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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Happy Holidays, @Charliexxx, About half of the people with Celiac Disease also react to Casein, the protein in dairy, as though it were gluten. Some Celiacs cannot produce lactase, the enzyme that breaks down lactose, the sugar in dairy. Usually the tips of the villi in the small intestine produce the enzyme lactase, but damaged and blunted villi...
  2. knitty kitty
    Happy Holidays, @Beverley Ann Johnson, Sorry to hear about your trip to the ER. Were you having tachycardia? How long have you been vomiting? Just that day or weeks? Were you glutened? What are you currently eating? How long have you been "mostly fasting"? Are you taking any nutritional supplements, vitamins and minerals? Yes, the...
  3. knitty kitty
    Vitamin B12 and Vitamin D are the only two vitamins capable of being stored in the liver for a couple of years. The rest of the B vitamins and Vitamin C cannot be stored for longer than a few weeks at most. We need to replace them every day. The malabsorption that occurs in Celiac Disease is due to damage to the villi in the small intestine....
  4. knitty kitty
    @Linda68, Welcome to the forum! That article sounds interesting. Can you post a link? Were you checked for nutritional deficiencies when you were diagnosed for Celiac Disease? Do you currently take any nutritional supplements, vitamins, and minerals? Celiac Disease is often precipitated by an infection or a vaccination which depletes...
  5. knitty kitty
    Welcome, Melissa, It's really important with Celiac Disease to make sure your body is getting plenty of essential vitamins and minerals. I understand what you are going through. I developed severe nutritional deficiencies, too. The vitamin that runs out first is Vitamin B 1 Thiamine. Thiamine deficiency can cause problems with the...
  6. knitty kitty
    Welcome to the forum, @AlyssaM! Celiac Disease is an autoimmune reaction to gluten meaning that when we are exposed to gluten, our bodies produce antibodies which attack gluten. Unfortunately, some of our own cells resemble segments of gluten and our antibodies attack them, too. So our bodies attack gluten, and there's collateral damage to our own...
  7. knitty kitty
    High histamine levels can produce all those symptoms. So can nutritional deficiencies. Have you tried a low histamine diet? Nuts are high histamine. Migraines can be a symptom of Thiamine deficiency and high histamine. Are you keeping a food journal to help you track which foods cause digestive problems? Helpful Reading... Histamine...
  8. knitty kitty
    Meat, and fish are great sources of the eight essential B vitamins, fat soluble vitamins and minerals. Including more meat in ones diet provides these nutrients and also proteins that our bodies use for repair and maintenance. I found a Paleo diet called the Autoimmune Protocol Diet very helpful. It excludes gut irritating plant lectins found in...
  9. knitty kitty
    Okay, thanks for answering my questions. Yes, many of us here get misdiagnosed for ten years or more before we are correctly diagnosed. Were you losing weight because you were not eating or because you had digestive problems? What have you been eating? Are you vegetarian?
  10. knitty kitty
    Welcome to the forum, @Dianna Frances! Lactaid is used in lactose intolerance which is different from a dairy allergy. Some people have lactose intolerance because they lose the ability to produce the enzyme lactase which digests lactose (the sugar in dairy). Lactaid has the digestive enzyme lactase added to it. In dairy allergy, there...
  11. knitty kitty
    @Rhowarth, Welcome to the forum! Many have struggled with falling off the wagon. We'll give you a hand back up. You'll be alright. I found I was falling off the wagon because I was deficient in vitamins and minerals and my brain was craving the foods containing those nutrients. The damage done to the small intestine prevents us from absorbing...
  12. knitty kitty
    Hello, No, one serving of gluten something isn't going to be enough to provoke enteropathy. According to recent research, updates to the gluten challenge are being implemented. Recommended intake of gluten should be increased to 10 grams of gluten per day for at least two weeks. Or longer. While three grams of gluten will begin the immune...
  13. knitty kitty
    I've found high dose Thiamine (500 mg thiamine hydrochloride) and magnesium glycinate would improve my migraines and lessen their frequency. Then I found Allithiamine (TTFD -Tetrahydrofurfuryl disulfide), which can cross the blood brain barrier by itself, and magnesium threonate, which can also cross the blood brain barrier, have prevented most migraines...
  14. knitty kitty
    @awright24, Mouth ulcers can be caused by a deficiency in Vitamin B12 Cobalamine. Most newly (almost) diagnosed Celiac people have deficiencies in vitamins and minerals which should be corrected. Many doctors don't recognize deficiency symptoms. While blood tests aren't accurate for vitamin deficiencies, supplementing with the eight essential...
  15. knitty kitty
    Hello, @Ckluwho and @Jeff Platt, Diarrhea can be caused by an insufficiency of Thiamine. I had diarrhea constantly until I corrected my Thiamine deficiency. I took high dose Benfotiamine which has been shown to promote healing in the digestive tract. Nutritional deficiencies are common in Celiac Disease. Many doctors don't recognize vitamin...
  16. knitty kitty
    Hello, all! Thought I'd share some articles about SIBO and Thiamine deficiency. Thiamine has antibacterial properties and keeps colonic bacteria from moving into the small intestine causing SIBO. High fructose corn syrup forms a "biomesh" or lattice by which bacteria can creep into the small intestine, too. Removing simple sugars like honey, syrup...
  17. knitty kitty
    I've collected some interesting studies about migraines... Thiamine, magnesium, zinc and the other B vitamins help migraines. I know adding these to my diet has helped relieve my migraines. Magnesium as an Important Factor in the Pathogenesis and Treatment of Migraine—From Theory to Practice https://www.ncbi.nlm.nih.gov/pmc/articles/PMC89...
  18. knitty kitty
    @OhDeer, You may not have gastrointestinal symptoms, but you can still have nutritional deficiencies and symptoms outside of the digestive tract. Having low Vitamin D can cause menstrual irregularities. Insufficient B vitamins like Thiamine B1, Pyridoxine B6, and Cobalamine B12 can also cause problems with our cycles and reproduction. PCOS is...
  19. knitty kitty
    @OhDeer, What "something completely unrelated" did you see the doctor for? There's over three hundred symptoms related to Celiac Disease. Just curious.
  20. knitty kitty
    Merry Christmas, @JAD75 Welcome to the forum! Definitely sounds like Celiac symptoms. I wonder if the Emergency department at hospital would do blood tests for Celiac antibodies while you are so ill. Sounds like you have developed nutritional deficiencies in the time you've been experiencing symptoms. Anemia is caused by deficiencies in...
  21. knitty kitty
    Welcome to the forum, Eva! Sorry to hear about your cancer. You can check your medications through the National Institute of Health's site here: https://dailymed.nlm.nih.gov/dailymed/ And some interesting articles are on the PubMed site... High Dose Vitamin B1 Reduces Proliferation in Cancer Cell Lines Analogous to Dichloroacetate ...
  22. knitty kitty
    Ideally, a Total IgA test should be done to make sure you are producing sufficient IgA antibodies in general, because we make lots of different kinds of IgA antibodies. A test for tTg IgA is looking for the specific antibodies against gluten. If the Total IgA is below "normal" limits, then the specific tTg IgA test is not accurate. This can result...
  23. knitty kitty
    There are a lot of people who have been misdiagnosed as having IBS when they actually had Celiac Disease and, in the average of ten years to be properly diagnosed, their health suffers unnecessarily. Have you started a gluten free diet yet? Did your IBS symptoms resolve? Which antibody tests for Celiac Disease did you have? Specifically, did...
  24. knitty kitty
    References: Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8398893/ Micronutrients Dietary Supplementation Advices for Celiac Patients on Long-Term Gluten-Free Diet with Good Compliance: A Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6681258/ Gluten...
  25. knitty kitty
    That's great! Those are healthy fats. 🐱
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