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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @Itchyperson, I've had the same problem with outbreaks in that area. Dermatitis Herpetiformis is pressure sensitive. Any place where there's pressure on the skin can cause a dermatitis herpetiformis sore to occur. I've had dermatitis herpetiformis blister on my fingers where I hold my pen and my knitting needles. I've developed dermatitis herpetiformis...
  2. knitty kitty
    @Leann horne, Welcome to the forum. I agree with @Wheatwacked. Your fainting after rice sounds like a deficiency in Thiamine. Thiamine is needed to turn carbohydrates into energy for our bodies. A sudden influx of simple carbohydrates like rice can cause a big demand for Thiamine. If we don't have sufficient Thiamine, the body starts...
  3. knitty kitty
    @Zoe246, Looks like you had a low tTg IgG. Your tTg IgA result is low because your total IgA result is low. If you're not producing sufficient IgA in general (total IgA), then the doctors cannot/should not use low tTg IgA to make a diagnosis. Total IgA and tTg IgA production can be affected by anemia and deficiency in Thiamine Vitamin...
  4. knitty kitty
    Hello, @Hiawatha, Improving ones posture while eating can help us swallow less air while eating. Sit up straight, both feet on the floor. Sitting hunched over with a rounded back traps more air. And chew your food well! Thirty chews for each bite of food. Our moms were right! To help trapped gas after eating, try standing on tip toes and let...
  5. knitty kitty
    @MelissaLMandrick, It's common to have deficiencies in lots of vitamins and minerals in newly diagnosed celiac disease because the inflammation and damage to the small intestine makes absorption difficult. Vitamin D is essential in regulating the immune system and is frequently low in the newly diagnosed, as are the eight essential B vitamins...
  6. knitty kitty
    Hello, @MelissaLMandrick, Yes, in an indirect way. Vitamin D deficiency affects calcium, phosphorus and other electrolytes. Keeping a balance in these minerals is important in sending electrical nerve signals throughout the brain and body. When there's a disruption in the balance, short circuits or seizures can result. B Complex vitamins are...
  7. knitty kitty
    @Jujuconnor, Did the doctors give you Thiamine at the same time as you received the magnesium? Magnesium supplementation alone won't work. Magnesium needs Thiamine to work properly. I'm glad you will see doctors in two weeks! Do try to eat more green leafy vegetables (romaine has thiamine) and meat (liver is a great source of B vitamins...
  8. knitty kitty
    Your blood test for Thiamine was done in October. Thiamine blood levels can fluctuate depending on dietary thiamine. Blood level can reflect how much I was absorbed from ones diet in the previous twenty-four to forty-eight hours. The body requires more Thiamine when we're physically ill, emotionally stressed, and if physically active outdoors...
  9. knitty kitty
    Covid M95 masks would protect you from inhaled gluten, (as long as it covers your nose), but your eyes will still be exposed to airborne gluten. Taking a B Complex, magnesium and copper, along with iron supplements, can improve your anemia. Thyroid problems can be improved with Thiamine supplementation. Thiamine Vitamin B1 is important in thyroid...
  10. knitty kitty
    @Pxidis, LactOse is the milk sugar in cow's milk. LactAse is the digestive enzyme needed to break down LactOse. LactAse is produced in the tips of the villi in the small intestine. The villi absorb vitamins and minerals from the small intestine, kinda like an anemone filtering seawater in the ocean. In celiac disease, the immune system attacks...
  11. knitty kitty
    @Jujuconnor, That's a test for Thiamine in whole blood. Whole blood tests for Thiamine are not an accurate measurement of the amount of Thiamine inside cells where thiamine is actually used. An Erythrocyte Transketolase test gives a more accurate measurement. Thiamine is pulled out of cells in organs in order to supply the brain and heart...
  12. knitty kitty
    @Jujuconnor, Changes in the ability to speak and spell are symptoms Wernicke's Encephalopathy of Thiamine Deficiency! ADHD is connected with high calorie malnutrition which is Thiamine Deficiency! Here are studies showing doctors don't recognize and treat Thiamine Deficiency in the critically ill. Please seek medical attention! Thiamine...
  13. knitty kitty
    @Jujuconnor, Thiamine deficiency can manifest as Gastrointestinal Beriberi, with symptoms very similar to yours. I'm attaching some studies that describe Gastrointestinal Beriberi so you can compare symptoms. Since your health is fragile right now, I suggest you find a doctor to address your nutritional deficiencies. Doctors can administer...
  14. knitty kitty
    Here's some more information on Thiamine. The form of Thiamine that's especially beneficial for the digestive system is called Benfotiamine. I take it regularly. Thiamine and benfotiamine: Focus on their therapeutic potential https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10682628/
  15. knitty kitty
    @dhooden, Deficiencies in the eight essential B vitamins occur in Celiac Disease. You may have become low (subclinical deficiencies) prior to diagnosis. The gluten free facsimile foods aren't required to be enriched with vitamins and minerals like gluten containing processed products. Supplementing with B vitamins and minerals like magnesium and...
  16. knitty kitty
    @SJBowman, Undiagnosed Celiac Disease causes malabsorption of vitamins and minerals. Nutritional deficiencies caused by undiagnosed Celiac Disease need to be corrected promptly. Deficiencies in the eight essential B vitamins, Vitamin C and minerals like zinc and magnesium can cause vomiting. Thiamine deficiency can cause cyclic vomiting...
  17. knitty kitty
    @ItchDrivingMeCrazy, Rashes and neuropathy caused by deficiencies in the B vitamins would begin to appear after several weeks after a depletion caused by fighting Covid. The eight B vitamins cannot be stored for long. Deficiency symptoms can appear in as little as two to four weeks. Deficiencies in the B vitamins will also cause peripheral neuropathy...
  18. knitty kitty
    With the runs and backed up both for a year, there's bound to be nutritional deficiencies. Have you been drinking any nutritional shakes? What have you been eating?
  19. knitty kitty
    Have you been checked for vitamin deficiencies? Especially Thiamine deficiency? An Erythrocyte Transketolase test is more accurate than a blood test. Deficiency in Thiamine or Niacin or Cobalamine B12 can cause diarrhea.
  20. knitty kitty
    Fresh fruit. Fresh veggies. Meat. Liver! I had to reduce my diet to foods that were not causing problems. Grass fed beef patties, liver, green beans, carrots, and dates are what I ate until my tummy said it could handle more. Seemed like forever, but I had to do what was best for my stomach and body. My brain missed all the different flavors of...
  21. knitty kitty
    Iron supplementation can cause constipation. That may explain why her stools have firmed up. The DGP IgG and IgA tests should still be done since she is young and may not be producing enough tTg IgA due to anemia. TTg IgA stays mostly in the small intestine during the early stages of celiac disease. One must have the genes for Celiac Disease...
  22. knitty kitty
    @susiegoldcoast , You are probably suffering from nutritional deficiencies. Celiac Disease causes inflammation and damage to the small intestine. This causes poor absorption of essential nutrients. We need to boost our absorption of vitamins and minerals by taking supplements. There are eight essential B vitamins, four fat soluble vitamins and many...
  23. knitty kitty
    @florida2001, The probiotics have thrown another variable into the mix. You haven't explained when the probiotics were started and why. Was the probiotic started before the test that showed high WBC? Is the high WBC result because of the probiotics? Was the probiotic started after the high WBC test result? Then why was the WBC...
  24. knitty kitty
    Anemia and Thiamine insufficiency can cause poor antibody production. Ask for an Erythrocyte Transketolase test to check thiamine level. Which nutrients is she deficient in? Are those deficiencies being corrected?
  25. knitty kitty
    Packaged coconut is bleached white with Sulfites! Otherwise, the coconut turns brown like an Apple or potato. Sensitivity to Sulfites can occur in celiac disease. I have Sulfite Hypersensitivity. I take the trace mineral Molybdenum to help process out the sulfites. But I still avoid coconut. Considerations for the diagnosis and management of...
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