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knitty kitty

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Everything posted by knitty kitty

  1. knitty kitty
    Welcome to the forum, @Gill.brittany8, Yes, the bloodwork is confusing. One has to be eating a sufficient amount of gluten (10 grams/day, about 5-6 slices of bread) in order for the antibody level to get high enough to be measured in the bloodstream. If insufficient amounts of gluten are eaten, the the antibodies stay in the small intestines...
  2. knitty kitty
    The intestinal tract can be as long as twenty-two feet long, so intestinal damage may be out of the reach of endoscopy tools. Some people have had more success with capsule endoscopy, but this method cannot take biopsies.
  3. knitty kitty
    @Jack Common, It's possible that your antibiotic for giardiasis has caused thiamine deficiency. https://hormonesmatter.com/metronidazole-toxicity-thiamine-deficiency-wernickes-encephalopathy/ And... Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/ For clarification...
  4. knitty kitty
    Sorry about that link. It was meant for a different post. Do consider taking high dose Vitamin D in order to get your level up to around 80 nm/l quickly. This is the level where Vitamin D can properly work like a hormone and can improve the immune system and lower inflammation. It makes a big difference. I took high dose Vitamin D and really...
  5. knitty kitty
    @ABP2025, Here's some studies and articles that will help you learn more about thiamin and all... I will write more later. https://hormonesmatter.com/thiamine-deficiency-testing-understanding-labs/ And... Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/ and... ...
  6. knitty kitty
    Welcome to the forum, @Kiwifruit, I agree further testing is needed. Disaccharidase deficiency is a symptom of Celiac disease. On your test results, this line "IgA: 0.9 g/l (norm 0.8 - 4.0)" is referring to Total IgA and it's very low. People with low or deficient Total IgA should also have DGP IgG test done. Low Total IgA means you are making...
  7. knitty kitty
    Welcome to the forum, @Debado, Migraines at night can be caused by high levels of histamine. Histamine Intolerance can cause physical symptoms like migraines. Foods contain histamine. Our bodies make histamine, an important neurotransmitter. Our bodies naturally produce more histamine at night as part of our circadian rhythm, our sleep-wake cycles...
  8. knitty kitty

    Gluten migranes at night

    knitty kitty commented on Debado's blog entry in Debado

    How did your doctor arrive at the gluten intolerance diagnosis? You may want to consider finding a different doctor, one who is more familiar with Celiac disease. To be properly tested you will be asked to undergo a gluten challenge. I'm attaching an article below. Also consider getting a DNA test to look for the genes needed for Celiac disease...
  9. knitty kitty
    @ABP2025, Have you thought about having a DNA test to check for known Celiac genes? I do hope you will make sure that you are getting sufficient gluten to provoke an autoimmune response strong enough that the antibodies can be measured in the blood. See article below. Celiac disease affects the absorption of nutrients, including vitamins...
  10. knitty kitty

    Gluten migranes at night

    knitty kitty commented on Debado's blog entry in Debado

    Welcome to Celiac.com, @Debado, Migraines at night can be caused by high levels of histamine. Histamine Intolerance can cause physical symptoms like migraines. Foods contain histamine. Our bodies make histamine, an important neurotransmitter. Our bodies naturally produce more histamine at night as part of our circadian rhythm, our sleep-wake...
  11. knitty kitty
    @Jack Common, You could do a DNA test to see if you have any of the known genes for Celiac Disease. If you don't have any genes for celiac disease, look to another source for your health problems. If you do have celiac disease genes and have improvement on the gluten free diet, you probably have active Celiac. Further testing would be beneficial. ...
  12. knitty kitty
    @aperlo34, Those symptoms sound awfully familiar to me. Here's what I did for mine... I got my Vitamin D up quickly by taking Vitamin D3 supplements several times throughout the day. High dose Vitamin D supplementation is safe and effective in raising deficient Vitamin D levels. Aim to get your level up around 80. Our bodies work better with...
  13. knitty kitty
    Which supplements are you taking?
  14. knitty kitty
    Celiac disease can be triggered by an infection or a traumatic physical or emotional stress. Some people can have relatively mild or no gastrointestinal symptoms for years, but additional stresses can push one over the edge and more or worsening symptoms appear.
  15. knitty kitty
    You have to add in how long you were an undiagnosed Celiac....
  16. knitty kitty
    @PlanetJanet, Sorry to hear about your back pain. I have three crushed vertebrae myself. I found that a combination of Thiamine, Cobalamin and Pyridoxine (all water soluble B vitamins) work effectively for my back pain. This combination really works without the side effects of prescription and over-the-counter pain meds. I hope you will give them...
  17. knitty kitty
    Yes, though histamine itself may not taste salty, histamine is present in mucus and tears which contain sodium chloride because salt is a great antimicrobial.
  18. knitty kitty
    @Matt13, Your symptoms sound similar to the ones I had. I had developed nutritional deficiencies, in particular, thiamine deficiency. Gastrointestinal BeriBeri has all those symptoms and the fatigue was horrible. Quick field test from WHO: can you rise unaided from a squat? If you have a serious thiamine deficiency, you cannot stand back...
  19. knitty kitty
    Part of the body's immune reaction to gluten is to release histamine. This tastes salty, just like tears and snot.
  20. knitty kitty
    I've had dry eye symptoms. The eye drops did not help me. What did help was making sure I was consuming Omega Three fats like flax seed oil and olive oil, and taking essential B vitamins, especially Riboflavin, Thiamin, and Vitamin C, as well as Vitamin A, one of the fat soluble vitamins. Newly diagnosed Celiac can have trouble absorbing fats and...
  21. knitty kitty
    Welcome to the forum, @Newhere19, I agree with @Beverage about getting a DNA test for Celiac genetic markers and trying the gluten free diet. An endoscopy would be able to check for visible damage and allow biopsies to be taken to examine for microscopic damage. Some people have camera endoscopy. Would this be a possibility? Sending...
  22. knitty kitty
    Hi, @Matt13, About half of people with Celiac Disease react to Casein, the protein in dairy, in the same way as to the protein Gluten. They have similar segments of polypeptides which trigger the autoimmune response of Celiac Disease. Damage to the Villa lining the intestines can be patchy or beyond the reach of the endoscopy equipment. Hope...
  23. knitty kitty
    Nutritional deficiencies caused by undiagnosed, untreated Celiac Disease can cause symptoms like you describe. Malabsorption of nutrients is caused by damage to the intestinal lining which makes absorbing essential nutrients difficult. We need to absorb sufficient vitamins and minerals from our diet everyday to make sure our body functions properly. Different...
  24. knitty kitty
    @Travel Celiac, Doing a happy dance with you!!! You're doing very well!!! Kudos for being a rescuer! Hip Hip Hooray! Yes, strenuous exercise can raise your IgA, as can viral infections like the common cold or Covid. https://pmc.ncbi.nlm.nih.gov/articles/PMC9574171/ Do discuss with your doctor the nutritional deficiencies that frequently...
  25. knitty kitty
    @Kipman, Ask for a genetic test to determine if you have any of the known genes for Celiac Disease. Anemia, Thiamine deficiency and diabetes can each cause false negatives and low IgA. You may want to investigate these further with your doctor. Celiac Disease can occur with Ehlers-Danlos Syndrome, another genetic autoimmune disease. Ehlers...
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