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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @Baz, Oh, yes, indeed, the symptom improvement for me was within an hour. I was extremely low, so my improvement was probably more dramatic than most. I had Wernicke's Encephalopathy but do not drink. (Alcohol makes me feel like I drank ground glass.) If you want to be checked for vitamin deficiencies, do it before taking supplements. Once...
  2. knitty kitty
    Riboflavin Vitamin B 2 helps with migraines. I had migraines so bad while deficient. Thiamine B 1 helps with brain fog. Hope you feel better! Keep us posted on your progress!
  3. knitty kitty
    Hey, @Baz, My yawning and anxiety were due to Thiamine deficiency. I was yawning all the time and having more frequent anxiety which escalated to panic attacks. The Thiamine deficiency progressed to Gastrointestinal Beriberi, which has the same symptoms as you mentioned, gas bloating and diarrhea. Alcohol consumption can cause Thiamine...
  4. knitty kitty
    I wouldn't recommend lite breads. They're packed with fillers, often excessive fiber and resistant (hard to digest) starches, that will not make your challenge pleasant. Excessive fiber makes for frequent bathroom trips.
  5. knitty kitty
    Welcome to the forum, @ShelleyWeiser, No, serum B12 levels cannot be used as an indicator of absorption. Your Marsh scores are a better indicator of poor absorption. Have you had an endoscopy to check for healing in the intestines recently? Your high Anti-Gluten antibodies could be a reaction to Casein, the protein in dairy that causes the...
  6. knitty kitty
    If you're not eating sufficient gluten, before the antibody tests, they can be negative. You need to be eating 4 - 6 slices of bread per day for at least two weeks prior. The more the better to provoke a reaction. 3 grams of gluten a day is enough to cause symptoms but is not enough to cause the antibody level to get high enough to show up in the bloodstream...
  7. knitty kitty
    @ShaynaL530, If you're not eating sufficient gluten, before the antibody tests, they can be negative. You need to be eating 4 - 6 slices of bread per day for at least two weeks prior. 3 grams of gluten a day is enough to cause symptoms but not enough to cause the antibody level to get high enough to show up in the bloodstream. You have to be eating...
  8. knitty kitty
    @kerey knapp, Be sure you continue eating a sufficient amount of gluten before the endoscopy next month (4-6 slices of bread or equivalent a day). If you go gluten free now, your blood antibodies will disappear and your intestines won't show as much damage from Celiac Disease. Make sure the doctor takes several biopsies because the damage can...
  9. knitty kitty
    @Aine, The common factor is the HLA genes that all these autoimmune diseases share. It's possible you had Celiac Disease which caused the anemia. Skin manifestations of Celiac Disease can take various forms, dermatitis herpetiformis, eczema, psoriatic, and more. Hashimoto's thyroiditis can be precipitated by antigluten antibodies attacking...
  10. knitty kitty
    @GardeningForHealth, Have you tried cutting out of your diet all processed gluten free facsimile foods to see if your symptoms improve? I found following a low histamine Paleo diet (the Autoimmune Protocol Diet) extremely helpful in lowering histamine levels, lowering inflammation, and calming mast cells. Supplementing with essential vitamins...
  11. knitty kitty
    Deficiency in Thiamine Vitamin B1 will show up on MRIs as white spots on the brain in certain areas including the cerebellum. It's called Nonalcoholic Wernicke's Encephalopathy. Thiamine is on of eight essential B vitamins. To recover from deficient thiamine, high doses are required quickly so that the brain damage will not be permanent. Yes, non...
  12. knitty kitty
    It has to do with Mast Cell Activation Syndrome. Mast cells become activated when the immune or autoimmune response is triggered, as in Celiac Disease or a cold. If stimulated for long enough, frequently enough, mast cells develop "itchy trigger fingers" and release infection fighting histamine at the least provocation. High levels of histamine cause...
  13. knitty kitty
    Cashews can cause diarrhea... https://www.livestrong.com/article/494134-effect-of-cashews-on-digestion/
  14. knitty kitty
    @KierstenL, Your symptoms sound similar to mine when I started gluten free. Celiac Disease causes malabsorption. You're not absorbing sufficient nutrients, vitamins and minerals. Vitamin B1, thiamin, runs out first because it cannot be stored for longer than three weeks, and we need so much of it, especially when we're sick, emotionally...
  15. knitty kitty
    @Jacobx823, You may be having a reaction to the various nuts in Larabars like I did. Almonds are very hard to digest, as are most other nuts. Celiac Disease can lead to other food sensitivities. Lowering your intake of high histamine foods like nuts can help lower inflammatory responses. I get dates and have never been glutened by them...
  16. knitty kitty
    @suzy q, Welcome to the forum! I have had pain from crushed vertebrae, but I found that a combination of Thiamine (in the form called Benfotiamine, Vitamin B 1), Pyridoxine (Vitamin B 6), and Cobalamine (Vitamin B12) have analgesic effects. Doctors are not given much nutritional education, so they miss the importance of correcting malnutrition...
  17. knitty kitty
    @Jimmy2014, I looked up the ingredients in the iron formulation your son is taking. It contains carrageenan, derived from seaweed. I have had a problem with carrageenan in iron supplements and processed gluten free foods to enhance texture. Due to the high iodine content, carrageenan causes Dermatitis Herpetiformis outbreaks. Dermatitis Herpetiformis...
  18. knitty kitty
    @Judith Drexler, Pesto Bismol contains aspirin. Aspirin is an NSAID. NSAIDs cause continuing inflammation and villi damage. I was given the same advice. Pesto Bismol overtime just tore my digestive system up more. I found taking Tryptophan supplements much better. Tryptophan helps calm and repair the digestive tract. Benfotiamine promotes intestinal...
  19. knitty kitty
    The Autoimmune reaction to gluten includes the release of histamine by mast cells. High histamine level symptoms include brain fog, anxiety and depression. Panax ginseng lowers histamine by preventing mast cells from releasing histamine. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3659609/ Histamine can be found in foods, too. You might...
  20. knitty kitty
    Yes, unfortunately, the dairy protein casein can cause damage to the villi lining the intestines just like gluten. Mucosal reactivity to cow's milk protein in coeliac disease https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1810502/
  21. knitty kitty
    @Murilo P, All the vitamins and minerals have been important to recovery. Vitamin D is an important immune system regulator and can help lower inflammation. Vitamin D improves depression. Mine was severely deficient. Vitamins A, E, and K are the other fat soluble vitamins. (Vitamin E is mostly made from wheat, so be careful there.) People...
  22. knitty kitty
    Undermethylation is due to deficiencies in Thiamine and Cobalamine B12, and Folate B 9. Dr. Lonsdale and Dr. Marrs' website explains it here. https://hormonesmatter.com/paradoxical-reactions-ttfd-methylation-connection/ Thiamine can't work properly if there's insufficient Cobalamine B12 and Folate B 9 for the methylation. The eight essential...
  23. knitty kitty
    @Nicole Maree, Here are a few articles to get you started... The Autoimmune Protocol Diet really made a big difference, I felt much better quickly following this diet... https://www.healthline.com/nutrition/aip-diet-autoimmune-protocol-diet#what-it-is And.... Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free...
  24. knitty kitty
    Thiamine Mononitrate is not utilized very well by the body. Only about twenty percent of that big dose will actually get used. Thiamine Mononitrate is shelf-stable, meaning it won't breakdown while sitting in a bottle on a shelf. It also means that thiamine mononitrate is difficult for the body to break down and use, too. A better, more useable...
  25. knitty kitty
    There are eight essential B vitamins. They depend on each other to work properly. Thiamine interacts with each and every B vitamin. Thiamine and Pyridoxine B6 make life sustaining enzymes. Same for Thiamine and Riboflavin. Since the gluten free diet can be low or deficient in B vitamins, it's better to take some of all of them. I would like...
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