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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by knitty kitty
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Need answers help and/or advice
knitty kitty replied to SJBowman's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@SJBowman, Undiagnosed Celiac Disease causes malabsorption of vitamins and minerals. Nutritional deficiencies caused by undiagnosed Celiac Disease need to be corrected promptly. Deficiencies in the eight essential B vitamins, Vitamin C and minerals like zinc and magnesium can cause vomiting. Thiamine deficiency can cause cyclic vomiting... -
Advice please before I see dr again
knitty kitty replied to ItchDrivingMeCrazy's topic in Dermatitis Herpetiformis
@ItchDrivingMeCrazy, Rashes and neuropathy caused by deficiencies in the B vitamins would begin to appear after several weeks after a depletion caused by fighting Covid. The eight B vitamins cannot be stored for long. Deficiency symptoms can appear in as little as two to four weeks. Deficiencies in the B vitamins will also cause peripheral neuropathy... -
Diarrhea mystery solved after a year
knitty kitty replied to Jujuconnor's topic in Related Issues & Disorders
With the runs and backed up both for a year, there's bound to be nutritional deficiencies. Have you been drinking any nutritional shakes? What have you been eating? -
Diarrhea mystery solved after a year
knitty kitty replied to Jujuconnor's topic in Related Issues & Disorders
Have you been checked for vitamin deficiencies? Especially Thiamine deficiency? An Erythrocyte Transketolase test is more accurate than a blood test. Deficiency in Thiamine or Niacin or Cobalamine B12 can cause diarrhea. -
Fresh fruit. Fresh veggies. Meat. Liver! I had to reduce my diet to foods that were not causing problems. Grass fed beef patties, liver, green beans, carrots, and dates are what I ate until my tummy said it could handle more. Seemed like forever, but I had to do what was best for my stomach and body. My brain missed all the different flavors of...
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how does this seem to you
knitty kitty replied to florida2001's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Iron supplementation can cause constipation. That may explain why her stools have firmed up. The DGP IgG and IgA tests should still be done since she is young and may not be producing enough tTg IgA due to anemia. TTg IgA stays mostly in the small intestine during the early stages of celiac disease. One must have the genes for Celiac Disease... -
@susiegoldcoast , You are probably suffering from nutritional deficiencies. Celiac Disease causes inflammation and damage to the small intestine. This causes poor absorption of essential nutrients. We need to boost our absorption of vitamins and minerals by taking supplements. There are eight essential B vitamins, four fat soluble vitamins and many...
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how does this seem to you
knitty kitty replied to florida2001's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@florida2001, The probiotics have thrown another variable into the mix. You haven't explained when the probiotics were started and why. Was the probiotic started before the test that showed high WBC? Is the high WBC result because of the probiotics? Was the probiotic started after the high WBC test result? Then why was the WBC... -
IGA deficiency
knitty kitty replied to Jadeashlyn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Anemia and Thiamine insufficiency can cause poor antibody production. Ask for an Erythrocyte Transketolase test to check thiamine level. Which nutrients is she deficient in? Are those deficiencies being corrected? -
Packaged coconut is bleached white with Sulfites! Otherwise, the coconut turns brown like an Apple or potato. Sensitivity to Sulfites can occur in celiac disease. I have Sulfite Hypersensitivity. I take the trace mineral Molybdenum to help process out the sulfites. But I still avoid coconut. Considerations for the diagnosis and management of...
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how does this seem to you
knitty kitty replied to florida2001's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum, @florida2001, Have you changed her diet? Did you start the probiotics before or after the blood test was drawn? I suggest you stop the probiotics since her white blood cell count is high. Have you requested a Full Celiac panel of blood tests? These should include DGP IgA and IgG because children's immune systems are immature... -
Waves of nausea after quitting gluten
knitty kitty replied to susiegoldcoast's topic in Coping with Celiac Disease
Welcome to the forum, @susiegoldcoast. I must suggest quite emphatically that you cease the Hydrogen Peroxide "therapy". Taking Hydrogen Peroxide internally is very damaging to the mucosal integrity and tissues of your digestive tract. I am attaching scientific studies done with pictures that show the damage. Hydrogen peroxide fuels... -
Gene testing
knitty kitty replied to Bennyboy1998's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
😉@Bennyboy1998, welcome to the forum, In the early stages of celiac disease, the level of antibodies may not be high enough to show up in the bloodstream. Gastritis can cause a Vitamin B12 deficiency which can result in anemia which can result in low antibody production. Intestinal damage may be sparse and microscopic and out of reach of the en... -
Advice please before I see dr again
knitty kitty replied to ItchDrivingMeCrazy's topic in Dermatitis Herpetiformis
Herpes Zoster and COVID-19 Vaccination: A Narrative Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10658959/ Varicella zoster virus reactivation following COVID-19 vaccination: a report of 3 cases https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8903443/ Herpesviruses reactivation following COVID-19 vaccination: a systematic review and... -
Advice please before I see dr again
knitty kitty replied to ItchDrivingMeCrazy's topic in Dermatitis Herpetiformis
Varicella zoster virus reactivation following COVID-19 vaccination: a report of 3 cases https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8903443/ -
Endoscopy
knitty kitty replied to Hiawatha's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
@Hiawatha, Yes, I think you've made good decisions to try the steroids short term with check up in March, supplement with vitamins and minerals, and adjust your diet. Steroids can be useful to rein in wildly galloping immune systems. Supplementation and diet changes help provide a less inflammatory condition and promote healing. Steroids... -
Advice please before I see dr again
knitty kitty replied to ItchDrivingMeCrazy's topic in Dermatitis Herpetiformis
@ItchDrivingMeCrazy and @hayley3, Very curious if either of you had a vaccination for Covid-19 prior to your rashes and itching started. I've found some interesting literature where a reactivation of certain viruses (chicken pox (shingles), herpetic viruses, Epstein-Barr virus) have been reactivated after inoculation with Covid vaccines may occur... -
Endoscopy
knitty kitty replied to Hiawatha's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes, once triggered by gluten, the immune response can last awhile. Antigluten antibodies increase with exposure to gluten and may remain for months, but they should come down without repeated exposure. The antigluten antibodies mistakenly attack our own cells. Keep us posted on your progress! -
Bloodwork results
knitty kitty replied to Tico's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Other vitamins and minerals are needed to correct iron deficiency anemia in addition to iron. Riboflavin B 2, Zinc, Thiamine B 1, Pyridoxine B 6, and Vitamin A in addition to Cobalamine B12 and Folate B9 are needed to grow new red blood cells. Consider supplementing with B Complex, Zinc and Vitamin A to correct iron deficiency anemia. It worked... -
Would you tell me what exactly are you eating now? Meat, veggies, fruit, low fodmap, but which ones? Dairy? Which vitamins were you taking? And how much (dosage on label)? When (every day, sporadically)? How long? Do any contain thiamine mononitrate? I understand what you're going through. There's nothing worse than feeling yourself dying...
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Big boy - can he still be coeliac?
knitty kitty replied to NicJ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@NicJ, Your son may be used as an example of High Calorie Malnutrition. High Calorie Malnutrition occurs in people who eat a diet high in carbohydrates without sufficient Thiamine Vitamin B1 necessary for our body to turn the carbohydrates into energy fuel for the body to utilize in normal functioning. When there's insufficient Thiamine... -
Low MCHC
knitty kitty replied to hayley3's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I can't tolerate phenylalanine which results in tyramine excess. I avoid tyramine foods, too. So don't take Tryptophan. Take the Benfotiamine and Theanine.