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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Check the label and tell us what kind of B12 is in your gummies. If it's Cyanocobalamin, switch to a methylated (active) form of B12. Some of us need to take the active form of B12 because our bodies have problems turning other forms of B12 into the active methylated form due to MTHFR genetic variations. Take a B Complex supplement, too...
  2. knitty kitty
    @Zoe26, Has he been checked for vitamin deficiencies? Is he pulling up to standing position? Does he crawl? I ask because delayed development can be associated with nutritional deficiencies. Having a hoarse low voice is symptomatic of Thiamine deficiency in children and adults. Complete loss of voice is possible, too. ...
  3. knitty kitty
    I found this article very interesting... Carrier frequency of HLA-DQB1*02 allele in patients affected with celiac disease: A systematic review assessing the potential rationale of a targeted allelic genotyping as a first-line screening https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7109277/ Not a doctor.
  4. knitty kitty
    @Zoe26, Does your son have a hoarse voice?
  5. knitty kitty
    Yes, a company that has dedicated lines where gluten is never processed on it is optimal.
  6. knitty kitty
    This is the label from my store brand "tater bites" : "Potatoes, Vegetable Oil (Contains One or More of the Following Oils: Canola, Soybean, Cottonseed, Sunflower, Corn). Contains 2% or Less of Modified Corn Starch, Dehydrated Onion, Dextrose, Salt, Sodium Acid Pyrophosphate (To Promote Color Retention). Allergen Info Free from Does Not Contain...
  7. knitty kitty
    Hi, @Eldene, Make sure you're getting sufficient Omega Three fats which will help with satiety. Omega Threes vegetarian sources are Chia seeds, flaxseed, and walnuts. What are the ingredients in your protein smoothie? What do you normally include in your "plant-based healthy meals, with enough protein"?
  8. knitty kitty
    @Wormsy22, B12 and Folate can be high if there's a deficiency in Pyridoxine B6 and Thiamine B1. Do consider a gluten challenge with 10 grams (4-6 slices of bread or equivalents) for several weeks before having complete blood tests for antigluten antibodies as @trents and @Scott Adams mentioned. Do ask for DNA screening to check for Celiac...
  9. knitty kitty
  10. knitty kitty
    Yes, unfortunately many doctors are not clear on proper testing protocol for Celiac Disease, much less the treatment. If we remove gluten from our diet, the antibodies our bodies produce against gluten go down. I went gluten free on my own. My doctors had laughed at me when I suggested testing for Celiac Disease. Later, to get a proper diagnosis...
  11. knitty kitty
    Welcome to the forum, @Wormsy22! Yes, unfortunately many doctors are not clear on proper testing protocol for Celiac Disease, much less the treatment. If we remove gluten from our diet, the antibodies our bodies produce against gluten go down. I went gluten free on my own. My doctors had laughed at me when I suggested testing for Celiac...
  12. knitty kitty
    I take Niacin Vitamin B 3 for my Dermatitis Herpetiformis outbreaks. I take the form of Niacin that causes flushing. The flushing only lasts for half an hour or so and lessens the longer one takes Niacin. The flushing is caused by a dilation of small blood vessels in the skin, but this helps reduce the dermatitis herpetiformis bumps. B12 is only...
  13. knitty kitty
    These are some of the symptoms I have had while deficient in Thiamine (and the other B vitamins). Tachycardia (chest pain) can be a symptom of Thiamine deficiency. Yawning can be called "air-hunger" or "sailors' asthma" and is a symptom of low thiamine because Thiamine is needed to help red blood cells carry oxygen. The part of the brain that...
  14. knitty kitty
    Welcome to the forum, @Maureen1, Have your daughter checked for vitamin and mineral deficiencies! Celiac Disease causes malabsorption of essential nutrients. Most newly diagnosed Celiacs are deficient in Vitamin D. Vitamin D is extremely important in hormone production, as well as (auto)immune system regulation. Low Vitamin D is associated...
  15. knitty kitty
    @Celiac momma, I use oxtails (from beef). I've also used beef neck bones, too.
  16. knitty kitty
    Welcome to the forum, @NimaWishing, I cannot tolerate Ore Ida Tater Tots either. Ore Ida Tots contain corn, which some Celiacs, like me, react to. Those Tots also use Sulfites to keep the potatoes from discoloration and to promote browning. Some Celiacs, like me, develop a Hypersensitivity to Sulfutes in foods and medications. I buy store...
  17. knitty kitty
    Were you taking supplements in the weeks before having your B12 measured? Taking supplements before testing for deficiencies can cause falsely high readings. Weight gain or weight loss can be caused by low thiamine, needed to process fats, carbohydrates and proteins into energy for the body. Low Thiamine and low magnesium can also cause constipation...
  18. knitty kitty
    Welcome to the forum, @glucel! Are you still consuming dairy? About half of people with Celiac Disease also react to dairy. Dairy products can make antibody levels rise. More importantly, vitamin deficiencies occur after surgery. Anesthesia can precipitate a B 12 deficiency because nitrous oxide used in anesthesia can irrevocably bind with...
  19. knitty kitty
    Yes, I do. Handled carefully, the bags of flour should not be a problem.
  20. knitty kitty
    I think the cashier's job in the supermarket would be better than the fast food restaurant job. You can always keep an M-95 mask in your pocket to use if you see someone purchasing sacks of flour in the grocery store. The airborne gluten would be much higher in a restaurant where cooking makes gluten particles airborne. Stay clear of the bakery...
  21. knitty kitty
    I understand. You've every right to be worried. I'm very concerned, too. If she doesn't improve, I would suggest a visit to urgent care or the emergency room. Thiamine deficiency, if not corrected quickly can cause permanent damage, especially with neurological symptoms. Doctors are not as knowledgeable about vitamin deficiencies as they need to...
  22. knitty kitty
    These are symptoms I had prior to diagnosis. I had become seriously malnourished. Unfortunately, my doctors didn't recognize nutritional deficiency symptoms, so I depended on my university studies in nutrition and microbiology. Before taking any vitamin supplements, talk to your doctor and nutritionist about testing for nutritional deficiencies. ...
  23. knitty kitty
    @moore.amy, I was the same way when younger. Our bodies become adapted to pumping out anti-gluten antibodies regularly, but when dairy is added, the additional reaction can push our limits and symptoms worsen. Our bodies may be able to keep up for a short time, but the malabsorption of nutrients catches up with us. Digestive enzymes from...
  24. knitty kitty
    Malnutrition caused by Celiac Disease can affect reproductive health. Talk to your doctor and nutritionist about supplementing with essential vitamins and minerals. Newly diagnosed Celiacs often have clinical or subclinical deficiencies. Low Thiamine Vitamin B1 can affect sperm formation. Thiamine needs the seven other water soluble B vitamins,...
  25. knitty kitty
    There's inflammation and there's Acute Inflammation which is way worse. Symptoms begin or worsen with acute inflammation. What lead you to see a doctor if you weren't having gastrointestinal symptoms? Celiac Disease can cause over two hundred symptoms, not all of them are gastrointestinal symptoms.
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