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knitty kitty

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Latest Celiac Disease News & Research:

Everything posted by knitty kitty

  1. knitty kitty
    Gastrointestinal Beriberi symptoms are fatigue, nausea, stomach ache, abdominal pain, and unintended weight loss. I know from personal experience. My doctors weren't familiar with gastrointestinal beriberi. It is caused by a deficiency in Vitamin B 1 Thiamine. I took over-the-counter Thiamine supplements (Benfotiamine) and felt much better quickly...
  2. knitty kitty
    @Painful5, Sorry about your loss. "I had thought that over 10 years of careful eating would mean I should be one of those women who can sustain a pregnancy." The Gluten Free Diet can be low in essential vitamins and minerals. Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://www.ncbi.nlm.nih.gov...
  3. knitty kitty
    Welcome to the forum! I found some studies that you may find interesting. Atypical erythema annulare centrifugum in a child with celiac disease https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8294140/ Nodular Regenerative Hyperplasia and Portal Hypertension in a Patient with Coeliac Disease https://www.ncbi.nlm.nih.gov/pmc/articles/PMC...
  4. knitty kitty
    There's a lot of controversy about microbial transglutaminase. Microbial transglutaminase IS used in gluten free products. Microbial transglutaminase IS used in processed meats and dairy products which are gluten free. Production of prebiotic gluten-free bread with red rice flour and different microbial transglutaminase concentrations: modeling...
  5. knitty kitty
    Microbial Transglutaminase is one of the enzymes used in dairy products, gluten containing products and unfortunately in gluten free processed products. Microbial Transglutaminase crosslinks proteins together to improve texture and flavor in foods. Unfortunately, Microbial Transglutaminase acts the same as tissue transglutaminase. Tissue Transglutaminase...
  6. knitty kitty
    Zinc deficiency causes loss of smell and taste. Our immune systems use lots of zinc, add to that malabsorption of vitamins and minerals... You can try a zinc supplement. Talk to your doctor about boosting your absorption by supplementing while healing. https://ods.od.nih.gov/factsheets/Zinc-HealthProfessional/#h8 The Effectiveness of...
  7. knitty kitty
    @Penny88, Welcome to the forum! When exposed to gluten, I get Dermatitis Herpetiformis bumps on my fingers like you describe. I also break out if exposed to foods like dairy, crustaceans, and kelp, because foods high in iodine make the dermatitis herpetiformis bumps flare up. I had to switch to Himalayan salt because iodized salt made dermatitis...
  8. knitty kitty
    @heyitsme, Ask your doctor for the Erythrocyte Transketolase test. I think some on-line labs have the test available. Because testing for Thiamine is so expensive and takes such a long time time, the World Health Organization (WHO) says the best way to test for Thiamine deficiency is to take high dose Thiamine and look for improvement in...
  9. knitty kitty
    @EmilyT, welcome to the forum! I understand your concern about cancer and Celiac Disease. Studies have shown high dose Thiamine (Benfotiamine) to have anticancer effects. Correcting nutritional deficiencies is important for us due to the malabsorption that occurs as a consequence of Celiac Disease. Discuss with your doctors and nutritionist...
  10. knitty kitty
    @Katie0711, Welcome to the forum! You could post your son's symptoms in this thread and let us know which post you found with similar symptoms. Someone currently active may be able to help. Best wishes.
  11. knitty kitty
    @AshyCo, I'm curious. What other foods are you reacting to?
  12. knitty kitty
    @Gingle, I even react to Sodium Lauryl Sulfate in toothpaste. It's also in shampoos and soaps and body washes.... Get your doctor to put a notation in your medical records that you react to Sulfa drugs. It can be life threatening, as all allergic reactions may be. Best wishes!
  13. knitty kitty
    @Jacki Espo, So sorry to hear about that. High dose Thiamine has been shown to have anti-tumor effects, while low dose Thiamine may promote tumor growth. High dose Thiamine is safe and nontoxic. Selenium is beneficial for thyroid health. Keep us posted on your progress! References: Selenium and thyroid diseases https...
  14. knitty kitty
    @Femke, and @AshyCo Do you have anemia? Anemia, Diabetes, and Thiamine Deficiency each will cause false negatives on Celiac blood tests. Have you thought about getting a DNA test done? One doesn't have to be consuming gluten for a DNA test which looks for the most common genes for Celiac Disease. A positive DNA test and positive response...
  15. knitty kitty
    I like tallow balm made by Vintage Traditions. Tallow Balm is natural, gluten free, and has been used for centuries. Vintage Traditions has lots of scented and unscented balms. Tallow Balm keeps my skin soft and moisturized.
  16. knitty kitty
    @Gingle, @plumbago has given good advice about checking for hidden gluten in medications. I have reactions to Sulfa drugs, a Hypersensitivity Type Four reaction, which causes gastrointestinal upset, rashes, and hives and metabolic dysfunction. People with Celiac Disease can develop this "allergic" reaction to Sulfa drugs like calcium channel...
  17. knitty kitty
    Here's some information about certain spices triggering symptoms in Celiac from a PubMed study.
  18. knitty kitty
    Hello, @OhCrumbs, I've got both dermatitis herpetiformis and thyroid problems. I found a drop of Lugol's solution applied to the skin every so often takes care of my iodine requirements. Just one drop is sufficient. Be careful! See article below. I also found High Dose Thiamine very beneficial in my thyroid problems. The thyroid uses lots of...
  19. knitty kitty
    I take Thiamine, Pyridoxine, and Cobalamine for pain relief. I have back pain due to broken vertebrae and this combination of vitamins relieves the pain without side effects of pharmaceuticals. Thiamine, Pyridoxine and Cobalamin are vitamins that are water soluble and safe. References: Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine...
  20. knitty kitty
    @heyitsme, Anemia, diabetes and Thiamine deficiency will cause poor production of tTg IgA antibodies. Have you had a Total IgA test done? DGP IgG antibodies are still produced with these conditions. Some of us are seronegative.
  21. knitty kitty
    Welcome to the forum! I've suffered with severe Ataxia and Neuropathy. Some people with Celiac produce antibodies that attack the nervous system. These are tTg 6 IgA antibodies. The usual blood test for Celiac measures tTg 2 IgA antibodies. Even if you don't have overt digestive symptoms, Celiac can cause malabsorption of nutrients. ...
  22. knitty kitty
    @PhilHandy, Vitiligo has a connection with Celiac Disease. Vitiligo and Autoantibodies of Celiac Disease https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3604853/ Anemia can affect not only red blood cell production, but also antibody production, resulting in false negatives. The DGP IgG test should also be run, in addition...
  23. knitty kitty
    @Aya77, You can read excerpts of my journey in my blog.
  24. knitty kitty
    @K M Wade, Are you still consuming dairy? Dairy is High in Iodine which will cause dermatitis herpetiformis flares. Dairy is also connected to eczema.
  25. knitty kitty
    Welcome to the forum, @Carlyallyn, Is that the test results for TTg IgA, which is usually the first seriological test for Celiac? A result this high above the"norm" is usually indicative of Celiac Disease and intestinal damage. Does the gastroenterologist want you to be consuming gluten prior to endoscopy and biopsies? Usually biopsies...
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