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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @lydialoo, Congratulations on your improvements! Dysautonomia and POTS are caused by Thiamine insufficiency. Blood tests for Thiamine deficiency are not an accurate measurement of how well Thiamine is being utilized inside cells and organs. An Erythrocyte Transketolase test is a better measure. I've had POTS and Dysautonomia myself. I...
  2. knitty kitty
    Welcome to the forum @shawnthehaze! Deficiency in Thiamine (and magnesium) results in constipation and Gastroparesis (the intestines don't squish food through well). Intestinal bacteria have time to ferment those foods and gas results. Try the Benfotiamine and magnesium and a B Complex. Remember gluten based foods contain added vitamins and minerals...
  3. knitty kitty
    @Rosecottage, welcome to the forum! I had extremely low Vitamin D, had developed uterine hyperplasia (endometriosis), was prescribed progesterone, had Gastroparesis (foods turn to cement and don't move), had so much trouble with gas I felt my intestines were making balloon animals, had goopy swollen eyes and face from histamine intolerance and Small...
  4. knitty kitty
    I agree with you. Diabetics can choose to eat sugar but the after effects of high blood glucose levels are quite different than the downstream consequences of a Celiac eating gluten. I have both Type Two Diabetes and Celiac. If this person fell into a diabetic coma every time he over ate sugar, his opinion might be a bit different.
  5. knitty kitty
    Diverticulitis?
  6. knitty kitty
    @Dawn Meyers, Thiamine has anti-cancer properties. High Dose Vitamin B1 Reduces Proliferation in Cancer Cell Lines Analogous to Dichloroacetate https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3963161/
  7. knitty kitty
    celiac disease has to be ruled out before a diagnosis of NCGS can be made. If there are no genes for celiac disease, it's NCGS. If there are genes for Celiac, it's Celiac. "Non-celiac gluten sensitivity (NCGS) or commonly known as gluten sensitivity is defined as “a clinical syndrome caused by the gluten ingestion resulting in intestinal a...
  8. knitty kitty
    I also have had hypothyroidism, fibromyalgia, OCD, PTSD, and osteoporosis, Wernicke's Encephalopathy, and type two diabetes. I'm a Microbiologist. My health has improved by taking high dose Thiamine, and supplementing essential vitamins and minerals. Vitamins and minerals are essential for life. These should come from the food we eat, but celiac...
  9. knitty kitty
    B12 is only one of the B vitamins. You need all eight: Thiamine B1, Riboflavin B 2, Niacin B3, Pantothetic Acid B5, Pyridoxine B6, Biotin B7, Folate B 9, Cobalamine B12 B Complex contains all EIGHT of the B vitamins. White vinegar is made from grain alcohol. Try Apple Cider Vinegar instead. It will clean just as well.
  10. knitty kitty
    @Dawn Meyers, You would do much better if you took a B Complex that contains all Eight essential B vitamins. Just taking B12 Cobalamine and Folate can cause a Pyridoxine B6 deficiency. Pyridoxine deficiency causes Peripheral Neuropathy. Pyridoxine is one of the vitamins that is notoriously low in celiac disease. Try Benfotiamine in addition...
  11. knitty kitty
    @Dawn Meyers, Have you tried the Autoimmune Protocol Diet? It's a Paleo Diet that cuts out processed gluten free foods, grains, legumes, nightshades, dairy, eggs and nuts. After the digestive system calms down (about three weeks) add in one food at a time to see if symptoms reappear. It really helped me. Also, get your Vitamin D level checked...
  12. knitty kitty
    I'm Type Two Diabetes also. Diabetics lose Thiamine quickly because the kidneys don't reabsorb it. So, most diabetics are thiamine insufficient. Thiamine is needed for antibody production. If there's not sufficient Thiamine, the tTg IgA antibody producing cells in the intestines cannot develop and cannot produce antibodies in mass quantities. TTg...
  13. knitty kitty
    @waiting4jonsnow, It's more likely Celiac Disease. People with Non Celiac Gluten Sensitivity do not have genes for Celiac Disease. Thiamine B12 deficiency, anemia and Diabetes can affect antibody production causing false negatives. Some Celiacs are seronegative. Were you eating sufficient gluten in your diet prior to antibody testing? ...
  14. knitty kitty
    Welcome to the forum, @Rachel SA! It's more likely Celiac Disease if you know you have that one celiac disease gene. People with Non Celiac Gluten Sensitivity do not have Celiac genes. Chronic inflammation can be a sign of early celiac disease. Not consuming sufficient gluten ahead of testing can give ambiguous results on blood tests and...
  15. knitty kitty
    @SuzanneL, Be sure to eat a sufficient amount of gluten between now and your endoscopy. According to recent research, updates to the gluten challenge are being implemented. Recommended intake of gluten should be increased to 10 grams of gluten per day for at least two weeks. Or longer. While three grams of gluten will begin the immune...
  16. knitty kitty
    @lydialoo, I like Life Extension Benfotiamine. What was the brand and form of Thiamine you took that didn't work? Did you take a B Complex with it? Did you take Magnesium? Thiamine needs magnesium to function properly. Sometimes doses higher than 500 mg daily is required, depending on the form of Thiamine. Keep in mind that all eight essential...
  17. knitty kitty
    @SuzanneL, It's common for Celiac people to be misdiagnosed with IBS (like me), postponing a correct diagnosis for years. Yes, do get further testing, an endoscopy, and a DNA test for Celiac genes. Also ask for an Erythrocyte Transketolase test to check for Thiamine deficiency. Thiamine deficiency symptoms include persistent nausea, and abdominal...
  18. knitty kitty
    @Sunflowers06, Ask for an Erythrocyte Transketolase test for Thiamine deficiency. Migraines have been linked to Thiamine deficiency. Thiamine deficiency symptoms include diarrhea and abdominal pain (Gastrointestinal Beriberi). Celiac Disease causes poor absorption of essential vitamins, like Thiamine and the other B vitamins. The Gluten free...
  19. knitty kitty
    @Blue Roan, Get your zinc level checked, too. Copper can accumulate if there's a deficiency in zinc. Copper and zinc balance each other. Great that your tTg IgA levels are reducing! Good job!
  20. knitty kitty
    @LeahMc, Ask for a DNA test to see if you have any of the known genes for Celiac Disease. Those symptoms, the pathology report, and the blood tests say positive to me, too. Keep us posted on your progress!
  21. knitty kitty
    Welcome to the forum, @Braver101, You may need to have your thyroid medication dose adjusted. Excessive sweating can occur in hyperthyroidism. Excessive sweating consumes lots of Thiamine Vitamin B1. Thiamine turns carbohydrates and fats into energy for the body. Thiamine depletion can happen quickly, within three days to two weeks. Celiac...
  22. knitty kitty
    @Ahawk, Welcome to the forum! I agree with @trents. Clean the waffle maker as best you can and enjoy your waffles and waffle maker!
  23. knitty kitty
    @Nedast, I like to keep my Vitamin D levels between 75 - 100 nmol/L year round. At this level, Vitamin D can work and do other things than keeping bones healthy, like build cartilage. What are your "normal" ranges? I disagree about not needing to supplement. It takes longer than a month or two of supplementing to correct deficiencies. Considering...
  24. knitty kitty
    @Nedast, I've experienced TMJ on and off throughout my life. I've found that keeping my Vitamin D level up helps, as well as increasing Omega Threes are important in decreasing inflammation. Several of the B Complex vitamins help to relieve the associated pain. Supplementing these vitamins and nutrients are important in Celiac Disease because...
  25. knitty kitty
    Welcome to the forum, @LimpToeTheTimeless Bone growth plates close in the late teens to early twenties, so it's doubtful you'll grow much taller, but you may start to bulk up in muscle. Remember to boost your absorption of vitamins and minerals needed to build muscle by eating a nutritionally dense diet and supplementing with essential vitamins and...
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