in our body make histamine and release it as a part of the inflammation process. Foods that contain high histamine levels can make inflammation...
  25. knitty kitty
    @dlaino, Which symptoms are getting worse for you? Which vitamins do you take? Do you take Vitamin D?
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