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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Welcome to the forum, @alj67, IMO and SIBO are common in Celiac Disease. Cutting out carbohydrates and following a Paleo diet, like the Autoimmune Protocol Diet, can rid the digestive tract of these bacteria. Ask for a DNA test to look for the most common genes for Celiac Disease.
  2. knitty kitty
    I like the flushing form of Niacin, nicotinic acid. I use Nature's Way brand. I always check for fillers, like rice flour and cellulose, and avoid brands that use those. I understand about studying the labels! I've been through that situation frustration. You'll learn quickly. Do take a B Complex along with the additional Niacin. And...
  3. knitty kitty
    @TabithaJ, Welcome to the forum! Since you're doing so well on a gluten free diet, I wouldn't recommend undergoing a gluten challenge and endoscopy. You would be wrecking all the progress you've made. I agree with your doctor about skipping the endoscopy. Celiac damage can be patchy or out of reach, so the damage may be missed. Your healing...
  4. knitty kitty
    Welcome to the forum @SammieCook, Sad to hear you're feeling so poorly. Let's get you feeling better quickly! To settle stomachs, cloves. Put a couple of whole cloves in hot tea and steep for a few minutes. Add sweetener (sugar, honey, etc.) if desired. You can even steep just the cloves if desired. You can chew up the cloves and swallow...
  5. knitty kitty
    Yes! That's great that you've switched to a form of Folate the body can utilize better! Here's an article that explains the difference between folic acid and methyl folate: Active Folate Versus Folic Acid: The Role of 5-MTHF (Methylfolate) in Human Health https://pmc.ncbi.nlm.nih.gov/articles/PMC9380836/
  6. knitty kitty
    Welcome to the forum, @MO1984, I have dermatitis herpetiformis, too. I've learned that glutamate can make dermatitis herpetiformis worse. Some foods like mushrooms can contain high levels of glutamate. Coffee and caffeine cause increased production of glutamate. Glutamate is a helpful excitatory neurotransmitter that our bodies can make. It...
  7. knitty kitty
    What is considered "Normal" Vitamin D can range from 30 to 100 ng/ml. Celiac people are better off with levels between 73 and 100 ng/ml. Is yours in that range? What form of Thiamine was in your B vitamins? If it was thiamine mononitrate, which is not well absorbed nor biologically active, you would do well to take another form, like Benfotiamine...
  8. knitty kitty
    Magnesium is stored in your bones, just like calcium. When you need more magnesium, the body can pull it out of the bones, so low blood magnesium levels might not be reflected. Thiamine and magnesium work together... a deficiency in either one can affect how the other functions. Thiamine is needed to regulate calcium ions. "Because the endoplasmic...
  9. knitty kitty
    @Allias, Do you have low magnesium levels? "The serum levels of parathyroid hormone and magnesium depend on each other in a complex manner. The secretion of parathyroid hormone by the parathyroid is physiologically controlled by the serum calcium level, but magnesium can exert similar effects. While low levels of magnesium stimulate parathyroid...
  10. knitty kitty
    Welcome to the forum, @Allias, For the growth and maintenance of bones, more vitamins and minerals are needed than those you are taking. Bones need calcium, as well as magnesium and iron, but also trace elements like zinc, copper, selenium, manganese, and boron. Bones need vitamins like Vitamin D and Folate (not synthetic Folic Acid which...
  11. knitty kitty
    @Neat1, I so glad you're going to try Thiamine! Do let us know how it goes. Benfotiamine is the form of Thiamine that may be very helpful to you. Benfotiamine has been shown to promote healing in the intestines. Be sure to take a B Complex because all eight B's work together. Try to get a minimum of 300 mg a day of Benfotiamine. Higher doses...
  12. knitty kitty
    @cjjones5969, Unintended weight loss is a symptom of Thiamine deficiency. Gluten free processed foods are not required to be enriched with vitamins like gluten containing flours and products made with them. Switching to a gluten free diet can precipitate vitamin deficiencies. Celiac Disease damages the small intestine where vitamins like Thiamine...
  13. knitty kitty
    Welcome to the forum, @cjjones5969 Are you eating much processed gluten free facsimile foods? Keep in mind that gluten free processed foods, like gluten free breads, pasta and cookies, are not required to be enriched with vitamins and minerals. Flours containing gluten are required to be enriched with vitamins and minerals lost in processing...
  14. knitty kitty
    @BadHobit, You don't need to eat gluten to have a DNA test for Celiac Disease genes. You need to let your doctors know how severe your reaction to gluten is. It's endangering your health. I could not finish a gluten challenge after having been gluten free for a while beforehand. My doctors diagnosed me by positive genes for celiac disease and...
  15. knitty kitty
    Welcome to the forum, @BadHobit Were you tested for H. Pylori infection? Sometimes this infection can cause stomach irritation and even ulcers. H. Pylori infection can trigger Celiac Disease. H.Pylori infection is frequently found in celiac disease. Ask for DNA testing to see if you have any of the genes seen in Celiac Disease. Having the genes...
  16. knitty kitty
    Hello, @glucel, I lost sixty pounds in six weeks. It was shocking. Fat loss as well as muscle wasting. Thiamine is needed to turn carbohydrates, fats, and protein into energy. With insufficient Thiamine, the body uses a shortcut to save thiamine. The body stores carbohydrates as fat, and later burns the stored fat for energy, a process which...
  17. knitty kitty
    Hello, @glucel, Unintended weight loss is symptomatic of Thiamine deficiency. Our bodies use more Thiamine when we are ill and stressed. Switching to a gluten free diet can also result in a lower intake of Thiamine. Interesting Reading: Coronary Artery Bypass Graft (CABG) surgery depletes plasma thiamine levels https://www.ncbi.nlm...
  18. knitty kitty
    Hello, @Neat1, Yes, neck and shoulder pain can be symptoms of Gerd, which is fairly common in Celiac Disease. Ask for a DNA test, too. Celiac Disease is genetic. If you've got celiac disease genes, further testing is warranted. Some people have Celiac genes, but don't have active Celiac Disease. If you've got symptoms, your genes are probably...
  19. knitty kitty
    Not really. Blood tests for vitamin deficiencies are not accurate. You can have "normal" blood levels and have vitamin deficiency symptoms before blood levels change. The brain sends messages to the body to release into the bloodstream any extra vitamins stored within cells of tissues and organs so that important organs like the brain and heart can...
  20. knitty kitty
    Welcome to the forum, @Sarah Grace, I had symptoms like yours. I thought at first it was hypoglycemia, but having type two diabetes, my blood glucose meter didn't register a low. If anything, my blood glucose levels were slightly high, but quickly returned to normal with me stirring around after waking. I was certain dehydration, having similar...
  21. knitty kitty
    Hello, @Kate1990, I reacted to calcium citrate because it's made from oyster shells and I react to seafood. I chose calcium malate and chelated calcium. Be sure to take a magnesium supplement as well, but several hours away from calcium. Magnesium and calcium compete for absorption. We need calcium for bones, but magnesium and potassium keep...
  22. knitty kitty
    Check the label and tell us what kind of B12 is in your gummies. If it's Cyanocobalamin, switch to a methylated (active) form of B12. Some of us need to take the active form of B12 because our bodies have problems turning other forms of B12 into the active methylated form due to MTHFR genetic variations. Take a B Complex supplement, too...
  23. knitty kitty
    @Zoe26, Has he been checked for vitamin deficiencies? Is he pulling up to standing position? Does he crawl? I ask because delayed development can be associated with nutritional deficiencies. Having a hoarse low voice is symptomatic of Thiamine deficiency in children and adults. Complete loss of voice is possible, too. ...
  24. knitty kitty
    I found this article very interesting... Carrier frequency of HLA-DQB1*02 allele in patients affected with celiac disease: A systematic review assessing the potential rationale of a targeted allelic genotyping as a first-line screening https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7109277/ Not a doctor.
  25. knitty kitty
    @Zoe26, Does your son have a hoarse voice?
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