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knitty kitty

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Everything posted by knitty kitty

  1. Welcome to the forum, @GJC! No, Celiac doesn't go away. With us, every time we eat gluten, our immune system revs up, increasing inflammation and causing collateral damage. Every time we eat gluten, antigluten antibodies attack the gluten, but also the cells of our bodies. In the stomach, the parietal cells produce the Intrinsic Factor which...
  2. @Liquid lunch, Remember to stay away from cruciferous vegetables, for a while, too!!! 😺
  3. Welcome to the forum, @LouisaM! Taking Thiamine supplements helps with menstrual pain and irregularities. Other vitamins like Riboflavin B2, Pyridoxine B6 and Niacin B3, and Vitamin D work with Thiamine and helped improve symptoms. Even on a gluten free diet, Celiac people can develop nutritional deficiencies. Discuss nutritional supplementation...
  4. Have you tried soaking them in distilled water? Apparently distilled water can pull more lectins out of seeds and beans. https://pubmed.ncbi.nlm.nih.gov/29580532/
  5. Came across this article.... Mild metabolic hyperoxaluria and its response to pyridoxine https://pubmed.ncbi.nlm.nih.gov/3811039/
  6. Welcome to the forum, @ceslater! Have you had your thyroid and parathyroid glands checked? Apparently there's a link between Celiac disease and hyperparathyroidism and mandibular tori. Magnesium is important for keeping calcium in the bone in place and not depositing elsewhere. Vitamins and minerals important to bone maintenance include...
  7. @DMulder47, Many of the symptoms you describe are attributable to vitamin deficiencies. Most people with Celiac Disease develop them because of the malabsorption and inflammation caused by celiac disease. My heart palpitations and high heart rate were caused by a deficiency in Thiamine B1. I had all the tests, too, and the doctors couldn't find...
  8. @ArchieK, If you're eating a lot of processed carbohydrates, you may have Small Intestinal Bacterial Overgrowth (SIBO). These bacteria produce lots of gas after helping themselves to your carbohydrates. They can spread from the large intestine (where they are supposed to be) into the small intestine where they can cause gastrointestinal symptoms...
  9. @Ginger38, I was diagnosed with Generalized Anxiety Disorder and Complex PTSD. SSRIs did not improve my health. SSRIs made my gastrointestinal symptoms much much worse, worsening my brain health as well. What did work for me was to focus on calming my digestive system and providing essential vitamins and minerals so my body could function properly...
  10. Welcome to the forum, @Gini1! You can take a DNA test to see if you have any of the known genes for Celiac Disease. Anemia, diabetes, and thiamine deficiency can cause false negatives on serum tests. Seronegative Celiac Disease does exist, where people with Celiac Disease don't show anti gluten antibodies in their blood. Other blood tests...
  11. @Rebecca Clayton, You can click on the links and open and save the studies on your device or print them out.
  12. @Rebecca Clayton, I know that doctors frequently overlook nutritional deficiencies as a cause of health problems. It's important to get high doses of Thiamine and the other B vitamins. I've found some research showing several other B vitamins as well as Thiamine help with clotting. High dose Thiamine was used in Covid patients to stop lung...
  13. Have you been checked for nutritional deficiencies? Are you currently supplementing with vitamins and minerals? Some cancers and other illnesses occur because of nutritional deficiencies. High dose Thiamine has been shown to be beneficial in fighting cancer. References: Small and Large Intestine (I): Malabsorption of Nutrients https...
  14. Pumpkin seeds are high in Lectins. Lectins are carbohydrate-binding proteins found in plant seeds and beans. Lectins can be inflammatory to already damaged intestines as in Celiac Disease. Interesting Reading... Do dietary lectins cause disease? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1115436/
  15. @augustmoon, No worries, we talk about poop a lot here. Are you currently eating gluten? Or have you gone gluten free? Do you eat a lot of carbohydrates? Were you eating lots of gluten prior to your Celiac test? What symptoms made you get a Celiac test?
  16. Was the H. Pylori test negative? Have you been tested for intestinal parasites? Do you have constipation? Is this with every bowel movement? What have you been eating? Are you eating gluten?
  17. Welcome to the forum! Do you have anemia or Diabetes? Thiamine and magnesium deficiencies can cause constipation. Are you keeping a food mood poo'd journal? Do you know which food is causing the peach pit problem? Have you been checked for H. Pylori infection?
  18. Welcome to the forum, @Lina0206! Have you been checked for nutritional deficiencies? Many newly diagnosed have low levels of Vitamin D which helps regulate the immune system and being low can cause dizziness, as can being low in some of the B Complex vitamins, like Cobalamine B12 and Thiamine B1. Have you talked to your doctor or nutritionist...
  19. @Gilly M, Have you tried taking a whole capsule of B Complex for several days before starting the additional thiamine? We can use personal messaging through the forum.
  20. @Jenn D, I wouldn't worry about it because his numbers are coming down. Liver function changes following the introduction of a gluten-free diet in patients with celiac disease https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8977883/ Supplementing with vitamins and minerals to ensure sufficient nutrients can help. The Effect of a High...
  21. Hey, lady, Some people, because of their genetics, stop producing LactAse, the enzyme that digests the sugar (LactOse) in dairy, when they become adults. Some people with Celiac Disease have digestive problems after consuming milk and dairy products because the villi in the small intestine have been damaged by the autoimmune response to gluten...
  22. @Kara Anne, Yes, I gained weight. Celiac Disease affects the ability to absorb sufficient nutrients due to damage in the small intestine. Nutritional deficiencies are common in celiac disease and need to be corrected as quickly as possible. Supplementing with essential vitamins and minerals boosts our body's ability to absorb these nutrients...
  23. @mrsdelore, Your antibody tests may be giving inconclusive results because you are not eating sufficient gluten consistently to get your antibody production up to a level that is measurable in the bloodstream. Diabetes, anemia and Thiamine deficiency can affect antibody production, causing false negatives, too. In an earlier post, you had two positive...
  24. Welcome to the forum, @misslemon! You can get a genetic test for any of the genes known to cause Celiac Disease which would not require eating gluten. Having the genes and improvement on a gluten free diet can be a diagnosis of Celiac Disease. You also stated you get a rash when you ate breadsticks. That rash could be Dermatitis Herpetiformis...
  25. Welcome to the forum, @Ecann74! @trents is right. You don't have to check every box to Bingo for Celiac Disease. The high IgA, IgG and positive genes are sufficient for a Celiac diagnosis. In fact, this study found that negative Endomysial antibodies might be related to long lasting untreated coeliac disease. Endomysial antibody‐negative c...
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