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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Yes, @itarachiu, taking antibiotics and probiotics together is rather useless. However, since Rifaximin promotes the good bacteria naturally in the intestines, boosting those with a probiotic containing good bacteria like Lactobacillis should still be beneficial. Finishing the antibiotics first, then follow up with probiotics is a good plan, too.
  2. knitty kitty
    @itarachiu, We are supposed to have beneficial bacteria in our intestines. Rifaximin has been shown in early studies to promote the growth of beneficial intestinal bacteria. You may want to consider taking a probiotic and continue taking B Complex vitamins as Rifaximin can cause vitamin deficiencies. So glad you are seeing improvement...
  3. knitty kitty
    I agree with @Wheatwacked. More nutritional factors need to be looked at in Celiac Disease. Dr. Han only mentioned checking vitamin levels once in passing. Doctors need to acknowledge the importance of nutritional factors in Celiac Disease. Not only does Vitamin D help regulate the immune system, other vitamins like Thiamine and the rest of...
  4. knitty kitty
    @GardeningForHealth, The essential vitamins need to be taken all together. There's a balance. Just taking one vitamin or mineral can throw that balance out of whack. Blood tests for serum vitamin levels are unreliable. You can have vitamin deficiency symptoms before a deficiency is detected in the bloodstream. The proper way to treat...
  5. knitty kitty
    Me, too, @RMJ! I was more curious as to what those vitamins were doing inside our bodies. We cannot live without them, but why? So I switched to microbiology and learned about how vitamins are used to make energy and enzymes that allow our bodies to function properly. While undiagnosed, Celiac Disease causes malabsorption by damaging the villi that...
  6. knitty kitty
    @GardeningForHealth, You've stumbled upon the Autoimmune Protocol Diet. The AIP diet cuts out ALL processed foods (gluten free flours, gluten free premade processed foods, grains and rice, chips, nuts, etc.). The AIP diet includes meat and vegetables and some fruits. You can use fresh veggies or frozen ones without sauces or seasonings. Do not...
  7. knitty kitty
    @NoMoreBreadForMe, Yes, I've experienced this"air hunger" and yawning. My "air hunger" was caused by nutritional deficiencies that occur in Celiac Disease due to malabsorption of nutrients. A deficiency in Thiamine Vitamin B1 causes such symptoms as "air hunger" and lower leg or arm edema, balance issues and mental changes, forgetfulness and irritability...
  8. knitty kitty
    @Scott Adams, I had surgery while my health was going downhill due to undiagnosed, untreated Celiac Disease. I know now I had vitamin deficiencies. My incision did not heal properly. The muscles underneath atrophied. The blood supply and nerves did not grow back. I am left with a cold, numb area. I have a scar worthy of a horror movie. Our...
  9. knitty kitty
    It's important to keep in mind that some spices used to flavor those chips can provoke "Celiac-like" symptoms. The proteins in corn (zein), dairy (casein), yeast, rice, and chicken meat resemble segments of gluten, and can stimulate a reaction the same as gluten does. Tortilla yeast and autolyzed yeast extract cause problems. These are used...
  10. knitty kitty
    Your 200 mg Benfotiamine sounds fine. The best thing I found for the bloating is to follow the Autoimmune Protocol Diet (AIP diet). The AIP diet has you remove carbohydrates from the diet. If you remove carbohydrates, the intestinal bacteria that feed on carbohydrates and produce gas as an end product will be starved out. More beneficial bacteria...
  11. knitty kitty
    There's some of us that are seronegative. Anemia, Diabetes or Thiamine deficiency each can cause false negatives on antibody tests. Did you have DNA testing done ?
  12. knitty kitty
    Magnesium supplements can help with the constipation. Magnesium softens the stool. Magnesium is often one of the minerals that can be deficient in people with Celiac Disease. Start with 100 mg of Benfotiamine with meals. I take a 250 mg Benfotiamine with two meals. Everyone is different and has different nutritional needs. Find what works...
  13. knitty kitty
    @KDrutz, Celiac Disease is genetic. All first degree relatives should be tested when someone is diagnosed. It is possible that you have "silent Celiac" without obvious gastrointestinal symptoms. High histamine levels (part of the autoimmune response) while consuming a gluten containing products can cause symptoms similar to allergies, so it...
  14. knitty kitty
    Hello, @Ashleysue, Have your doctors checked you for nutritional deficiencies beyond Vitamin D? Celiac Disease causes malabsorption of all the nutrients, vitamins and minerals, that our bodies need to function properly. With such severe damage as Marsh 3 C, there's no doubt you've developed nutritional deficiencies. Vitamin D can be stored in...
  15. knitty kitty
    @Ginger38, Magnesium citrate or Magnesium Glycinate chelates can help with the constipation. Benfotiamine will help with Gastroparesis, edema, reflux, brain fog and fatigue. Benfotiamine won't lower your blood glucose, but it will help your body use insulin. I take Bilberry supplements from Nature's Way to lower blood glucose levels. I take...
  16. knitty kitty
    Welcome to the forum, @Diane London, I found cutting out sugar and processed foods very helpful. I followed the Autoimmune Protocol Diet (AIP diet). Meat, veggies and fruits are naturally gluten free. Processed gluten free facsimile foods are not nutritionally sound. They are filled with excess sugars, excess fibers and fillers and are devoid of...
  17. knitty kitty
    @itarachiu, Try supplementing with Riboflavin B2 which can fight Candida. Riboflavin Targets the Cellular Metabolic and Ribosomal Pathways of Candida albicans In Vitro and Exhibits Efficacy against Oropharyngeal Candidiasis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9927497/
  18. knitty kitty
    I understand. It's a bumpy ride to diagnosis. What other diseases are diagnosed by harming oneself? What happened to "First do no harm" -- the Hippocratic oath? Genetic testing and improvement on a gluten free diet is how I was diagnosed. I couldn't finish a gluten challenge because going back to gluten after being gluten free for quite awhile...
  19. knitty kitty
    @KierstenL, How are you doing? What did you decide to do?
  20. knitty kitty
    @Kazbo, Yes, you should carry on. I agree with @trents that more complete testing should be done before going gluten free. Since symptoms often worsen after reintroducing gluten after being gluten free, you may want to continue with eating gluten. You will need to be consuming gluten for an endoscopy with biopsies which is the gold standard...
  21. knitty kitty
    @Vincent pemberton, I'm so glad you got the blood work done and have started taking the Thiamine! Isn't amazing how quickly Thiamine works! Remember, all eight B vitamins work together. Malabsorption can affect all the micronutrients, so a B Complex is a good idea. I had high WBC counts for years, too, and none of my doctors dug deep enough...
  22. knitty kitty
    Hey, @Ginger38, How are you doing? A Gluten Challenge recommends at least 10 grams of gluten per day for a minimum of two weeks, but more is better. Remember different foods can contain different amount of gluten. Cookies and cakes have less gluten than chewy breads like thick pizza dough and artisan breads. Avoid salads and raw veggies...
  23. knitty kitty
    Find A New Gastroenterologist!!!!! I agree with @trents! Those are very specific findings important to the diagnosis of Celiac Disease. Besides visible to the naked eye villi blurting, celiac disease causes damage to the intestinal lining only visible under a microscope. Maybe the biopsy pathologist is smarter and your biopsy results will show...
  24. knitty kitty
    @GardeningForHealth, Yes, an allergic response is different from an autoimmune response, but mast cells are involved in each. Mast cells can differentiate and do different responses to different stimuli. Some mast cells do release histamine when presented with an antigen by an IgE antibody. Many mast cells line the digestive tract. Recent findings...
  25. knitty kitty
    Hi, @Vincent pemberton, I experienced High Calorie Malnutrition, a thiamine deficiency disorder. The more carbohydrates we eat, we need an increased amount of Thiamine to process the carbs into energy. For every 1000 calories, we need 1 mg more minimum. Increased intake of carbohydrates for the gluten challenge definitely would require more...
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