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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    The AIP diet restricts carbohydrates for the first few weeks. Excluding carbohydrates changes your microbiome. The bacteria that live in the intestines that feed on carbs get starved out when you don't eat carbs. Small Intestinal Bacterial Overgrowth (SIBO) occurs frequently in Celiac Disease. SIBO can cause gas, bloating, and diarrhea, symptoms similar...
  2. knitty kitty
    Hello there! Just wondering how things are going for you. Did you try the Benfotiamine? I'm always curious how others fare after taking thiamine. Hope you can post an update. Hope you're doing well!
  3. knitty kitty
    @Liquid lunch, I prefer the AutoImmune Protocol Diet, developed by a Celiac, Dr. Sarah Ballantyne. I would be interested on your point of view about the AIP diet compared to the Lectin Free diet. Here's some research on both.... Dietary Lectin exclusion: The next big food trend? https://pmc.ncbi.nlm.nih.gov/articles/PMC660380...
  4. knitty kitty
    Hey, @James47, I encourage you to avoid alcohol completely. Alcohol affects your ability to absorb essential vitamins and minerals just like Celiac does. The body can crave alcohol because alcohol breaks down into glucose and the brain likes glucose for fuel. Carbohydrates breakdown into glucose, too, but more thiamine is needed to...
  5. knitty kitty
    Lectins are carbohydrate storage proteins. Different plants have different lectins. Gluten is a lectin, but not all lectins are gluten. Lectins are made up of a protein "spine" with a bunch of carbohydrate molecules stuck to it. During digestion, the carbohydrates get pulled off, but that protein "spine" can get stuck to cell membranes. In...
  6. knitty kitty
    Lectins are carbohydrate storage proteins. Different plants have different lectins. Gluten is a lectin, but not all lectins are gluten. Lectins are made up of a protein "spine" with a bunch of carbohydrate molecules stuck to it. During digestion, the carbohydrates get pulled off, but that protein "spine" can get stuck to cell membranes. In...
  7. knitty kitty
    Hope you're feeling better. I use a combination of Thiamine, Cobalamine, and Pyridoxine (Vitamins B 1, B12, and B6) for pain relief. Together these vitamins together have pain killing effects (analgesic). They are water soluble, so the body can easily excrete any excess. They are safe to take. Hope this helps. Mechanisms of action...
  8. knitty kitty
    @Itsabit, Ask your doctor for an erythrocyte transkelatose test to measure thiamine. It's a better measure of thiamine deficiency than a serum test.
  9. knitty kitty
    Hello, @Itsabit, Your journey sounds very similar to mine. I'm very concerned about your diet since you say you don't eat a lot of meat, which is the main source of B vitamins. Nutritional deficiencies go along with Celiac Disease. Blood tests are not accurate measurements of deficiency states. The body robs stored vitamins from organs to circulate...
  10. knitty kitty
    Hello, @Jack Common, I know how frustrating health mysteries can be. Perhaps you're having a reaction to the medication you were given for the giardiasis you mentioned in another post. The giardiasis infection would account for the high Igg results. Have you been reinfected? The site I've linked below has lots of information about the long...
  11. knitty kitty
    Hello, @Jack Common, I know how frustrating health mysteries can be. Perhaps you're having a reaction to the medication you were given for the giardiasis. The giardiasis infection would account for the high Igg results. Have you been reinfected? The site I've linked below has lots of information about the long term consequences of being treated...
  12. knitty kitty
    Welcome to the forum, @LookingForAnswers101, I had similar experiences with boil outbreaks in the same areas. Mine was caused by Candida Albicans and eating a diet too high in sugar and simple carbohydrates. Candida is a yeast infection, so the antibacterial wash is not going to help. I had to change my diet to a Paleo diet before it went away...
  13. knitty kitty
    @meghanf, If they are not showing symptoms of Celiac Disease, please, don't expose them to gluten. If your daughters have been gluten free all this time, keeping them gluten free now is the best way to prevent them from developing Celiac Disease in the future. Have a genetic test done to see if they carry any known genes for Celiac Disease...
  14. knitty kitty
    Welcome to the forum, @JuggaloDad, Kudos to you for being such a concerned parent! Gluten can attach to opioid receptors throughout the human body, including the brain. Gluten in the brain can be attacked by tTg 6 antibodies. This inflammation can cause ataxia. TTg 6 antibodies are also found in diseases involving ataxia such as Alzheimer's and...
  15. knitty kitty
    Hello, @Kwinkle, How are you doing? Have you tried adding a Magnesium supplement? The B Complex vitamins need magnesium to work properly, especially thiamine vitamin B 1. Magnesium deficiency symptoms and Thiamine deficiency symptoms both include gas and bloating. Thiamine deficiency symptoms also include loss of appetite and fatigue...
  16. knitty kitty
    If you have poor reactions to vaccines, preservatives, sugar alcohols and metals, you may be deficient in Thiamine Vitamin B1. Thiamine is needed in the immune response and production of antibodies. Thiamine can be depleted by vaccines if you are already low to begin with due to the Malabsorption of Celiac Disease. Thiamine can be destroyed by sulfide...
  17. knitty kitty
    @Pasballard, Keep in mind those gluten free processed snacks are not required to have vitamins and minerals added to them to replace vitamins lost in processing like gluten containing products. We need the eight essential B vitamins to turn those carbs into energy to fuel our bodies and make enzymes that sustain life. Sudden weight gain (or weight...
  18. knitty kitty
    Welcome to the forum, @WildFlower1, Here's an article that explains about the updated gluten challenge guidelines. Be sure to read the comments below the article. Have you been checked for nutritional deficiencies? Low iron can affect antibody production, causing false negatives on antibody testing. Do you currently struggle with low iron? ...
  19. knitty kitty
    Wow, @plumbago, Curiouser, and curioser... Have you been fasting? Apparently HDL levels increase after fasting... https://ajcn.nutrition.org/article/S0002-9165(23)31185-7/abstract I must say it, try taking some Thiamine. Thiamine helps regulate lipoproteins... Thiamine helped lower HDL in this study whether they had diabetes or...
  20. knitty kitty
    @plumbago, Are you taking any folate with your B12? Folate helps regulate HDL levels. You may try taking a methylfolate supplement with your B12. If there's a folate deficiency because you aren't absorbing sufficient folate, or have the MThF mutation causing a functional folate deficiency (methylfolate trap), you can have a functional B12 deficiency...
  21. knitty kitty
    @Manaan2, I was on Miralax for several months after I crushed three vertebrae and fractured my hip. The compression fractures of my vertebrae affected the Vagus nerve that stimulates digestion and intestinal movement, peristalsis. Miralax just didn't relieve the constipation I was experiencing at all. Nothing budged. I tried Milk of Magnesia...
  22. knitty kitty
    @Manaan2, I'm so happy to hear you're going to try thiamine and magnesium! Do let us know the results! You may want to add a B 50 Complex with two meals of the day to help boost absorption. Thiamine interacts with each of the other B vitamins which are all water soluble. When supplementing magnesium, make sure to get sufficient calcium...
  23. knitty kitty
    @Manaan2, You may want to consider switching from Miralax (polyethylene glycol) to magnesium citrate and Thiamine supplements. When I was prescribed Miralax for constipation, I developed worsened gastrointestinal problems, including worsening leaky gut syndrome. Since polyethylene glycol is a synthetic chemical made from petroleum or coal byproducts...
  24. knitty kitty
    Welcome to the forum, @Bebee, Yes, Celiac Disease has genetic commonalities with MS, hypothyroidism, arthritis, Reynaud, and rosacea. Usually a gluten challenge is done before endoscopy with biopsies taken, however I would not recommend a gluten challenge before endoscopy with biopsies for you since you have been gluten free for so long and have...
  25. knitty kitty
    Yes, some people with Celiac do react to quinoa. I know i do. Apparently, two different "breeds" of quinoa can stimulate the immune system. Read here... Variable activation of immune response by quinoa (Chenopodium quinoa Willd.) prolamins in celiac disease https://pubmed.ncbi.nlm.nih.gov/22760575/#:~:text=Cultivars Ayacuchana and Pasankalla...
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