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knitty kitty

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Everything posted by knitty kitty

  1. knitty kitty
    Welcome to the forum, @Travel Celiac! You have to be consuming gluten for your body to trigger the autoimmune response and produce anti-gluten antibodies. If you're not consuming gluten, the autoimmune response is not triggered and you won't produce anti-gluten antibodies. Celiac Disease is genetic. Your genes don't change. You will always have...
  2. knitty kitty
    @Whyz, I take a combination of Thiamin (Benfotiamin), B12 Cobalamine and Pyridoxine B6 for my pain and headaches. Really works well without hurting the digestive tract. Riboflavin B2 also helps with migraines. Most newly diagnosed people have vitamin and mineral deficiencies. Check with your doctor and nutritionist. If you follow the updated...
  3. knitty kitty
    Welcome to the forum! Keep in mind that if you quit eating gluten before all testing is done, you may have inaccurate, possibly false negative, test results. When you stop eating gluten, your body stops making the antibodies which are measured in the blood tests. Stopping gluten before an endoscopy may make the intestinal damage harder to detect, and...
  4. knitty kitty
    Since you're having a last hurrah with gluten, request another round of blood tests for celiac antibodies. Make sure you're eating ten grams or more daily for those few weeks before your capsule endoscopy. You probably weren't eating a sufficient amount of gluten needed to provoke sufficient antibody production.
  5. knitty kitty
    Hashimoto's is a type four hypersensitivity. Read what this doctor did about hers... https://thyroidpharmacist.com/articles/food-sensitivities-and-hashimotos/ She adopted a Paleo diet. Once you get your inflammation down, and your nutrients up, your body's immune system can calm down and quit reacting to every little thing.
  6. knitty kitty
    @GardeningForHealth, On my journey, I found following the Autoimmune Paleo Diet most helpful in reducing reactions to various foods. It's very restrictive, but it really helps improve gut health. It's worth the effort for a few weeks or months. Tea from any grocery store; Tea, organic; Tea, grown in USA, never-sprayed, loose leaf Tea contains...
  7. knitty kitty
    Gluten can cause inflammation in the digestive tract and that includes the mouth. Also, nutritional deficiencies can cause oral inflammation. Cobalamine B12 deficiency and Niacin B3 deficiency can result in swollen irritated tongues and mouth sores. Salt would definitely cause further irritation.... Like pouring salt in a wound....
  8. knitty kitty
    @Barcino, Yes, do try cutting out dairy. About half of people with Celiac Disease react to the protein in dairy, Casein, the same as to gluten because of similar protein segments. Others have Lactose intolerance because their damaged intestinal lining, the villi, are damaged and can't produce the enzyme lactase which breaks down the sugar in dairy...
  9. knitty kitty
    Many probiotics start with growing the bacteria on a dairy substrate leaving traces of dairy in the probiotics. Many Celiacs react to dairy in the same way as they react to gluten because certain protein chains in dairy resemble gluten protein chains. @Wheatwacked ferments his own pickles. Perhaps he can chime in.
  10. knitty kitty
    The AIP diet does have a vegetarian version. Dr. Sarah Ballantyne developed the AIP diet for herself and her children, all Celiacs. The AIP diet has been shown in scientific studies to promote intestinal healing. You might visit her website. https://www.thepaleomom.com/
  11. knitty kitty
    @BoiseNic Have you tried the Autoimmune Protocol Diet? This Paleo diet cuts out most everything except meat, veggies and some fruits. By cutting out all the carbohydrates, especially processed ones, the carbohydrate loving bacteria and fungi like Candida get starved out and die off. After that, taking probiotics to help repopulate the gut is beneficial...
  12. knitty kitty
    @Juliana82, Is the bleeding occurring when you throw up? Or with bowel movements? Constipation? Is it bright red or black and tarry? Anal fissures? Crohn's or Colitis? Alcohol consumption? Diabetes, Thiamine deficiency and anemia can cause false negatives. Most diabetics are deficient in Thiamine. Thiamine deficiency can also occur due...
  13. knitty kitty
    @Vozzyv, Certain nutritional deficiencies can cause tinnitus, ringing in the ears. Vitamins A and D, Thiamine B1, Riboflavin B2, Pyridoxine B6, Folate B9, Cobalamine B12, magnesium, zinc and Vitamin C can cause tinnitus individually if deficient. The malabsorption of Celiac Disease affects all the nutrients our bodies need. Many of these nutrients...
  14. knitty kitty
    @Milarynn, Welcome to the forum! Many undiagnosed, untreated Celiac Disease patients have vitamin and mineral deficiencies. Be sure to have your Vitamin D level checked. Vitamin D helps prevent bone loss, including loss from the jaw and teeth. Magnesium and calcium are both important to bone health as well. Magnesium helps keep the...
  15. knitty kitty
    @CeliacPsycho246, You might try cutting out dairy. Some of us react to Casein, the protein in dairy, the same as to gluten.
  16. knitty kitty
    "Doses higher than the RDA are sometimes used to treat medical problems such as vitamin D deficiency, but these are given only under the care of a doctor for a specified time frame. Blood levels should be monitored while someone is taking high doses of vitamin D." Quoted from the Healthline article @Yaya linked above...
  17. knitty kitty
    https://jamanetwork.com/journals/jama/fullarticle/2748796 If read carefully, this study @Yaya refers to was done on healthy people. "Meaning Among healthy adults, supplementation with higher doses of vitamin D did not result in improved bone health; further research would be needed to determine whether it is harmful." "...311 community-dwelling...
  18. knitty kitty
    Oh, @Yaya! Five years??? How awful for you to suffer so long! My Vitamin D came up in a matter of months. High dose Vitamin D has been used in the past to correct rickets and is a safe method to correct Vitamin D deficiency. I took 1000 IU several times a day, every day for several weeks. I ate them like m&m's when I was severely deficient...
  19. knitty kitty
    @CeliacPsycho246, My OCD symptoms resolved after I took supplements of the active form of Pyridoxine B6 called P5P and L-Theanine, an amino acid. Pyridoxine B6 is absorbed from foods or supplements and then must be changed to its active form. P5P is the active form. Inflammation and malabsorption can impede this process. Taking the active form...
  20. knitty kitty
    Hello, I'd have been here sooner, but I got tangled up in yarn... Restless leg syndrome (RLS) I've had. It's often associated with iron deficiency and B12 deficiency, but can also show up with any deficiencies in Vitamin C, copper, Vitamin D, and Thiamine, Pyridoxine, and magnesium. B12, Thiamine, and Pyridoxine will also help with peripheral neuropathy...
  21. knitty kitty
    @glucel, I agree with @trents. You can still do the AIP diet while taking aspirin. I'm one of those very sensitive to pharmaceuticals and have gotten side affects from simple aspirin. Cardiac conduction abnormalities and atrial arrhythmias associated with salicylate toxicity https://pubmed.ncbi.nlm.nih.gov/3952006/ Another part...
  22. knitty kitty
    Hi, @Dawn R., I get gluten ataxia. It's very disconcerting. Are you still experiencing gluten ataxia symptoms eating a gluten free diet?
  23. knitty kitty
    @Jordan Carlson, Sorry to hear you're having a bumpy journey right now. I've been there. I thought I was never going to stop having rashes and dermatitis herpetiformis breakouts and hives, oh, my! I went on a low histamine Autoimmune Protocol Diet (AIP diet). It gave my digestive system time to heal. After I felt better, I could add things back...
  24. knitty kitty
    @GardeningForHealth, How are things going for you? I found another topic you might be interested in... To Be or Not to Be a Pathogen: Candida albicans and Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6906151/
  25. knitty kitty
    @Jordan Carlson, How are you doing now? Your post slipped by, but I had to let you know you weren't alone. I've had cravings for raw meat my whole life. It's due to being low or deficient B vitamins, specifically Thiamine. Meat is a great source of B vitamins. Cooking meat destroys some of the vitamins, so a craving for raw or rare meat shows...
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